• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Uncontrollable Itching
0

4 posts in this topic

Hi everyone,

I have been gluten-free now since Sept 1st of 2003. I have only had a couple epsidoes of accidental gluten ingestion, and none of them have been recent. However, for the past couple weeks, I have had INTENSE itching all over my body - especially my back, buttocks, scalp, neck, chin, neck. I have never experienced anything like this in my life. It actually keeps me awake at night & wakes me from a deep sleep. I also have red spots all over my body. The spots sort of look like acne, but I know they are not acne. I have some acne or spots on my face and I have white sores in my mouth (inside of my cheek in 2 spots). I also have itchy patches and red spots on my scalp. I have several very prominent red bumps on my neck. They actually look like HIVES.

I feel like this could be related to gluten, but not sure if it's something I am eating or something i am putting on my skin. I have not been diagnosed with DH, but suspect that i may actually have it. My case of celiac disease was quite severe with multiple health problems for many years before diagnosis. I am waiting to see Dr Green at the Celiac Center in NY City, but I can't get in there until April unless someone cancels an appt before then. I have seen a nutritionist there, though, who has been EXTREMELY helpful.

My question is this: Does anyone haave experience with this after going gluten-free? Could it be environmental (soap, shampoo, hair dye, laundry detergent, dry cleaning chemicals, etc)? I changed my hair color on Dec. 24 at a salon and had never been to that particular salon before. It didn't occur to me to think about the hair dye. Are there laundry detergents that are better than others for people with DH or celiac disease? I think I want to err on the side of caution now and go completely gluten-free in everything that touches my body...just until i can get this itching and redness to subside. I also recently bought a new brand of laundry detergent, not even thinking that would have an effect on my body. I just cannot seem to figure out what is causing this !

Help !!!!!!

Kathleen

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Kathleen,

I sure sounds like DH to me. You know something, get an appointment with a dermatalogist before your appt with the dr in NYC. You can't go until April like this. However until then, what laundry detergent do you use? I'm from Canada and I use Sunlight, it's very mild. Watch the shampoo and conditioner you used as you have some bumps in your scalp, go to a health food store and get a mild all natural one. I would skip makeup if you wear it. I would also look at a health food store or drug store for a lotion that's very mild with no scent. Ask the pharmacist for something that treats eczema or psoriasis. As for the sores in your mouth, I get them when I use a toothpaste that have gluten in it. Use Tom's of Maine toothpaste. Since I don't have DH but have had some skin problems read about DH on this site. They provide alot of info. Lastly, get some Epsom salt, put them in a warm bath and try to relax. Oh yeah I recommend not dying your hair, as you could have some open sores and could be infected by the dye.

Hope you feel better.

0

Share this post


Link to post
Share on other sites

Hi Crystal,

Thanks for your reply. You know, after posting my comments last night, i went to a couple of celiac websites and looked at various pictures of DH. Some of them look a lot like what I have right now. I have been treated for excema in the past and my eldest sister has SEVERE psoriasis (had chemotherapy twice to treat it - experimental - and was hospitalized a couple times).

I use epsom salt baths a lot. It was the only thing that helped my excema.

Laundry detergent - I bought TIDE FREE last week when we ran out of ALL FREE AND CLEAR. That's when the itching started. So I switched immediately to an organic brand.

Toothpaste - I use colgate or crest. Both are supposedly gluten-free in the US.

Shampoo - I tend to use head and shoulders, because it helps with the itching. however, since I had my hair colored, I have been using L'Oreal Color Vive shampoo for color-treated hair. I have not seen any ingredients on the label that look 'suspect'

All my skin makeup is gluten-free.

My hand lotion is gluten-free.

The places I am getting the red spots are places I don't use makeup or lotion, except for the small spots on my face.

I think you're right about the dermatologist, though. I think I should try to get an appt soon. It's been a year since I have seen my dermatologist. The strange thing is that none of my dermatologists have ever said anything about the possibility of DH, but then again, none of my doctors said anything about the possiblity of celiac disease until 6 months ago!

