• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do I Need More Testing Done?
0

9 posts in this topic

Hi everyone, I'm looking for some advice. I've had some tests done but not a full celiac panel. Should I have the full panel done, or, in your experience, should my results so far indicate Celiac? Thanks.

Enterolab results (stool):

Positive for IgA gliadin

Positive for tissue transglutaminase

Positive for celiac gene

(sorry, i don't have the exact numbers...they're on the other computer, but I do recall the numbers were very strong positive according to the stool test)

York Labs (blood fingerprick):

Positve IgG gliadin

I'm asking because I've had trouble complying with a gluten free diet...I guess because I ordered these tests myself, I'm feeling like it's not "real" or I'm a hypochondriac. Should I have other blood tests done?

I've seen that a full celiac disease panel tests for blood TtG, EMA, and reticulin antibodies in addition to the gliadin antibodies. What do you think? I haven't had these other assays done. Should I just assume that I have celiac disease? Or should I consider the tests I've already had done as possible indicators, but not fully confirmational (? is that the word?)? Thanks.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If your Enterolab panel came back positive for everything, then I recommend starting a gluten-free diet immediately. You would not test a strong positive if you were not ill. You also would not have ordered the tests if you were not ill. Try the gluten-free diet for 6 weeks. You have nothing to lose but poor health.

0

Share this post


Link to post
Share on other sites

HI, I recently had my family physician run a celiac panel on me to see if I had celiac. It came back a weak positive result 20-30 gliadin ab (igg) 21 (<20), gliadin ab (Iga) 10 (<20). I have been doing alot a reseach the past week and still confused on what these results mean. Especially since my symptoms do not include weight loss. Mine are recurring abdominal bloating, pain, diarrhea, constipation, bone pain, fatigue, fatigue, mood swings, irritabilable, ringing in my ears. I was diagnosed with IBS about 7 years ago. Recently read and article that promted me to have the blood test done. No weightloss and more of a weightgain, I exercise daily and still feel tired alot. Dr. referred me back to my GI to have a biopsy but can't get in till June 1st. Till then I feel like I'm in limbo. I read about this Enterolab and was wounder how to get in touch with them or web site would be great. Thanks!!

0

Share this post


Link to post
Share on other sites

I would always recommend a blood and biopsy diagnosis above all else, simply because the sad fact is many doctors will not accept any other type of diagnosis as being real. I would say to anyone who can tolerate their symptoms long enough to hang in there and wait for a blood panel and biopsy before going gluten free. Then if all else fails you can always go on the diet anyway, nothing stopping you. It's just better to not have to argue with doctors for years down the line whenever you "claim" to have celiac disease and they don't wanna hear it without an official medical diagnosis. (And it saves you from the hell of going back to gluten later after being gluten-free, just so you can finally get the testing done after all.)

0

Share this post


Link to post
Share on other sites

I had a similar problem - mostly because my celiac panel (and it was the full blood test, though not done by Prometheus) came back inconclusive. But I had already started a gluten-free diet, and didn't really want a biopsy. I've discovered, by dietary test, that I react to gluten. That's a good enough answer for me. No, I don't have a formal diagnosis, which can be an inconvenience in many ways, but my dietary challenges have left me quite sure that I fell awfully darn "not-right" when I have gluten.

You have to decide how much of an answer you need for yourself. (And if a gluten-free diet even helps you feel better.)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Cheri,

I think all of those are sympoms of celiac. Those are symptoms that I have I am guessing that your dr. has tested you for other conditions like lupus, thyroid, things like that. Those symptoms could be anything, but if you have gone through test after test and you did test positive on your blood panel then I would say gluten-free is worth a try.

--My blood work came back neg. I had gone gluten-free and then back and so I think my test didn't work very well. I have spent so much money on test after test finding that nothing is wrong with me but I was still sick. So I did the enterolab test. My test came back positive and milk sensitive. I have been gluten-free for almost 2 months now and I feel so much better. I am only 25 and for the first time in 10 years I have hardly any pain in my joints, I have more energy, better mood... I thought I was falling apart and had 100 different things wrong with me so I was happy to find out that they were all connected :)

I hope you find out what you have, I know how hard it is to get test done and wait for the results. Hang in there,

Kayla

one more thing I also gained 30 pounds in about a year. I also exercise regularly and eat very healthy weight gain is a symptom although in my experience drs didn't think it was a big deal. I always had a hard time gaining weight when I was younger then out of nowhere I gained 30 pds. I have lost about 15 now and I think I like this weight that I am at. I don't look too skinny and I feel more better.

0

Share this post


Link to post
Share on other sites

Thanks, everyone for responding to my concerns, I guess the best thing to do is to continue to have gluten and go on gluten-free diet after I have my tests done. It seems so long but maybe then It will give me some answers if not then Maybe the gluten-free diet is something I want to be on to improve my overall health. It's just feels good to share this, people who do not have problems like this don't understand what you are feeling and going through. Thanks again!!!! cheri

0

Share this post


Link to post
Share on other sites




Thanks everyone for your input. I did make an appointment with a gastroenterologist. I don't know what I'll get, but we'll see. I did find my actual numbers from Enterolab and to me, they seem quite high compared to what others have posted. Does that make a difference? Do higher numbers mean you have a worse case?

