• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
LisaRN

Back On Track

Rate this topic

Recommended Posts

Hi

I am new to all of this, well not all of this I have been celiac since I was almost 2 years old (now 21). I was always very good about my GFD when I was a kid, prbably until I hit the 4th grade from there it was once and a while to now when I dont even think twice about it. This is totally inexcusable since I will be graduating from nursing school in 2 months :angry: , I know the risks and everything that goes with this diease. I dont know what caused this sudden interest in my well being but I am gonna really try. I am also trying to lose weight which makes it very difficult sometimes being on the GFD, everytime I go back on a GFD I gain more weight. :unsure: Does anyone have any ideas on what I should do to get back on track, dietician, doctor, support group?????

Thanks

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm right there with you. Diagnosed at 2, began eating everything and anything I wanted. now 28 and terrible problems/symptoms. going to a specialist today. one of the few docs in my area in Colorado - listed as a recommended doc for celiac.

I gained about 12 lbs in less than 2 wks. I can do nothing to lose weight. less calories, more execise - nothing.

I'll keep you posted following my appt today. Hang in there.

Share this post


Link to post
Share on other sites

Thanks for replying, I have seen some of the postings and everyone seems to be completely compliant with their GFD. Makes me feel so guilty, like I am a traitor. What are the things you cant resist?? Are you trying to get back on your diet? Is that why you are going to the specialist?? I used to go every other year since I was 2 to a gastro guy at Sick Kids Hospital in Toronto, now the guy I go to doesnt want to see me unless I have problems or I want to get pregnant. I just feel very little support from him. I am wondering if seeing a registered dietician will help me?? Hope you appointment went well.

Lisa

Share this post


Link to post
Share on other sites

I started gaining weight and went on gluten-free diet and now I have lost most of my weight. I try not to buy the rice noodles and breads a lot. I eat them once in awhile but not a lot. I eat a lot of fresh fruits and veggies. Lean meats are great. Just set your mind to it and cut out all junk foods. also try not to reward yourself with your fave food. I did that and then it puts me back at square one. It is hard but today my Husband said that I was looking good and it made me feel good and proud of myself. My advice is to get a healthy cookbook and make some great meals. good luck ...you can do it!!!

Share this post


Link to post
Share on other sites

I have been trying relentlessly to not eat anything i'm not supposed to eat. But i feel worse. I went to specialist yesterday - great doc! he is probably in his upper 50's and he has studied Celiac his entire doctor life. Most recent research two weeks ago at a clinic.

He took blood work and of course scheduled me for a biopsy. He said he figures that he will then continue with colonoscopy, ultrasound, etc. So I fear that I'm in for months of tests and waiting. He told me the symptoms I am having could range from a wide range of things. From polyps on my colon, damage to intestine that may or may not be able to be fixed, cancers, to the extreme of nothing being able to be done. Scared? yeah a little but i'm optimisitic that it won't be too serious and will be able to heal.

I cannot eat anything or drink anything right now without feeling sick. sucks. like having the flu for the past year.

I have a hard time resisting pasta. and the rice and corn pasta's don't taste good to me. have been trying different brands with no success. I actually stopped craving breads, etc. and have no desire to eat them. which is great.

I'm thinking about going to a dietician myself b/c i'm having a hard time finding things to eat - for a balanced diet. Doc yesterday told me to start taking multi vitamins, etc. to help.

Good luck. Also - I have two boys - 3 and 4 and although my 3 yr old shows all signs of Celiac - otherwise - i have two very healthy boys and had no problems getting pregnant, nor labor and delivery. they both went full term.

so - keep me posted on your progress and i'll do the same!

Share this post


Link to post
Share on other sites
Ads by Google:


Do you ever feel like every time you have an ache, pain or anything else abnormal with your body you just chalk it up to the celiac? My boyfriend says that I am always sick, but in my opiion I am never sick because I say its self induced. I get scared that everytime I chalk something up to the celiac it could be something bigger that I should have checked out. :(

I need to build up some will power, my family can say with ease how I need to stick to my GFD but sometimes its just too hard. I plan to start today! I mean really try, its hard to picture my life without the cramping and bloating adn gas and without Mcdonalds little hamburgers :unsure:

I hope that they can get all your tests done soon, so you dont have to go through months and months of testing. I was very young when I went through all of that so I dont remember it. Stay strong and I here if you need someone to talk to.

Lisa

P.S. thanks kayjay for the advice :)

Share this post


Link to post
Share on other sites

Hi Lisa,

I'm a newbie, too. Been gluten-free since the end of January and I feel so much better. Had a couple accidental ingestions and paid the price; abd pain and bloating, diarrhea, just like the old days.

