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Any Ellicott City, MD Moms of children with Celiac's?

gmorton

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gmorton Newbie
gmorton
Posted

Hi,

My 9 year old son was just diagnosed with Celiac's Disease this past weekend. They found it looking for something else, and since he was asymptomatic the diagnosis blindsided us. I was wondering if there are any other Ellicott City, MD moms I could connect with. It's been pretty overwhelming and anxiety-producing so I was hoping I might connect with someone who has been down this road already.

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Adasmama Newbie
Adasmama
Posted

Hi there, I'm not in Ellicott City but I do live in Maryland. My daughters were both diagnosed last April. My oldest is four and a half and was asymptomatic, my youngest is almost 3 and was very, very sick prior to diagnosis.  I'm in a Maryland ROCK (raising our celiac kids) support group that's pretty awesome. We meet up about every three months. I'd love to chat if you need anything. I know it's all overwhelming at first. 

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  • 3 weeks later...
firefly42 Newbie
firefly42
Posted

How can I find out more info on Rock in MD? My son was just diagnosed and I've been looking for local support. Thanks

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Adasmama Newbie
Adasmama
Posted
9 minutes ago, firefly42 said:

How can I find out more info on Rock in MD? My son was just diagnosed and I've been looking for local support. Thanks

I found it through a Facebook group. I could help if  you want to send me your name I could add you. 

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firefly42 Newbie
firefly42
Posted

Sure I'd love to be added. Is there a way to send an email through this site?

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Adasmama Newbie
Adasmama
Posted

I'm not sure, I'm new to this forum too. Search for ROCK'n Maryland on Facebook, that's the one I'm a member of. But it's a closed group so I don't know if you'll be able to find it. 

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      Trying to read my lab results

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      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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