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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Siki

Gluten And Mental Health

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Hi everyone! I'm so glad to have found this site. I'm in the process of trying to be diagnosed with... something. Either it's Celiac's or I'm going utterly mad. I apologize in advance - this may be long. I'm very frustrated.

I'm electing to post this message here because, at the moment, I'm having a problem similar to AddictedtoGluten's. I will also post it as its own thread. I hope that's allowed!!! I was on a gluten-free diet for about 6 months, felt immeasurably better, but was never formally diagnosed. I started eating gluten again about 3 weeks ago, but my symptoms are not nearly as severe as they were before I went gluten-free. Whatever is wrong needs a diagnosis fast. I feel like a train wreck.

...... sigh, please read the rest of the message in its own topic, under Gluten and Mental Health.....

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Hi everyone! I'm so glad to have found this site. I'm in the process of trying to be diagnosed with... something. Either it's Celiac's or I'm going utterly mad. I apologize in advance - this may be long. I'm very frustrated.

I'm electing to post this message here because, at the moment, I'm having a problem similar to AddictedtoGluten's. I will also post it as its own thread. I hope that's allowed!!! I was on a gluten-free diet for about 6 months, felt immeasurably better, but was never formally diagnosed. I started eating gluten again about 3 weeks ago, but my symptoms are not nearly as severe as they were before I went gluten-free. Whatever is wrong needs a diagnosis fast. I feel like a train wreck.

...... sigh, please read the rest of the message in its own topic, under Gluten and Mental Health.....

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    • First, you're not really "young" to be diagnosed. Most people are diagnosed when they're older but it isn't because they didn't have it when they were young. It's because until recently people were being told they have IBS and everything else under the sun before they were finally told they have Celiac. My 4 year old has it. His doctor said they're seeing it in younger people now more than ever because it's really easy to test for it. I'm 30 and I was diagnosed right after I turned 29.  I was like you. My symptoms weren't that bad. But I know they would have gotten much worse over time. It terrified me that I had an autoimmune disorder. I have anxiety anyway, and once I knew that I had celiac I banned gluten from my life. I'm not exaggerating. I threw out Cosmetics, lotions, soaps, shampoo, everything. I don't allow it in my house. Sure, I could have said "Ah screw it" and kept eating it, but what it was doing to me internally was what mattered. It will destroy your body. It can cause you to develop other AI diseases - much more serious and debilitating ones than Celiac. It can cause cancer. It's not something to mess with.  I know it's overwhelming. Believe me, we all do. It's a huge learning curve. But really, there's nothing I can't eat. I have learned to figure it out. I can look at a recipe and make it gluten free very easily. Want a burger? Gluten free bun. Pizza? Got that too. There are so many options and resources. Eating out is a trick and that's the one thing I do miss the convenience of, but I'm healthier than ever because I don't eat take-out all the time. You can go to websites like findmeglutenfree.com and find tons of restaurants that are reviewed by people with Celiac's disease.  So, yeah, it's worth it. You have this. It isn't going away. And you can manage. You'll be fine. You'll be pissed off and overwhelmed and sad about it. But no sense in dwelling on the "poor me I can't have gluten" crap. You have an AI disorder that you have 100% control over. You don't eat gluten and you'll be ok. You're not like my sister who has lupus and never knows when she'll have a flare. You'll never be like my cousin who has RA and has to rely on medicines with nasty side effects just to function. But you keep eating gluten and you may end up like them because you'll be in store for another AI disorder.  It's poison to your body. Get rid of it. It's worth it. 
    • http://www.cureceliacdisease.org/ University of Chicago Celiac Center.  
    • I'm hoping to donate to celiac research this year.  Does anyone have recommendations as to where to donate?  Celiac Disease Foundation?  Celiac research at a hospital or university? Thanks!
    • Thank you so much for your responses!! It is so hard because there are so many unknowns, inconclusive results, and lots of waiting!! I didn't realize it was so difficult to even get the tests to begin with. Thank you both SO much. I feel much better & am more comfortable going into my doctors appointment. 
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