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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

San Francisco Area Doctor And Talking About Celiacs
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3 posts in this topic

Hi Friends!

 

I have been gluten free for 2+ years but don't have a formal diagnosis because every time I go to the doctor, they want to test for everything else, or imply that maybe this is all in my head and I am so frustrated I could burst.

 

When I eat gluten, I get all the symptoms up to and especially nausea, joint pain, anxiety, muscle weakness, headaches, and brain fog. I've been to a gastroenterologist, and allergist, and my GP, and they all sort of throw up their hands and say they don't know what is causing it. Yes, I have had skin tests for all sorts of allergies, nothing came up. No, I have not had blood tests or biopsies. Symptoms were pretty well controlled on gluten-free diet, but now I seem to be reacting to corn as well and since it is getting worse, I need to see someone. I live in San Francisco. Any suggestions?

 

Thanks!

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Welcome

 

They may be throwing up their hands because they can't test you for Celiac if you have been gluten-free for 2 years?  At this point, you have to decide if you really want to go back to eating gluten to be tested.  If you are happy eating gluten-free and feel certain that gluten is an issue.....maybe you don't need to find a doctor to test you for Celiac Disease?

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Hi! Thanks for res

 

Welcome

 

They may be throwing up their hands because they can't test you for Celiac if you have been gluten-free for 2 years?  At this point, you have to decide if you really want to go back to eating gluten to be tested.  If you are happy eating gluten-free and feel certain that gluten is an issue.....maybe you don't need to find a doctor to test you for Celiac Disease?

 

Thanks for responding! I know that my testing options may be limited given that I will not, under any circumstances reintegrate gluten into my life. The consequences are far too painful. But my need for a doctor - and I am sorry that this was not clear - has more to do with the fact that I am still experiencing some symptoms. My gut it as my joints still get majorly inflamed. I don't know if maybe I am eating something contaminated or if I've developed a new allergy. There are so many unanswered questions that start with, but by no means end with the celiacs.

 

What I am really looking for is a doctor who understands celiacs  and who is able to help diagnose and treat the remaining symptoms.

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