Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Important Questions


Guest Addicted2Gluten

Recommended Posts

Guest Addicted2Gluten

Hi,

I had been on a gluten-free diet for a year, since I was suspected but not officially diagnosed as having Celiac Disease by my alternative physician. Once going onto the gluten-free diet I felt a lot better, most of my symptoms had went away. But, recently my doctor wanted to do a gluten challenge to see if I truly had Celiac Disease. So, I had been back on gluten for 1 1/2 months and I didn't notice any symptoms. I was so glad because I thought that I had been misdiagnosed, but now it's been just about 2 months and within the past 2 weeks, I have had horrible stomach pains, pale stools, diarhhea, dark circles under my eyes, pale (flushed) complexion, tooth discoloration, headaches, bone and joint pain, etc. Basically, all of my Celiac symptoms have come back.

I'm confused because I thought that I would have noticed these symptoms within a week or two not almost 2 months! Has this happened to anyone else? Any help would be very much appreciated!

Thanks in advance.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Addicted2Gluten

Hi,

I had been on a gluten-free diet for a year, since I was suspected but not officially diagnosed as having Celiac Disease by my alternative physician. Once going onto the gluten-free diet I felt a lot better, most of my symptoms had went away. But, recently my doctor wanted to do a gluten challenge to see if I truly had Celiac Disease. So, I had been back on gluten for 1 1/2 months and I didn't notice any symptoms. I was so glad because I thought that I had been misdiagnosed, but not it's been just about 2 months and within the past 2 weeks, I have had horrible stomach pains, pale stools, diarhhea, dark circles under my eyes, pale (flushed) complexion, tooth discoloration, headaches, bone and joint pain, etc. Basically, all of my Celiac symptoms have come back.

I'm confused because I thought that I would have noticed these symptoms within a week or two not almost 2 months! Has this happened to anyone else? Any help would be very much appreciated!

Thanks in advance.

Link to comment
Share on other sites
gf4life Enthusiast

I've heard of people going back on gluten and not experiencing symptoms for more than a year. It can also take some people many years to produce enough damage in their intestines to be accurately diagnosed via biopsy. If you plan on being blood tested, it might take a while for the antibodies being produced in your intestines to leak into your blood stream as well.

Sorry to hear that you are having symptoms though. But of all the diseases in the world Celiac is certainly not one of the worst to have, at least not once you know you have it and are able to fix it by changing your diet! :D And besides eating gluten free is a quite healthy way to eat, as long as you don't eat too many gluten-free treats ! ;)

God bless,

Mariann

Link to comment
Share on other sites
Guest Addicted2Gluten

Thanks for the help. You're right, celiac disease is definately not the worst thing to have since it is treatable on gluten-free diet.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...