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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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newo ikkin

I'm Always Tired.

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Guest myjade_84

Maybe you can try to include some breathing techniques on your daily routine. Many people take short, shallow breaths, and this will reduce the amount of oxygen absorbed by the body so it makes your lungs and your heart work harder. The proper breathing techniques will prevent your body from getting tired fast. After taking short, shallow breaths, try to breathe long and deep. Remember that you have to breathe through your nose and remove it through the mouth. 

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I have been Gluten free for 11 months now.  I was exhausted all the time prior to going Gluten Free and felt a significant change right away having so much more energy.  Over the past several months, that tired feeling comes back from time to time. I know I need more exercise as I always feel better afterwards.  My vitamin levels are all good and thyroid is fine too.  I take B complex vitiamins.  They really do help me.  I notice the difference if I forgot to take one.  Hope this helps. :rolleyes:

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I have been Gluten free for 11 months now.  I was exhausted all the time prior to going Gluten Free and felt a significant change right away having so much more energy.  Over the past several months, that tired feeling comes back from time to time. I know I need more exercise as I always feel better afterwards.  My vitamin levels are all good and thyroid is fine too.  I take B complex vitiamins.  They really do help me.  I notice the difference if I forgot to take one.  Hope this helps. :rolleyes:

I am going to the Dr tomorrow to see about a diagnosis.  I have had insomnia for  YEARS!  I got so bloated last week that I finally did a little "elimination test" of my own... BINGO!  I felt better after 12 hrs off gluten!  I've been reading like crazy and eliminating things from my diet.  I'm a nurse, so I have to have myself half diagnosed before posing symptoms to a Dr!! :D I'm hoping a lot of my "mysterious" physical problems will subside.  On the plus side, I lost 4.2# in 1 week without trying!  I had gained weight very suddenly about 6 yrs ago.  Looking forward to a definitive diagnosis and cleaning the gluten out of my house, if need be!

 

Debbie

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Hi Guys,

I had an endoscopy and I have Celiac sprue.  I have eaten very healthy as a vegetarian since 1968 and as a vegan for many years and always my tests have shown I was doing great! Because of my lifestyle I made it a point to become very educated on nutrition. Since finding out about the Celiac, I have been gluten free for 3 months now. I have had EVERYTHING tested and it all came out ok.  But I can barely take care of myself I am so tired.  I have been tired before but never like this. This is different.   I am at the point where I am going to have to see about getting someone to come in to help to clean my home.  Plus my food bill is not something I can keep up with on a fixed income.  I am still taking Imodium just to get through the day or I can't leave the bathroom.  My stomach is a mess and I am getting very concerned.  I saw a nutritionist and I am taking all the supplements they said to but it doesn't seem to be doing anything yet.  I can't get a good sleep in even with medication.  I have nightmares and wake up exhausted.  Does anyone have any information that might help or even maybe have felt this way?  I felt better when I was on gluten. My stomach is flatter,my breathing a bit better, joints not quite as sore. But the trade off, not good.  My stomach is acting way worse.  I have been meticulous about eating gluten free or even buying products that could have even been manufactured in a plant where there could have been cross-contamination. I don't know what else to do.  My doctor is certain it is celiac. All replies are appreciated because I have a life that i would like to get back to!  :blink:

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This is what helped me to get  some additional energy just after 2 weeks:

 

1. Zinc

2. Magnesium

3. Selenium

4. Vit D

5. Swedish Bitters

 

Good luck!

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Could it be depression? Exercise might help.

Are you eating out? If so stop and eat at home for a few weeks. See if it helps.

Have you checked all meds and supplements for gluten?

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Oh god that is a sticky one with the  food bill, do you have an Aldi or Trader Joes near you? I been to one a couple of times and have purchased quite a bit of Gluten free real food + treats before.  Second option check out farmers markets and co-ops.  I have an acquaintance, who has a huge load of debt from school and  is on disablility .She goes to one in a neighboring town and gets food ridiculously cheap and we are talk awesome stuff. I used to poo poo those markets having come from a small town  in ohio originally that had a terrible co-op and farmers market. But if your in a good sized city you can do well with those options. As for cleaning and energy I know this one, most here probally do as well I've learned to  clean in stages.For instance I may do  vacuming in bedroom and livingroom on one day , and the next the sofa and living room. Moping on another day and dusting. It sounds like a lot but it does help atleast with me. What got me at first was when I went to working overnights that was a doozy, but finally adjusting better. I hope some of these options work for you and are viable.

