• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hip Pain?
0

11 posts in this topic

I have managed to get glutened a few times, and most recently I have been having really bad awful pains in my hips. It hurts to move them out the side, like if I wanted to cross my legs, and when I'm driving or walking, they are cracking and popping like a box of rice=krispies that fell into a puddle of water. I'm a bit concerned because I have a very thin bone structure and I have not had anything done to check it out aside from the heel scan I had done about 5 years ago. However, I'm thinking that since my heel didn't hurt, it might not be a good test of my overall bone density, as it was just one part of my body. The pain usually subsides, but this last time I got sick, the pain is now sticking around, and I'm having a hard time walking. I went to my doctor yesterday and expressed my concern, however she said that at my age, I'd set a world record for osteoperosis, or even osteopenia. She sent me for x-rays to see if I had any stress fractures, or anything else, and poked and prodded me to make sure that I was not infected, or just stiff. My concern is this-

if the x-rays don't show anything bad, what else could it be?

I don't know where to go after this, and I'm afraid of what will happen if I can't find out what is wrong.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I can't relate to the rice crispy type "FizzyHips", but the pain - oh yes.

For me it wasn't side to side as much as forward and back. It lasted quite awhile, though not at a constant level. It gradually got worse until I couldn't actually walk, which lasted nearly a month. I do attribute it to Celiac.

I also have had severe pain in various other places, and most seemed bone related in nature. Most lasted two to four weeks. Shoulders, back, ribs, legs, etc. All I suspect were brought on by the gluten intolerance and/or subsequent damage. The pain seemed to be slowly traveling from one area to the next, sometimes subsiding while it was "on the move".

I'm still not pain free, though I believe nearly there now, as there are only a few small places left. It is getting easier day by day to get around without discomfort.

However, I have also experienced what yeast can do to a person's gut. The damaged gut seems to be all the more susceptible to infection. I wouldn't overlook this possibility, not after what happened to me with yeast. I don't know if you are familiar with this subject, but you might want to search the board for "candida", "Caprylic acid", and "Acidophilus". Google those too, and you may find more than you ever imagined.

0

Share this post


Link to post
Share on other sites

I'm just wondering why I'm in so much pain... do you think that there is an attack going on in my hips, (like som gluten mysteriously got there or something..)or is it just something I'm not going to get an explination to?

0

Share this post


Link to post
Share on other sites
I'm just wondering why I'm in so much pain... do you think that there is an attack going on in my hips, (like som gluten mysteriously got there or something..)or is it just something I'm not going to get an explination to?

I don't have a scientific or medical explanation, but I do know that for me it was really painful, and all I could do is find the least irritating movements and stick to those. For my hip, leg and knee pains, I found it GREATLY beneficial to use a leg pillow (or fold up an extra blanket) to lessen the stress while sleeping. It made a huge difference for me.

I suppose it could be the body trying to repair parts which it couldn't deal with while the glutening was going on. Just make sure you give yourself plenty of proper nutrients so the body can do what needs to be done. The freshest veggies - all kinds, dark leafy ones too. Fresh fruits are full of all sorts of good stuff. And, or course, plenty of water.

0

Share this post


Link to post
Share on other sites

Hello Princess:

If I were you I would have the x-ray on your hips and then have the docotr do a bone density test. It is so important that you listen to your body and push your doctor to keep testing until they figure out what is wrong.

I think many of us have learned the hard way that the medical profession is far to willing to say it's all in your head, it's stress or your depressed. We really must take charge of our own health. If you don't get satisifaction from this doctor then change doc's.....

Sally

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hello Princess:

If I were you I would have the x-ray on your hips and then have the docotr do a bone density test. It is so important that you listen to your body and push your doctor to keep testing until they figure out what is wrong.

I think many of us have learned the hard way that the medical profession is far to willing to say it's all in your head, it's stress or your depressed. We really must take charge of our own health. If you don't get satisifaction from this doctor then change doc's.....

Sally

Have you been tested for RA or sent to a rhumatois specialist? All summer I was having very bad hip pain constantly. I couldn't lay on my side, hurt if I sat too long, ETC. Finally I was sent to a Rhumatoidoligist and they did a lot of indepth tests. Came back that my celiac (and having not been put on a gluten-free diet so long) caused borderline RA...being made worse everytime I was glutened. Still have some pain (hardly any) but it only acts up after I accidently am glutened.

0

Share this post


Link to post
Share on other sites

Thanks for your replies. I'm going to find out the results of the x-rays on monday and see where I go from there... I'll keep all this advice in mind the next time I go to the doctor.

0

Share this post


Link to post
Share on other sites

I get the same pain when I get glutened. My pain feels like it is in the ball joints of the hips and also in the area on my very lower back (almost at the tailbone) where the hips join to the spine. It will ache terribly, and I will feel very stiff and have great difficulty walking and climbing stairs. A heating pad helps a lot, and for me I take extra-strength Advil. It usually lasts 3-7 days and then goes away.

Nobody has been able to figure out what is causing it (I also had the X-rays, etc). The only person who even heard of this was my chiropractor who said he has read that people who have celiac disease often have a problem with pain in these hip joints. But that was all he knew.

If you get any information on what might be going on...please post the findings here...I'd be very interested in anything you learn.

Best of luck

Gabby

0

Share this post


Link to post
Share on other sites

I have terrible pain in my hips and outside of my legs, connecting to my glutes and lower back. My doctor says gluten will "attack" here, or other words that it does make those muscles sore. Mine will pop when I'm biking, probably because of muscle instability. They do not pop when I'm walking.

