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17 With Celiac


Guest hockeybabe

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Vyse Newbie

this thread is a bit old, but i thought id throw in my 2 cents for the heck of it.

Im currently 18, ive been gluten-free for nearly 3 years. it was rough at first, but my friends were pretty supportive, even though they forget sometimes to this day. i have had people mess with me jokingly, but going through most of my high school career without wheat has openned some peoples eyes. Maybe people in my hs didnt really pay much mind. Then again i am quiet and 6"3', so maybe i was a little scary to those that didnt get to know me. then again i never had drama with anyone either, with the whole not talking much thing.

Either way, i know how you feel. I have even sat in pizza hut numerous times just to spend time with my friends, and my friends have eaten pizza in front of me too many times to count, not maliciously of course its just that they dont understand. And i forgive them for that because im their friends and they're mine. :)

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ianm Apprentice

You guys are very fortunate to know you have celiac disease at 17. I didn't find out until I was 36. Basically this disease caused me to waste the first 36 years of my life. High school was the worst 3 years of my life. Even at 37 there are people who will try to tempt me into eating gluten laden foods. Keep taking care of yourselves, its worth it in the long run.

Ianm

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  • 1 month later...
kings-kid Newbie

I am 18 years old. I was diagnosed when I was in grade 7, but was in denial about through most of highschool, and even some now. I try and stick to the diet, but sometime I just slip up and cheat.. especially if there is Pizzs or lassania in the house.

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celiac3270 Collaborator

I bet you've heard this before, but you can't do that to your body! :o Being partially gluten-free is no good--you need to be 100% gluten-free 100% of the time for your body to heal--and if you're not, there's a severely elevated chance of osteoporosis, type 1 diabetes, and cancers, as well as a severe decline in estimated life expectancy. Yea, it's a pain in the neck at first and it does require you to think about eating in a new way, but it gets easier after awhile and it's for the good of your body. Even if you don't feel anything when you eat gluten, your intestines are still being destroyed. I don't know if this will have an effect--probably won't--but at least I tried :rolleyes:

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  • 3 months later...
sweetiegrl109 Newbie

hey! my name is jess and im sixteen, i was diagnosed two years ago and i think im doin okay with this...there definitly are some times when i feel like poop because of celiac disease but i came to realize that i do feel much better on the diet...but the low times, they can be really low...like when i go to a party and wanna drink and cant because of the things they have there or sometime when a friend makes a comment as a joke...but it hurts...i understand what your going through cuz im feeling it myself...my sn is sweetiegrl109@aol.com...send me a message!!!

xoxo

-jess-

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KaitiUSA Enthusiast
hey! my name is jess and im sixteen, i was diagnosed two years ago and i think im doin okay with this...there definitly are some times when i feel like poop because of celiac disease but i came to realize that i do feel much better on the diet...but the low times, they can be really low...like when i go to a party and wanna drink and cant because of the things they have there or sometime when a friend makes a comment as a joke...but it hurts...i understand what your going through cuz im feeling it myself...my sn is sweetiegrl109@aol.com...send me a message!!!

xoxo

-jess-

<{POST_SNAPBACK}>

What you can do is just bring your own drink along. Nobody will care. I have had to bring my drinks pretty much everywhere I go and people don't even ask questions. They don't need an explanation to why you brought it along either.

However, if you are talking alcoholic beverages then its probably a good thing you can't have the drinks they have there.

You don't cheat on the diet do you? That can cause those days you are talking about of just not feeling well.

I know some people can really get to you with the comments they make as jokes...it bothered me for a while but doesn't anymore. If someone says something then you can ignore it or come back with a joke back on them.

It also used to bother me to sit with people while they ate my pre gluten-free favorite foods...now I don't even crave it so they are welcome to all the crap food they want and if its in front of me it's cool.

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
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    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
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