I had no idea how significantly gluten was literally poisoning my life until recently. I'm more energetic (not going to the gym or anything, just participating more in everyday activities and life in general), my skin looks younger and feels better, even my posture has improved over the "shrunken" appearance I had developed. My advice is to give the gluten-free diet a try. I've always been a "carb head" but once you get over expecting gluten-free food to taste like the real thing, most of it is not too bad.

Congrats on your upcoming graduation! I've been an RN for almost 8 years. It's a noble profession though it does tend to harbor the "eat our young" mentality, especially among the older nurses. Don't let them get to you. (remember this... you'll need it daily !!)

It's the field that makes us all hyperchondriacs, but you know, it probably IS the gluten is responsible for the majority of your complaints. I know all of my fragmented symptoms easily fell under the celiac umbrella, but they've all improved (not disapeared) since going gluten-free.

Good luck to you, and take care of yourself!

Share this post


Link to post
Share on other sites
once you get over expecting gluten-free food to taste like the real thing, most of it is not too bad. 

Please rethink your thinking! gluten-free food >is< the real thing! :D

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,926
    • Total Posts
      943,555
  • Member Statistics

    • Total Members
      67,169
    • Most Online
      3,093

    Newest Member
    Momagainsthexane
    Joined
  • Popular Now

  • Topics

  • Posts

    • Lex_, Again I am afraid Ennis_Tx is right here. Ennis_tx eats right and is eating all the right things and still has to take/supplement with Magnesium. The magnesium is a clue?  We need magnesium to make energy. I like to say as chlorophyll is to photosynthesis for the plant so is Magnesium for/to the Animal(s). Meaning we will run down without it. It is said "we waste away without enough Magnesium" Dr. Carolyn Dean wrote the book "The Magnesium Miracle" because people genuinely feel terrific when they take it. they are able to make energy again and function properly but the question remains  why? are we low in it the first place if we need it so much. Iron plays the same role in the blood/respiration but people still get IDA. It turns out low stomach acid limits our ability to absorb Magnesium and Iron. see this link about the role of gastric acid in Iron absorption. https://www.ncbi.nlm.nih.gov/pubmed/7286584/ How do we know this.  . . well it is has been studied and proven. look no further than the FDA box warning on PPI's entitled "FDA Drug Safety Communication: Low magnesium levels can be associated with long-term use of Proton Pump Inhibitor drugs (PPIs)" https://www.fda.gov/drugs/drugsafety/ucm245011.htm now this takes about 6 months of use to become low in magnesium but being low in stomach acid limits our ability to absorb Magnesium and why many people have to take it at 2x to 3x the RDA to get the desired effect. In fact the FDA says only stopping PPI's will reverses this condition.  Obviously  taking higher amount of Magnesium can help alleviate some of these symptom's but only raising the stomach acid will completely alleviate the condition. quoting "Although both patients' hypomagnesemia partially resolved with intravenous replacement, in both cases discontinuation of PPI treatment was necessary to stop ongoing symptoms and to stop magnesium loss." Hypomagnesimia is critically low Magnesiums akin to IDA. here is a thread about IDA and why this is so . . .  low stomach acid leads to low Iron levels. I think it will help explain why Celiac's often have to take Magnesium to help with their chronic fatigue symptom's. I hope this is helpful but when I helped my stomach acid levels my Magnesium begin to be better absorbed from the food I was eating. Nuts are good Magnesium sources especially Cashews and Almonds. So is chocolate hence Ennix_tx cocoa nibs etc. . . ***** this is not medical advice but I know taking Magnesium Citrate helped my energy levels. posterboy by the grace of God, 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”        
    • Lots of people are diagnosed after 50 according to this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3227015/  
    • Smaller meals throughout the day should help. I had the same problem but if it keeps up you may need to see the doctor again and get surgery. Anti-acids may help out too. It's been about 10 years since I had mine. Good luck.
    • Nobody posted anything on my profile that I'm aware of but it wouldn't let me get into it. My email got hacked though right around the same time so I just figured it was connected. I'm not exactly Y2K ready. This is the first computer I ever bought and I still have a flip phone. Maybe it's not connected. Don't really know. 
    • Ouch I am sorry . I know how painful bone,  joint, muscle pain can last weeks for me . Hopefully you'll be able to clear it quickly if otherwise you have been healthy this season. As others suggested some TLC , vitamins, mineral to assist may help. I find accupuncture helpful too or massage. As for a gluten-free pizza I can no longer have them due to additional intolerances to milk. I in past days found sabatassos gluten free pizza carried at my local Costco pretty yummy if you can find it.
  • Upcoming Events