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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I'm a newbie. I mentioned to my general doctor about two weeks ago that I had been having loose stools for several months and she added some extra tests to my routine blood work. I don't know exactly what they were, since I haven't received a copy yet, but you all with more experience probably know. A week later she called and left me a message that I had gluten antibodies in my blood, I have celiac disease, she was referring me to a nutritionist.

I was pretty shocked (I thought I would end up just having some wicked intestinal bug.) So I called her back and asked if she was absolutely sure. She said she would refer my case to the GI doctors and would let me know if they wanted to do anything more. In the meantime, I stopped eating gluten. It's been four days and I honestly can't say that it's been any sudden cure. Today my doc calls and says the GI docs think the first test was conclusive, but they want to see me to go over everything and will also run some more blood tests.

So, I'm supposed to start eating gluten again and get these blood tests later this week. Did I do the right thing? I was really surprised that she would make a firm diagnosis on something so serious when it seems like there's a lot of uncertainty with this disease. Does it seem that my doctor screwed up, or am I just being difficult? Can I have gluten antibodies but not have celiac?

Thank you for any advice or information!

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This is just my two cents worth. They couldn't pay me enough to eat gluten for a couple of weeks so they could run another blood test.

It does take some time to heal, it took me about 2 years but I had celiac disease for at least 10.

Good luck and welcome

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If you are expecting more testing, or if you are wanting a small bowel biopsy to be sure of your dx, it is important that you continue to eat gluten during the testing phase. Some people are *very* sick and I can completely understand why they don't want to continue to eat gluten. However, if you can stick it out for a little longer, you will have more accurate test results. I was asymptomatic, so I just ate all my fave stuff anticipating the news. I figured if I was going down, I was going down in flames, lol. That is just me, though. Like I said, I felt great then, still feel great, expect to continue feeling great.......................

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If you are expecting more testing, or if you are wanting a small bowel biopsy to be sure of your dx, it is important that you continue to eat gluten during the testing phase.  Some people are *very* sick and I can completely understand why they don't want to continue to eat gluten.  However, if you can stick it out for a little longer, you will have more accurate test results.  I was asymptomatic, so I just ate all my fave stuff anticipating the news.  I figured if I was going down, I was going down in flames, lol.  That is just me, though.  Like I said, I felt great then, still feel great, expect to continue feeling great.......................

<{POST_SNAPBACK}>

My problem was I did not know I had to eat gluten for a time before having the test. No wonder I have to retake it but with burning stomach and kidney pains with gluten, I don't know if I can do it again. But if I want the diagnosis to be accurate I guess I will have to do it again.

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