• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do I Bother With An Endoscopy?
0

9 posts in this topic

I know nothing about Celiac's. My blood test was 'quite positive' and I have been referred for an endoscopy, but I have no major symptoms and would prefer to go gluten-free instead. Thoughts?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


An endoscopy is not needed for recovery, and if you are sure that it is celiac disease, then you can skip the endoscopy if you wish - it is a personal decision.

Some like to have the endoscopy so they know their starting point in case they do not improve in a timely manner. I skipped the biopsy because my blood tests were very conclusive and I was prepared to go gluten-free or life based on that. It really is up to you. :)

Good luck!

0

Share this post


Link to post
Share on other sites

Thanks! My husband finds it hard to believe that one blood test can test for Celiacs and I'd hate to go gluten free if I didn't need to... But I think I need to talk to my GIM doctor more to weigh my options. Others do say that the blood test pretty much confirms it and her words were that it was "quite positive"

0

Share this post


Link to post
Share on other sites

Which blood tests and what were your numbers though?  I would think that "quite positive" is a done deal though.

0

Share this post


Link to post
Share on other sites

If you are able to get a copy of the blood test report, we can help you interpret how quite positive it is.  But your doctor is probably correct on that.  If there is any doubt in your mind, get the endoscopy done.  It will help you solidify the diagnosis, and also diagnose how bad the Celiac damage is so you kind of have an idea if it is going to take a long or shorter time to heal up.  If you go gluten-free now and change your mind later, you will have to consume gluten again for the endoscopy to be accurate, so it is best to knock it all out of the way now, and eat through the remaining gluten foods in your pantry.  

0

Share this post


Link to post
Share on other sites
Ads by Google:


TTG Iga Ab: Your Value 41.9, Standard Range <=3.9

Thank you!
Krista

 

0

Share this post


Link to post
Share on other sites

I guess if it were me and I was not having any symptoms, I would want the endoscope for a baseline just in case there are problems down the road.  They put you under light sedation and it's a fairly quick procedure.  Other than fasting, you do not have to do any prep work for the procedure like you would for a endoscopy.  I'm curious what prompted the testing if you were not having symptoms?  And, like Karen said, if more testing were needed later, going back on gluten is much harder than having the test done now.

0

Share this post


Link to post
Share on other sites

OK, I'm going to go ahead with the endoscopy. Thanks, everyone!

I guess if it were me and I was not having any symptoms, I would want the endoscope for a baseline just in case there are problems down the road.  They put you under light sedation and it's a fairly quick procedure.  Other than fasting, you do not have to do any prep work for the procedure like you would for a endoscopy.  I'm curious what prompted the testing if you were not having symptoms?  And, like Karen said, if more testing were needed later, going back on gluten is much harder than having the test done now.

0

Share this post


Link to post
Share on other sites

I was diagnosed at 53. I thought I had no symptoms until I went gluten free. I then realized I had many issues but gastro issues were not in the mix. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,403
    • Total Posts
      930,363
  • Member Statistics

    • Total Members
      63,826
    • Most Online
      3,093

    Newest Member
    Vshl92
    Joined
  • Popular Now

  • Topics

  • Posts

    • Make sure that you ask the doctor how long she has to stop the supplements before you have her levels tested and be sure to take them all with you when you have the appointment so the doctor knows what she is taking.
    • Talk to your doctor. With your family history and symptoms he/she may be able to diagnose based on resolution of your symptoms and family history. Also check with your local hospital if it has it's own lab.  Mine covered any labs at a greatly reduced cost based on a sliding fee scale. Did you have an MRI before they did the spinal? Celiacs with neuro impact will have white spots on an MRI that resemble the lesions found with MS. Many neuro doctors don't know this. I went through what you did and they did a spinal on me also based on the MRI results. If my doctor had know what the UBOs (unidentified bright objects) were I would have been diagnosed a couple years sooner than I was. Make sure if you supplement that you ask your doctor which ones you need to stop taking and for how long before they do a blood test to check levels. Sublingual B12 is a good idea when we have nervous system issues, but needs to be stopped for at least a week for an accurate blood level on testing. I hope you get some answers and feel better soon.
    • Thanks for that.  Will get her tested for deficiencies.  I did take her to a naturopath and get her on a bunch of vitamins, but she never was tested via bloods, so will get on to that, thanks  
    • Hi Could a mod please move this post:   and my reply below to a new thread when they get a chance? Thanks! Matt
    • Hello and welcome Firstly, don't worry about it but for ease your post (and hopefully my reply) will probably be moved to its own thread. That will make it easier for others to see it and reply and also help Galaxy's own thread here on track and making sense.  The antibodies that the celiac tests look for can drop very quickly, so... maybe? Celiac is difficult to test for, there are different tests and sometimes someone doesnt test on one but does on the other. If you can get a copy of the tests and post it here the community may be able to help explain the results.  It may have shown damage to the villi, the little tendrils in your intestine that help you extract nutrients from your food. Celiac is one, but not the only, way in which they can get damaged leading to a vast number of potential symptoms and further making diagnosis a tricky proposition. Definitely, there's a connection. Here's a page that explains it in detail: https://stomachachefree.wordpress.com/2012/03/21/liver-disease-in-celiacs/ Fantastic  It sounds as if your doctors were happy to diagnose you on the basis of the endoscopy? It may be then that you've found your answer. I hope so, you've clearly had a rotten and very scary time.  I'm sure with the positive reaction to the diet you want to go on and get healthy, but I would only add that you should discuss this with your doctors, because they may want to exclude other potential causes if they've not confirmed celiac at this point. Check out the advice for newly diagnosed here: To your family I'd simply say that celiac is a disease of the autoimmune system, the part of our body that fights diseases and keeps us safe. In celiac people the autoimmune system see's the gluten protein found in wheat, barley, or rye grains as a threat to the system and it produces antibodies to attack it and in doing so attacks it's own body as well. It's genetic in component so close family members should consider a test if they have any of the many symptoms. There's roughly 1 person in 100 with celiac but most of them don't know it and are risking getting or staying sick by not finding out.  There's further info for them and you here: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/ I'm going to ask a mod to move your post and my reply to a new thread, but wanted to give you an answer first The good news is you've found a great site and there will be lots of support for you here. You've also got 'lucky' in that if you're going to have an autoimmune condition, celiac is a good one  Most react really well to the gluten free diet and you will hopefully have much more healing to come! Best wishes Matt
  • Upcoming Events