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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Claire

Endomysial Test (ema)

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I don't know if they looked for internal bleeding....who would do that? I had a colonscopy which showed only slight diverticulosis. Nothing to even remove and send off for testing.

I know what you mean about the more doctors you see and getting more confused. My GI at least thought my antibody level was abnormal and so this started my search for answers about celiac disease. But the blood doc said in no way would you tell someone they could have celiac disease based on that alone. Well that sort of got me excited thinking the GI is mistaken but until the Celiac panel blood tests come back I won't know what's what!

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I would pose the question to your primary physician - whoever you consider that to be. May be your GP or other. Don't let them brush you off. Unexplained anemia can be a sign of either significant or slow, less significant internal bleeding. It should be investigated if all other possibilities have been exhausted. Claire

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My dd was also always anemic and I believe that it was directly related to her gluten sensitivity. Nothing was ever done about it and I was told her give her a vitamin and be sure she ate enough iron. This was a child who ate us out of house and home and then some because she was so starving and yet was vitamin deficient and malnourished to the point that her hair was/is falling out.

Drs. are on my hit list right now!!! We didn't get the menstrating line, obviously, but we just got some other BS because they obviously knew she was eating better than most children on this planet, yet was not absorbing the nutrients properly. They chose not to figure out why...

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Claire - well I don't know that I have celiac disease yet. I don't really have the gastro symptoms. But I'm going to ask my doctor to check for ulcers just in case. She's an internist but she's young and she doesn't seem to worry too much about what's causing my anemia. I want to change to another pcp but I can't do that in the middle of all these tests. One thing my doc will do is refer me to whoever I tell her to. Have to credit her for that.

e&j0304 - I'm right there with you on the doctors being on my hit list too. When the hemo doc stopped listening to me after he'd asked if I had 'D' or 'C' and I said no, I knew he wasn't going to be of help to me. At least he ordered the Celiac panel so I'm anxious to find out those results.

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