• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
eckert177

Trying To Determine If I Have Celiac?

Rate this topic

Recommended Posts

Hello everyone. I have been lurking around this newsgroup for awhile

now. I finally have the courage to post and ask some questions. I am a 22

year old male. 5'6 138lbs. I have basically been this weight since I was

about 17 years old. About 3 years ago I started feeling stomach

discomfort.What I mean by that, is that everyone morning if I awake early I

get the runs. Or basically the pain of diahriaa. I have come to accept this

happening every morning. Not liquidly but soft. (I apologize for the terms

but you all are probably used to it:) At night time when I lay down and

through out the day my stomach just feels like there's always a knot in it.

During the day it growls even when I'm not hungry. It makes weird noises the

worst at night when I lay down. Its come to the point where I need some

background noise on in the background cause its embarrassing. It just seems

like its basically an overactive stomach.

But its effecting my life. I try to stay away from quiet rooms with

allot of people. The worst is the fact that in the morning my stomach is the

most discomforting. It feels like a knot and I'm not hungry for about an

hour or 2 after I wake up. So if I have to head to a meeting or class my

stomach is the worst then. I hope I have explained this well. I appreciate

all the feedback and know someone out there can recommend what to do. I know

I should head to the doctors. But what type of doctor and I feel more

comfortable going to one after getting feedback from everyone. Or if anyone

has had this in the past and know of little remedies. Thanks you all very

much. And God Bless.

Jim:)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Guest jhmom

Hi Jim and welcome! :D

I know EXACTLY what you are talking about from the morning runs to the burbling intestines!!! I have not found anything to stop either of these symptoms.

I have been gluten-free since last Sept and however I have seen some improvement I am not 100% better but at least the abdominal pain is gone. In my case there may be overlapping problems, the doctor is still trying to figure it all out but I suggest you try elimitating dairy and or other possible culprits, that is what I plan to do too.

Good luck to you and God Bless

Share this post


Link to post
Share on other sites

Whenever I have an accident, my stomach gurgles so loud it can be heard over my teens' music. I can also feel whatever it was I ate as it passes each stage of my intestines. It feels like a jagged ball as it goes, and sometimes my abdomen is red and swollen where it is at. Try going gluten-free, see if it makes a difference to your body. The worst that can happen, is that you will have restricted your diet unnecessarily for 4-6 weeks. The morning runs is probably because you have not gone all night, and everything has slid through at once. The place to start is with your regular doctor. If you don't get answers there, then start looking for another doctor. My regular doctor is sending me to an allergist, and I am hoping the allergist will order the blood panels I want. I do hope you get better soon!

Share this post


Link to post
Share on other sites

Hi Jim,

I went through the same situation in college. It was quite embarrassing.

I found out that I have celiac disease by living outside of the U.S. Every time I came back here, and went on a gluten filled diet, I got really sick. It was a no brainer for me to eliminate gluten from my diet.

You might give an Asian type diet a try to see what happens (or move to Thailand). :D Just stay away from the instant rice (it makes me sick), and frozen chicken (the chicken broth has gluten in it).

Good luck. B)

Share this post


Link to post
Share on other sites
Guest aramgard

Jim, Thomas is right. It doesn't really take a doctor to diagnose us. Before I was diagnosed you could hear me over the TV or radio or grandchildren clear to the other side of the house. I visited doctors many times during the 53 years it took them to diagnose me and I was only diagnosed because I had seen someone on TV talking about Celiac and specifically requested the testing. The doctors reply was "Oh that couldn't be the problem". But he called and appologized after the results came back. Nighttime had slowly became hellish, with pain, bloating, cramping and then the constant diarrhea. It takes several months, usually, to feel better on a gluten free diet, but it is really worth the effort. I've been gluten free for three years and have only had the cramping and diarrhea once in the past year and that was because I forgot to read a label. If you need help with the diet, just tell us, we are all experts with this diet. It does become easier after a few months. Don't give up hope, just try the diet for a few months and see the difference. Shirley

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,949
    • Total Posts
      943,640
  • Member Statistics