This past weekend I was in NYC, walking a lot with some running to catch trains. I felt like my body was going to collapse under me because it hurt so bad in my hips and legs. IT band troubles may also be slightly linked to autoimmune disease. This is a band that runs down your outside leg from your hig bone to your knee. I started having trouble with it when I was training for a hlf marathon. It's been almost a year since I've run and it sitll bothers me. IT band troubles often go hand in hand with piriformis syndrome, which can then lead to sciatica. You can look all of this up online to see if it sounds like you. Medical massage, pysical therapy and stretching help, but for me the pain always returns after being active more than 30min to an hour, depending on the intensity. And by being active I don't mean running - I mean just standing and walking. Pain while sitting for a long time is tell tale piriformis/sciatica.

0

Share this post


Link to post
Share on other sites

Do any of you have arthritis in your family? As arthritis is a big thing in my family I can't tell if the pain is worse when a glutening happens or not as my arthritis is so bad.

0

Share this post


Link to post
Share on other sites
I have managed to get glutened a few times, and most recently I have been having really bad awful pains in my hips. It hurts to move them out the side, like if I wanted to cross my legs, and when I'm driving or walking, they are cracking and popping like a box of rice=krispies that fell into a puddle of water. I'm a bit concerned because I have a very thin bone structure and I have not had anything done to check it out aside from the heel scan I had done about 5 years ago. However, I'm thinking that since my heel didn't hurt, it might not be a good test of my overall bone density, as it was just one part of my body. The pain usually subsides, but this last time I got sick, the pain is now sticking around, and I'm having a hard time walking. I went to my doctor yesterday and expressed my concern, however she said that at my age, I'd set a world record for osteoperosis, or even osteopenia. She sent me for x-rays to see if I had any stress fractures, or anything else, and poked and prodded me to make sure that I was not infected, or just stiff. My concern is this-

if the x-rays don't show anything bad, what else could it be?

I don't know where to go after this, and I'm afraid of what will happen if I can't find out what is wrong.

Hello, may I offer you some thoughts? I had horrendous pain and did some reading on arthritis. The deadly nightshade family of plants, that is potatos, tomatos, peppers, eggplant, and related plants cause pain in the joints and up and down the spine. I was having such pains along with my glutein intolerance and remembered other family members complaining of such pain in years past. I eliminated these items from my diet and voila! the pain is ceasing. Please try this. See if it works for you. I hope it will help you.

My best to you in the holiday season, Beadlady

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,767
    • Total Posts
      932,298
  • Member Statistics

    • Total Members
      64,238
    • Most Online
      3,093

    Newest Member
    CrystalZ
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks Barry. It's just up the road from me and it's a place I know very well. Some of my family were there last week for a gig, it's a frightening thought.  You are most definitely not alone and you've found a good site. There are a lot of accounts on here which helped me join the dots and work out what was happening with my own reaction to gluten. The move to a new job may not be coincidental btw, additional stress is linked to changes in celiac presentation. In women pregnancy can bring it about. It makes it easy to dismiss it as stress related. If you've found the answer now you can look forward to healing and hopefully some unexpected health dividends if it's affecting you in multiple ways. I stopped eating gluten and found near immediate relief from brain fog and a lightening of depression. What I didn't count on was the disappearance of chronic back pain that I'd had off an on for many years. There were a lot more examples like that as my time on the gluten-free diet progressed.  The rheumatoid pain in my hand went too. I put together an faq for the diagnostic side awhile back which may be of some additional help. or at least offer some good links to further reputable info:  
    • Microwave potatoes are filling. 6 minutes on 50% power then turn and another 6 minutes . For large sweet potatoes increase the to 8  each side. Canned gluten-free salmon, tuna etc with minute rice ready microwaveable. Libbys makes peas and green beans gluten-free naturals canned. Arrowhead Mills makes instant breakfast rice and shine as well as quinoa rice and shine, just add water and microwave. Instructions say stove top but 1/4 cup with 3/4 water microwave 4 minutes, with paper towel over top to catch water overflow. Eggs are great scrambled in microwave too. Stir up 2 eggs. Put in ceramic mug. Cover microwave 2 minutes.  Look for gluten free rice crackers too. Fresh fruit or gluten-free dried fruit. gluten-free nuts and seeds.  Survival tip, eggs need no refrigeration if you coat them with mineral oil when raw. Can last month's this way, Google it.
    • Saturday was the symptoms I have been feeling amplified big time:  Terrible nausea, head ache, dizziness, stomach gurgling, fatigue. And the constipation/strange BMs.  Wasn't prepared for that one.  I sort of took Sunday off and felt a bit better, now the dizziness is ramping up again.  I'm planning on taking a break once a week. Hopefully that's ok.  I do have an appointment with a GI for June 7th. There were no openings until mid July when I called and while I was speaking to the nurse someone must have cancelled and so I grabbed the early June appointment.  But this is all like deja vu. This is exactly how I would feel growing up and most of my life.   Headache, dizzy, nausea.  And the sores on the roof of my mouth!  Ugh. 
    • Also, can I buy the udi's and keep them in the fridge, or do they need to be frozen? 
    • Ennis_TX Thanks so much for your reply.  I am just not prepared to go through the medical procedures required to confirm I have it. I will just have to be satisfied in knowing that I feel better avoiding gluten. My wife recently began working with a gal that does have full blown, and did have the biopsy and everything, and now she is passing lots of advice to me through my wife. Your experiances do seem to be similar to mine. I have the mental stuff and the tingly fingers too! AS you know, there are just SO many side effects, it easy to confuse it with any number of other diseases/food intolerances. Thanks again and keep up the good work! 
  • Upcoming Events