• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Think I'm Gluten Intolerant? Help Please
0

3 posts in this topic

So I think I have a gluten intolerance/sensitivity. I say I think because I have not seen a doctor about it yet, and I only noticed that something was wrong with my body about two weeks ago. Everybody knows how their body feels and works and mine all of a sudden just was not behaving normally. Let me preface this by stating all my existing conditions/problems: 20 year old female, lactose intolerant (have been for about a year now), on daily medications for ADHD, anxiety/depression, and birth control. I've just moved back to college for my last year of school, and I'm mourning the recent loss of my father.

 

Now about the gluten problem. I just noticed new signs about two weeks ago when I would be eating lunch at work. Usually I had a sandwich (white or wheat), sometimes it was pasta. Almost immediately after I began eating, my stomach would develop a sour feeling - no other way to describe it other than an achey, upset, crampy, bloated feeling in my lower abdomen. The urge to go to the bathroom (though it was not always necessary), gassier than I've ever been in my life, I'd feel very drowsy and slow, and randomly my joints started hurting (knees, hips and ankles). At first I thought it might be excess stomach acid so I started taking Rolaids throughout the day and drank more water and had a snack in between breakfast and lunch. And the bad feelings would last so long I wouldn't have the appetite for dinner. I ruled out stomach acid, as I wasn't having heartburn or indigestion. In the mornings I usually have a bagel or two pieces of toast or something bready, since I don't have cereal anymore and never had time to make anything fancier than that. I've been eating bread my whole life so why all of a sudden does it bother me? But now I'm thinking that maybe I always had signs of it, but I was just treating those like they were the result of eating too much pizza or a big sandwich on a bagel and just thinking "oh my stomach just hurts because it's full". 

 

So I decided to try avoiding gluten for a period to see if I felt any better. During this time I moved back to school, and moved into a new apartment with my boyfriend. I did some research about what kind of foods to get, but here in this small college town, your two grocery options are either Walmart or Giant (and I'm on a tight college kid budget so I unfortunately chose Walmart). I thought I was pretty good about reading the labels and ingredients of things, but I wasn't as good as I thought because I still came back with bad stuff. And later after shopping for hours I was so hungry and slipped and got Chipotle (a big tortilla quesadilla to be exact) and got soo sick from it. So I think it's definitely an intolerance or a sensitivity. Could any experienced people here give me some advice? 

 

I'm also struggling on what to eat. I cut gluten out of my diet so abruptly, that I'm definitely experiencing withdrawal. I feel like a zombie. Always hungry, extremely low energy but not tired enough to sleep, unmotivated and frankly pretty depressed. Is this just what happens when someone makes a sudden change in diet? Will it go away? For lack of proper knowledge and optimal resources, all I've had to eat today was applesauce, a banana, some lemon yogurt, a small serving of brown rice and celery with cream cheese on them, and water. I'm sure my blood sugar is low, and I am depriving myself of the proper nutrients which is not what I want to do at all! I want to be happy, healthy and free of pain and discomfort. 

Please help!!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yes your body will go thru a withdrawal, Do you have ins.? Maby you should get tested for Celiac? I think it is important that people get tested when they know they have an intolerance. That way you won't say "Ohh ok Pizza tonight! Then I will be good!" Because you'll know it's Celiac and not an intolerance. Anyway if you choose to get tested you need to keep eating Gluten until after the test. If you decide not to. Yes your body will go thru a withdrawal, the symptoms will subside. You will learn what to eat. It seems hard at first then it becomes like second nature. you have to get to know brands somethings are made in a gluten-free facility some are not. so reading and learning is a big thing. Good luck! This is a good site. Best place to be when your having Gluten problems. 

0

Share this post


Link to post
Share on other sites

Check out the University of Chicago's celiac website for proper testing requirements that you can share with your doctor. Continue to eat gluten until all testing is complete.

I hope you find answers!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,427
    • Total Posts
      930,509
  • Member Statistics

    • Total Members
      63,854
    • Most Online
      3,093

    Newest Member
    loridelucareid
    Joined
  • Popular Now

  • Topics

  • Posts

    • Gaerty,  thank you for sharing this with me! You want to know something crazy? The night before you sent this I was googling "vitamin deficiencies linked to splinter hemorrhages" and an article came up about vitamin C deficiency. I can't remember the last time I took vitamin C or drank orange juice or consumed anything that has vitamin C on a regular basis. It's crazy that you responded to this post when you did. My splinter hemorrhage is razor thin and looks like it could be shrinking but it's hard to tell. Also it's not growing out of the nail bed. It stated more in the middle of my right thumb nail. I don't take a multivitamin mainly because I can't find one that doesn't trigger my anxiety. Trying to find a good one that doesn't have energy boosters in it like green tea and extra B vitamins (all my B vitamin levels are great). I haven't been tested for low C vitamin levels but I might have to now. I was tested for some of the base ones that most celiacs have issues with, folate, magnesium, B's, E's, and a couple others and all of them came back good with the exception of my vitamin D3 which in November 2016 was 16 and we tested it again in February, it moved up to 26. Still low but moving up. My liver numbers in October 2016 were bad but by February 2017 they were perfect. I had skin rashes, most of those have cleared up over the past 5 to 6 months, by about 85%, since I was diagnosed. This splinter hemorrhage came up about 7 to 8 weeks ago. Like I said it appears to be growing out but I'm still going to get it looked at.  Let me know what your doc says about the vitamin C levels. Also what multivitamin do you take?  Ps: I bought some clementines yesterday.  Thanks for responding!  Spencer 
    • Maybe try a rice based milk, I find the coconut flavoured ones really good with cereal.  
    • I guess they've never felt the political pressure the mainstream cereal producers were under in the age of rickets and pellagra? Plus there's not such a competitive market and its a cost manufacturers would sooner do without if they can, although if Udi's or Genius did start perhaps they'd get more business. I think I'll start eating flax seed again, that was good for fibre I think. I take a vitamin supplement also of course. 
    • Good for you! One suggestion, if you run into another reaction like your Endo, try and ask a question which puts the burden of proof on them, ie: 'Given the positive blood test, on what clinical basis are you excluding celiac?' At least it forces them to be more precise and perhaps exposes any flaws in their reasoning. Although if you reach that stage with a doctor it's probably worth looking for another... If I were a cynic I'd say your Endo had already metaphorically left the building when they were analysing your tests.Your primary seems more on the ball though Best of luck! If and when you go gluten free come back here and there will be plenty of support for you.
    • Great Image JMG.   Thanks for the feedback. I think I feel that the decision to push for further tests, and not shrug it off is the direction I want to go. And I think I may try the diet post-endoscopy, and see if I respond (particularly if my thyroid responds to the diet).  Thank you All!
  • Upcoming Events