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Terrible pains in my stomach


Moff

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Moff Newbie

I have been on a gluten free diet for over 3 months but I still have terrible pains in my stomach every night my doctor has given me so many different pills to help. he has taken blood from me to see if I am allergic to any thing else. I am waiting to see a dietician. I was wondering if anybody else with coeliac has had these pains it affects my sleeping  so much as I am up 3 or 4 times a night I would appreciate any suggestions just to help me have a good nights sleep.

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RMJ Mentor

I used to get stomach pain when I wore pants with an elastic waist.  

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cristiana Veteran

Hi Moff and welcome to the forum.

I wonder if you are eating oats?

In the UK it is often recommended that newly diagnosed coeliacs keep off all oatmeal for about six months to give a badly damaged gut time to heal.   Then oats can be gradually reintroduced, but remember, only gluten free ones known as pure oats (oats are naturally gluten free but get exposed to gluten in the manufacturing process).    That said, some coeliacs will never be able to eat even pure oats because they react to the avenine which is the naturally occuring protein in oats. Unfortunately I appear to be one of those coeliacs!  If I eat any oats I get very bad stomach pain and bloating.

When I was first healing I also found lentils and peas gave me gut pain.  And soya based products.  Now I can eat all these, but you might want to think about whether these might be being affecting you.

Milk might also be causing you some pain.

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Bloating can cause terrific pain - don't underestimate how much.  I have had terrific pain in my lower left quadrant for many months and it has taken me a long time to realise that I still can't drink too much milk as it causes bloating and pain there.  

 

 

 

 

 

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Moff Newbie

Hi Cristina thank you very much for all that information I will take it all on board I have an appointment with my GP as he has taken blood samples from me 2 weeks ago to find if I am allergic to anything else, I will definitely take on board what you said about the oats once again thank you

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cristiana Veteran

A pleasure, Moff.  It sounds like you are in good hands - it took several weeks for my pain to settle but while you are waiting for your other results if you try avoiding oats and milk that should help initially.      By the way you are spelling coeliac (i.e. with an 'o') I am thinking you may be in the UK. If so I would think of joining Coeliac UK if you haven't already - they will send you a Food Directory or if you prefer you can get a special app that will help you identify 'safe' foods to buy in the supermarket.  They also produce informative magazines, I think quarterly.   

Do come back to us if you need any more help.

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flowerqueen Community Regular
On 20 April 2016 at 9:58 PM, Moff said:

I have been on a gluten free diet for over 3 months but I still have terrible pains in my stomach every night my doctor has given me so many different pills to help. he has taken blood from me to see if I am allergic to any thing else. I am waiting to see a dietician. I was wondering if anybody else with coeliac has had these pains it affects my sleeping  so much as I am up 3 or 4 times a night I would appreciate any suggestions just to help me have a good nights sleep.

Hi Moff, 

'Three months in, is still early days, your body may just be withdrawing from gluten (which can cause symptoms) or you may be intolerant to something else.

I have been having stomach cramps, not just at night though, and an urgency to rush to the bathroom after eating. I have been gluten free for about 4 years now, and I have started to react badly to other foods. My latest have been soya and xanthan gum, I'm still playing detective to see if there are other food intolerances.  Hope you get somewhere with your dietitian, let us know what they say.

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