    • Total Members
      67,313
    • Most Online
      3,093

    Newest Member
    Kellyon
    Joined
  • Popular Now

  • Topics

  • Posts

    • .....damn I thought I had run into stupid doctors on my own, yours flip flop more then a ADHD kid and I should know that one. Yep celiac and gluten-free for life....get copies of all your POSITIVE test and compile them in a folder, write the others off as doctor stupid was tripping on acid. Get copies of all your medical records and personally take them to a new doctor....might want to look through them first and make sure the idiot did not put anything in there wrong. Well if you can anyway......
      Congrats on the diagnosis and sorry you found one of the idiots, you get those a lot in life just sucks when it is someone in charge of your well-being and health like that. I take it you have already been through the newbie 101 thread and gone to a whole foods diet to boost up the healing, cleaned out the kitchen and set for the haul.  
    • Also I should add that in the 12 weeks, my vitamin d plummeted and now am deficient. Would you guys accept a celiac diagnosis (I am pretty confident that I have it- I was sad before the challenge that I couldn’t eat gluten anymore. Now after the challenge i am EXCITED to never eat it again as I feel like such crap now) or can a positive diamodated Gliadin  IgG indicate anything else? Or is it specific to celiac? I am happy to get a diagnosis,  but want to make sure it’s the right one. I wish I trusted my doc more (example- 3 days ago they called and said congrats, no celiac, u can eat gluten!! The doc signed off on it. But I looked at my results and pointed out that the deamidated IgG levels were not reported yet. The doc said whoops my bad. The next day they came back positive and I got another call & they said, nevermind, no gluten, you’re positive! They are idiots). 
    • Looking for advice and also to help those undergoing testing. I went to my general practitioner back in August with nausea, bloating, diarrhea, migraines, sluggishness, and a feeling of general unwellness. I was eating a gluten diet at the time. My doc ordered the dual antigen screen- it came back positive for celiac. He set up an appointment for me with a specialist. I called the specialist and they could get me in 8 weeks later. I asked the specialist if I went gluten free is this would affect any testing. They said “no” that I was in a gluten diet for so long I would be fine. However, 8 weeks later, the blood test showed no celiac- my results were normal after 8 weeks on a gluten free diet. I felt great, for me the turnaround was almost immediate- in a week or 2 I felt amazing. But that didn’t help with getting accurate results (mostly wanted to rule out another autoimmune disorder). I then went on gluten for 7 weeks (I ate a lot of gluten- like at least a bagel a day and much more on some days- I wasn’t messing around, I wanted an accurate diagnosis)and repeated the blood test at 7 weeks. It came back a very weak positive for deamidated gliadin abs iGg. I then underwent a endoscopy because the doc said that number, although positive, was not high enough to go off of. The endoscopy came back normal- however, the doc noted that higher levels of antibodies were found but not in the “abnormal range.” So, they were present, just not in crazy levels. I then kept eating gluten- I should note my doctors SUCK (could do a whole other post just on this- I have been my own doctor pretty much). I just took another blood test at 3 months eating gluten. My levels are now SUPER high for deamidated Gliadin abs IgG. The doc is confident I have celiac. Question is- my doc is so bad, I wanted to check here to make sure that it indicates celiac. I also wanted to help others as I know there’s lots of conflicting information on how long to do a gluten Challenge. For me, it took 3 months. My gut tells me I am early stage celiac- I don’t have full blown damage yet, but if I keep eating it I am sure it will do some damage. Just wanted to highlight this as if your case isn’t super bad yet, you may have to eat gluten longer- everyone is different. Any advice on my results would be awesome!
    • Hi Matt,  Thanks for taking the time to reply!  I completely agree haha.  Thanks for the links - I'll give them a read over!  I think it was a mixture of the first time travelling with being gluten-free and the added bonus of the language barrier, it made me dread meal times when usually food is the first thing I think about when travelling to new places! Again, I think the planning element was also a factor, not being able to walk past a nice bakery without walking in - why do most Berlin train stations have bakeries in everyone?!?! THE SMELL!!!  Haha, good excuse! Could have used that in the hotel restaurant (arrived late the first night) and the only avail dish was a dry chicken Caesar salad (literally 3 thin slices of chicken, 5 cherry tomatoes and a plate of lettuce).  I am I'll give the website a look over too - thank you! My app's with my consultant are every 6 months, basically was just sent away with no info/advice given and feeling the struggle now that reality has set in that this is for good!  Hope you are well! 
    • Gluten is a protein smaller then blood,bleach does not kill it as it is not a germ. I would replace scratched pans. baking dishes, tubaware, wooden utensils, colanders, etc. Throw out crumby condiment jars and any non gluten-free spices and condiments. Cast Iron can be saved and some metal utensils by putting in your oven self clean cycle, 500F will destroy the protein. I always tell people easy ways to get started on new cookware, nordicware microwave cook ware, omelette makers, steamers, rice cookers, grilling plates (do not forgot the splatter cover), This way you can have a cheap and easy meals, a new crockpot and use crockpot liners is great for soups, I suggested a combo rice cooker/crockpot/steamer as a great investment. OH if you want a nice clean safe prep area/counter/eating place mat, look up freezer paper/butcher paper. I did a post on where to get it in bulk awhile back. But laying it out is perfects, and makes clean up a breeze. Foil sheets in baking dishes works great for a extra precaution but if you have any with baked on stuff or scratched look at getting new ones. PS took me over  months to start feeling much better. Sometimes the improvement is minor and you have to think back to the worst you had. It does improve but normally big changes are after a year.
      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
      https://www.celiac.com/gluten-free/topic/118842-freezer-paper-for-safe-prep-surface/?tab=comments#comment-979071 https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
  • Upcoming Events