Hi Guys,

I had an endoscopy and I have Celiac sprue.  I have eaten very healthy as a vegetarian since 1968 and as a vegan for many years and always my tests have shown I was doing great! Because of my lifestyle I made it a point to become very educated on nutrition. Since finding out about the Celiac, I have been gluten free for 3 months now. I have had EVERYTHING tested and it all came out ok.  But I can barely take care of myself I am so tired.  I have been tired before but never like this. This is different.   I am at the point where I am going to have to see about getting someone to come in to help to clean my home.  Plus my food bill is not something I can keep up with on a fixed income.  I am still taking Imodium just to get through the day or I can't leave the bathroom.  My stomach is a mess and I am getting very concerned.  I saw a nutritionist and I am taking all the supplements they said to but it doesn't seem to be doing anything yet.  I can't get a good sleep in even with medication.  I have nightmares and wake up exhausted.  Does anyone have any information that might help or even maybe have felt this way?  I felt better when I was on gluten. My stomach is flatter,my breathing a bit better, joints not quite as sore. But the trade off, not good.  My stomach is acting way worse.  I have been meticulous about eating gluten free or even buying products that could have even been manufactured in a plant where there could have been cross-contamination. I don't know what else to do.  My doctor is certain it is celiac. All replies are appreciated because I have a life that i would like to get back to!  :blink:

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BoJonJovi, that is a great point, there are so many snakes in the grass often something can get over looked. Meds was at first one I did not think of until I started pounding the internet and books I could get my mits on for that kind of info. I do know Target has their brand and some of their products are brazenly marked gluten free. If you are on meds, a good pharmacy with your Dr.'s orders on it will get them on alert to do things. When I got out of the hospital my surgeon had put on the scripts and called even(bless his heart) to warn them make sure  things was cool so I wouldn't get glutened by that. So make sure if you are on meds they haven't been possibly cc'd. Also check your tupaware and glassware and if you cook with untreated wood or bamboo you could have it in that as well if there are scratches present.

I know I may sound overkill but I am well past and done with Gluten, to me its as unwanted as a stalker because of all the places it shows up.

Could it be depression? Exercise might help.

Are you eating out? If so stop and eat at home for a few weeks. See if it helps.

Have you checked all meds and supplements for gluten?

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Just a note to all reading this thread, it spans back to 2005, so you may want to start a new discussion if you need answers.

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This is what helped me to get  some additional energy just after 2 weeks:

 

1. Zinc

2. Magnesium

3. Selenium

4. Vit D

5. Swedish Bitters

 

Good luck!

I'm curious:  Swedish Bitters for energy? 

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On November 8, 2005 at 8:30 PM, newo ikkin said:

Ever since I started my gluten-free diet in about May 05 I've been extremely tired all the time.

At night I get about 7-8 hours of sleep, wake up at 6 and go to school for about 7 hours. Then as soon as I get home from school I'm too tired to stay awake and take 4-5 hour nap, then wake up to eat dinner, do homework, take a shower, then I get extremely tired again and go to bed.

I have noticed that when I wake up I don't feel well rested unless I get 14-16 hours of sleep at a time.

I started taking vitaims for some more enegry and eating a bigger, healthier breakfast but it doesn't really seem to help.

I hate this because if I don't take a nap during the day and I go out I feel dead and if I sleep I miss out on the whole day.

Is this a side affect of celiac disease or a gluten-free diet? Does anyone else feel like this?

I feel like this all the time. It's the worst. I'm so sorry. 

The only time I noticed a difference was a couple months ago. I had made a commitment to go to the gym every single day for 21 days and during that period I started sleeping and feeling rested after only 7 or 8 hours (CRAZY FOR ME BECAUSE I USUALLY NEED 14 TO FEEL RESTED EVEN THOUGH I AM COMPLETELY GLUTEN FREE AND WHOLE FOODS, NO DAIRY, AND NO SOY). I don't know if it's hormones or what but something about working out increased my energy a lot.

I work out every few days now and I'm back to being exhausted. Starting to think the only way I'm going to be "normal" is if I hit the gym every single day. 

I don't know if you feel this way but the worst part of being so exhausted is the judgement from other people. I'm a highly productive person and it's really hard to be kind to myself when I need so much sleep, especially when the people around me don't understand that I'm not lazy I'm just literally completely exhausted.

 

Edited by Emma123

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5 hours ago, Emma123 said:

I feel like this all the time. It's the worst. I'm so sorry. 

