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Excellent Gi In Orange County, Ca

peppyking

By peppyking
in Doctors

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peppyking Apprentice
peppyking
Posted

My daughter was recently diagnosed with celiac disease, so I was screened, although I have no symptoms. My blood test was positive and I am looking for a GI in Orange County for my biopsy (my daughter's is pediatric). Any recommendations?

Also, we are gluten free in the home, so I have not been eating gluten regularly (maybe 3 or so times a week for the past 2 months). I know I should be eating it daily before testing, but I obviously had enough antibodies to test positive. Do you think I will be able to just do daily gluten for a few weeks? Or would most docs make me wait longer? I would love to just put the diagnosis behind me and move to what will likely end up being full time gluten free. Eating gluten daily with a 3 year old with celiac makes me nervous about cross contaminating her.

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peppyking Apprentice
peppyking
  • Author
Posted

I just got the results:

Tissue transglutaminase ab,iga 30            (> or = 4 antibody detected)

Immunoglobulin A 138                                   (81-463 mg/dL)

Endomysial antibody scr (iga) w/refl to titer positive

Endomysial antibody titer 1:20                 (<1:5 titer)

 

My daughter's numbers were much more definitive, but I have not been eating gluten daily.

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cyclinglady Grand Master
cyclinglady
Posted

Welcome to the club! Do you plan on doing the endoscopy?

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peppyking Apprentice
peppyking
  • Author
Posted

That's my plan, unless the GI doc convinces me otherwise. I think it would be better to have a definitive diagnosis. I'm just still in shock, as I have no symptoms and was convinced my daughter got it from my husband's genes.

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  • 4 weeks later...
sunny2012 Rookie
sunny2012
Posted

I would worry about contaminating a young child too. Also, she is not really going to understand why she can't have some of what you eat.

 

There are lots of people who have no symptoms. IT is called silent Celiac. My personal belief is that we accept a lot of poor health without realizing that it is not normal.

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StephanieL Enthusiast
StephanieL
Posted

I think if you plan on doing the biopsy to continue eating gluten. If it is something premade (bread, crackers) then you can safely eat it till you get to the GI and figure out what they want to do.  Even if you take a prepackaged snack and sit outside to eat it once a day. 

 

Good luck!  

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