Fecal Antigliadin IgA 269 units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 121 units (Normal Rnage <10 Units)

Microscopic Fecal Fat Score: 30 Units (Normal Range <300 Units)

Yeast Score: 135 Units (Normal Range <10 Units)

Milk Score: 108 Units (Normal Range <10 Units)

Egg Score: 108 Units (Normal Range <10 Units)

Does the Yeast, Milk, and Egg situation improve as your gut heals? Just curious. It's quite a limiting list. Is anyone else dealing with multiple sensitivities? Did any of them improve? Thanks.

0

Share this post


Link to post
Share on other sites

It looks like your numbers are very high! For some people, the other food senstivities lessen, but for others they do not. Since my other food problems do not involve my gut, my list will always be limited. It gets easier to deal with.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,390
    • Total Posts
      935,832
  • Member Statistics

    • Total Members
      65,077
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • Look for sweet rice flour with the asian products or visit an asian food store.    The combination of flours needed to make an 'all purpose' flour is a science.  You need to get each type right or it won't work.  I use white rice flour, sweet rice flour, sorghum flour and tapioca flour to create mine, Sweet rice flour is also called glutenous rice flour (not to be confused with gluten )    5 parts white rice, 4 parts tapioca, 1 1/2 parts sweet rice, and 1 1/2 parts sorghum.   Parts can be Cups or lbs or whatever your quantity your mixing,. Mix well and store in the cupboard.    Don't forget xanthan gum to stabilize.   Less is more with that.    
    • Hello again i heard somewhere that if you have been diagnosed with celiac disease after all the tests have been done you are entitled to a prescription of food containing gluten free food. I am in the uk but i thought this had been recently discontinued? Anyone help.
    • Hello thankyou its always great to know that other people are going through things the same time. Yes my endoscopy is friday coming at 8.15am, been through the procedure before for diagnosing a hernia so that side of things are ok, just not sure if i needed the biopsy at first being the blood test confirmed  positive but i know now that i do need it not just for me but also for my 11 year old daughter who could also be celiac later and it would be better for her to know 100% mum is celiac.
    • Hi Whitepaw Your question about what was I eating before I fell ill is a good one.  I had given a party the previous month and there was a lot of cake left over and what is more, it was all gluten free because I had made it!  So I was eating maybe a couple of slices a day...  I was taking soluable aspirin when I shouldn't take it, really.  I was also taking iron supplements.   And adding chilli to a lot of my food - normally not a problem.   And I had a huge amount of stress going on having just completed a project and also having tests on a lump on my tongue. Oh yes - and  I ate some marshmallows which may have contained gluten?  And my son had a stomach virus at the time. High fat food + aspirin + iron supplements + chilli + stress+ possible glutening + stomach virus?  = gastritis!! I also ate quite a lot of walnuts the days before it got really bad so maybe they didn't help. I need to be much more careful - it has taught me a lesson. I'm particularly cross with myself about the aspirin and also not checking the marshmallow ingredients as I am usually so careful. I know exactly what you mean about dreading the next meal - last night I had chicken and potato again but added a tiny bit of bolognese and I actually enjoyed the meal, which I think meant it sat easier in my stomach.   I think that there is a psychological element to acute gastritis, too.  I think if one is stressed it can hang around a lot longer.  I have read a few posts from people who found after trying to do all the right things to get better it was going onto medication to help with stress that actually helped them get better in the end.  I can see that - because if I could hear the children fighting, or had a stressful conversation with someone, I could actually feel my stomach react. Anyway - thank you for your help, I am so grateful. And great idea about the food diary.  Perhaps, also, worth making a note about stress factors on a particular day, and what meds one was on.  I think ompremazole was a great way to stop the gnawing pain for me but since I have lowered the dose I have to say that a lot of the bloating and feeling of nausea has gone. I think if I ever get gastritis again I'll stick myself on a gastritis diet first, just for a few days.   If that doesn't help I'll probably check with my doctor but take ompremazole for maybe two to three weeks til the gnawing stops, then taper down.  I hope it won't happen again though!  There is no doubt about it, it is a drug to be taken with caution, but I have to say I have heard some success stories too of people who took it short term and were helped tremendously.  I think tapering off it is probably a good idea, though, because I do have a friend who I think is suffering from rebound at the moment by coming off an inhibitor cold turkey.
    • Hey all so ever since about a week ago I felt a sharp pain in my upper right quadrant, followed by a minor hotflash and it hurts to press on my right side. I'm extremely worried because I was admitted to the ER last night, blood came back fine, xray fine and ultrasound fine. What prompted me to enter the ER was the fact that now my breathing is affected..   SYMPTOMS SO FAR: Sharp Pain Touching My Right Side Minor weakness , no fever. Mucus in stools? (when i wipe its a yellow on the toilet paper sorry for tmi) Right shoulder soreness Mucus in jugular? Or lung!? The "pipe" you can feel on your neck going up to your head, somewhat warm to the touch. Aches to touch. Happens mostly at night. Began last night and returned tonight. Unusually smelly breath. Awful Constipation, when I CAN go barely anything comes out as its flaky. Slight Pain in right leg, comes and goes. Very active stomach, gurgling can be heard from as high up as my chest. Slight stomach pain relief when massaging. I'm very worried people I'm petrified of surgery and I don't want to die.. But I don't understand why everything would come clean if im experiecing these symptoms?   Anyways
  • Upcoming Events