0

Share this post


Link to post
Share on other sites

Kathleen,

It seems like your doing everything right. I've been to the dermatologist about this discoloration on my back, it's not itchy or anything. He took a biopsy of it and it said nothing. He is totally baffled, he even invitited me to go to convention of dermatologists so his collegues could take a look. I said "no thanks" I'm tired of being a specimen. I hope you find what's ailing you.

Let me know

:D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,391
    • Total Posts
      935,838
  • Member Statistics

    • Total Members
      65,077
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • First have you been tested for celiac disease? Any doctor can do the blood test but you have to be eating gluten on a daily basis for the test to work, nut much just a half slice of bread a day. You should get this tested, the high constipation, coughing stuff up was very common for me before diagnosis. The coughing stuff up for me was from a allergy that developed I did not know of, the mucus was draining down my throat and choking me at times, and was constantly running a fever and night sweats. I was constipated for 4-10 days average back then and drinking plenty of liquids did not help in the least. Your gut rumbling could be many things, celiac is one, SIBO is another especially with the bad breath. in your case it could be related to constipation causing rotting, fermenting, and bacterial overgrowth of the waste in your system. Now to deal with the immediate symptoms, your constipation is also a sign of magnesium deficiency, I imagine you might have noticed some other symptoms from these. Now normally I would suggest either the Natural Vitality Calm or Doctors Best which is easier on the stomach. In your case I straight up suggest the Natural Vitality Calm it is a Magnesium Citrate and works a bit like a laxative. Start with 1/4 tsp twice a day in a beverage, I like the orange or the cherry in a hot green tea or you can try it in a juice. Up the dose slowly over a periods of a week to the full dose or perhaps a little more til you get a bit looser stool.     You mentioned the mucus in the stool 2 things cause this normally. Undigested fats, and inflammation/irritation causing the body to produce the mucus to help defend itself and purge the irritants. A doctor can probably tell you more but I might suggest a digestive enzyme in the mean time. I like to use a super papaya enzyme before and after a meal, find them on amazon. Jarrow also makes full enzyme complex that can help. Other thoughts if your on dairy, stop, with the constipation, and other issues this is a equation for trouble and you can reintroduce it in a few months when you clear up and see if it bothers you then. The bad breath can be a sign of lactose intolerance/digestive issues with dairy also. If it comes you you have celiac then you would have your explanation here as the villi which produce the enzymes to break down lactose are damaged/destroyed first causing most to develop a temporary lactose intolerance which for some goes away after a few months of healing. B-vitamin folic acid, and niacin will be a huge help also with some things. but will we get into that a bit later feel free to look up Liquid Health Stress & Energy if you thing it might be relevant at this point it is what I use 3 times a day with another blend they have.
    • Some of your symptoms sound like my ulcers.  I take carafate before every meal now and they are much better.  I have 3 ulcers possibly caused by taking iron supplements.  They are worse when I eat spicy food and dairy. I might be wrong but for your sake I hope it's just ulcers.  They were found by endoscopy.
    • The yellow is probably fat you are not absorbing.  The pain could be from your intestines being inflamed.  Go see the gastroenterologist.  The ER did not help me with any of those symptoms.  Good thing it's clear so you know it's not your appendix or any other vital organ.  It takes time but probiotics, bone broth and  vitamin D and b 12 help. My pain was mainly my muscles giving out from the malabsorption.
    • Hi, this has been a postcode lottery for some time, some health authorities support it others don't. The govt has recently indicated that doctors should no longer prescribe food to celiacs, you should check with your local GP to see if they are still doing this or not. if you want some advice on where to shop just ask  
    • @CleoTheLeoI've learned that I have a sluggish liver and that before trying to cleanse the liver, I need to make sure that the gall bladder is clear and working well, as well as the gut, so that when the liver is detoxing, the toxic wastes have an elimination route. Dr. Lam explains so many things in detail in his articles. https://www.drlam.com/blog/sluggish-liver-and-adrenal-fatigue/7854/.
  • Upcoming Events