Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I need a Dr. for my Gluten Sensitive 7 year old in Norman, Oklahoma


Katharine

Recommended Posts

Katharine Newbie

I have a son that has exhibited gluten sentivity since he was very young.  I decided to put him on a gluten free diet on my own to see if his symptoms and behavior changed at all.   It was a wonderful improvement.  But, the Oklahoma Asthma and Allergy clinic tested him for Gluten Allergies and found nothing.  I went gluten free with my son 2 years ago and found that I felt much better too.  My problem is that my son's Dad (NOT MY HUSBAND)  does not understand or appreciate how important eating glutten free is for him.  He makes fun of me and asks me "are you a Doctor?".   Does anyone know of a Nutritionist or Doctor in Oklahoma that can help support my son and I in our quest to understand gluten sensitivity?  We are healthier and happier not eating gluten but we seem to be up against a difference of opinion from other family members that feed him gluten and tell him not to tell anyone.  

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  Unfortunately, there is no such thing as a gluten allergy.  You can be allergic to wheat, but not to gluten.  Celiac Disease is an autoiummuine disease that happens to trigger "flare-up" when exposed to gluten (attacks the small intestine).  To get tested you have to be consuming gluten daily for a period of 8 to 12 weeks (blood tests).  Non-celiac gluten sensitivity  is determined after ruling out celiac disease and then trying the gluten free diet.  

For a child, a diagnosis is important so that schools can accommodate their gluten-free  diet (not to mention relatives....) 

Please learn more at the University of Chicago's celiac website:

Open Original Shared Link

Take care!  

Link to comment
Share on other sites
Stephanie78 Newbie

Katherine I changed my sons diet to gluten free soy free dairy free because of his adhd and sensory disorder he was a completely changed child NO MEDICATIONS NEEDED it is the ASD diet!!! His school wasn't on board at first but they said they would try it and they admitted the wished they would have listened to me !!! 

Link to comment
Share on other sites
Stephanie78 Newbie

I told them it was against my religion to give my child gluten and the teacher actually told me that wasn't fair for me to say that.. I told her if my son couldn't have pork due to his religion would they give it to him ?! That is when she agreed... Literally 3 days into school after Christmas break she sent a note home saying we are now enjoying a calmer and happier Dylan... His goal was to be able to sit during circle time ... And he did it!!!!!

Link to comment
Share on other sites
stri8ed Rookie

As the others have alluded to, gluten sensitivity is not an allergy, which means it cannot be detected using the transitional means. That being said, there is growing research and many MD's who are beginning to acknowledge the many adverse effects gluten can have on susceptible individuals.

I suggest you encourage the dad to read up on the latest research on gluten sensitivity. If you are seeking out a doctor, your best bet may be a functional MD (I have seen one in Chicago who was well aware of gluten sensitivity).

A good recent article on this - Open Original Shared Link

Be sure to read the comments.

 

Link to comment
Share on other sites
Gemini Experienced
On 8/5/2016 at 10:11 PM, Stephanie78 said:

I told them it was against my religion to give my child gluten and the teacher actually told me that wasn't fair for me to say that.. I told her if my son couldn't have pork due to his religion would they give it to him ?! That is when she agreed... Literally 3 days into school after Christmas break she sent a note home saying we are now enjoying a calmer and happier Dylan... His goal was to be able to sit during circle time ... And he did it!!!!!

I have to admit, that was a brilliant thing you said to the teacher!  ;)  I like the comparison to pork and I'm going to have to remember that one. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,074
    • Most Online (within 30 mins)
      7,748

    Robert Noah
    Newest Member
    Robert Noah
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Nacina
      Well, that's a big question. When he was seeing the nutrition response testing dr. that changed each time we went in. He hasn't been seeing him regularly for theist ten months. When he had a horribly week in March I started him back on the 4 that were suggested to keep him on. Those are: Standard Process Chlorophyll Complex gluten-free, SP A-F Betafood gluten-free, SP Tuna Omega-3 Oil gluten-free, And Advanced Amino Formula. He also takes a one a day from a company called Forvia (multivitamin and mineral) and Probiotic . Recently he had to start Vitamin D as well as he was deficient.  
    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
×
×
  • Create New...