The only time I noticed a difference was a couple months ago. I had made a commitment to go to the gym every single day for 21 days and during that period I started sleeping and feeling rested after only 7 or 8 hours (CRAZY FOR ME BECAUSE I USUALLY NEED 14 TO FEEL RESTED EVEN THOUGH I AM COMPLETELY GLUTEN FREE AND WHOLE FOODS, NO DAIRY, AND NO SOY). I don't know if it's hormones or what but something about working out increased my energy a lot.

I work out every few days now and I'm back to being exhausted. Starting to think the only way I'm going to be "normal" is if I hit the gym every single day. 

I don't know if you feel this way but the worst part of being so exhausted is the judgement from other people. I'm a highly productive person and it's really hard to be kind to myself when I need so much sleep, especially when the people around me don't understand that I'm not lazy I'm just literally completely exhausted.

 

Yeah the working out first thing in the morning makes the next 6-8 hours a alot more productive. It has to do with the endorphins and getting your heart rate up. I do 20-30mins HITT every morning before breakfast. Sorta have to kick yourself to get going but really worth it for the way you feel the rest of the day.

On a side note I noticed that when do workout harder I have to increase my magnesium intake a bit more, and my B-vitamins.

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After it was discovered that I was Celiac and went on a gluten-free diest, I never slept more that 2-3 hours without waking up, and then I was often perspiring.  I spoke to another celiac who recommended taking supplements that included Vitamins B12 and D.  This helped greatly with my sleep.  However then I found out that supplements were not absorbing very well, often less that 50% was being absorbed by my body.  I found a company that specializes in Vitamins that are fully absorbed by the body.  After taking them, I started sleeping much longer at night, and I felt much better.

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On 12/22/2005 at 8:52 PM, key said:

I was feeling very fatigued and having aching in my legs. LIving on caffeine for survival to take care of my three kids. I had a full workup for vitamins and anemia. Actually my hgb was better then it has ever been. GUess the diet is working some. Anyway, I think it was because i was getting gluten. Make sure your thyroid is ok and I do exercise which can help some. Take vitamins, etc.

Monica

Hi Monica

I hope you are feeling better now. 

In any case, your post made me think of something I have been reading about lately - Dr. Satsha Gominak's work. It connects sleep disorders and body aching. She corrects it by tightly controlling the levels of vit. D and B complex. Be aware that this can be caused not only by too little panthotenic acid, but also too HIGH panthotenic acid supplementation. And we celiacs sometimes rely too much on our suplemments.. I am guilty too. 

Unfortunately, she is not the most straightforward speaker but her work is very eye opening. Please look into it. 

 

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I know this thread is very very old, but I want to suggest one thing to tired people. Get a sleep study. Sleep apnea is something that can cause you to be very tired, and it can kill you. A sleep study is super easy and the cost of an office visit copay. It's easy to treat with cpap and it's amazing how much better you feel.

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2 hours ago, Juca said:

Hi Monica

I hope you are feeling better now. 

In any case, your post made me think of something I have been reading about lately - Dr. Satsha Gominak's work. It connects sleep disorders and body aching. She corrects it by tightly controlling the levels of vit. D and B complex. Be aware that this can be caused not only by too little panthotenic acid, but also too HIGH panthotenic acid supplementation. And we celiacs sometimes rely too much on our suplemments.. I am guilty too. 

Unfortunately, she is not the most straightforward speaker but her work is very eye opening. Please look into it. 

 

Juca hun.....you just responded and tried talking to a person that has been gone for 12 years....please check the date

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6 hours ago, Ennis_TX said:

Juca hun.....you just responded and tried talking to a person that has been gone for 12 years....please check the date

Sorry, I am new here. 

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34 minutes ago, Juca said:

Sorry, I am new here. 

No worries. What you said was super interesting and there's a ton of people who will read it when they google the right keywords!!!!!!

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11 hours ago, Victoria1234 said:

I know this thread is very very old, but I want to suggest one thing to tired people. Get a sleep study. Sleep apnea is something that can cause you to be very tired, and it can kill you. A sleep study is super easy and the cost of an office visit copay. It's easy to treat with cpap and it's amazing how much better you feel.

I just found a nicer compilation of her work, much easier to understand. She also makes the connection between Sleep apnea, vit. D and the gut. Maybe you will enjoy it too: 

https://www.vitamindwiki.com/Handout+on+Vitamin+D+(Hormone+D)+and+sleep+-+Gominak+2012

She mentions autoimmune diseases in general but not Celiacs. But I think it all connects and makes sense. 

You are right, no matter how a post is, someone might read it. I did. 

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