• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Numbness caused by gluten
2 2

4 posts in this topic

I am sensitive even to airborne gluten, including in aerosols, kitchens where an oven is cooking gluten containing food, or has been recently, plaster dust in building materials.  I work, but suffer migraine when I have fully ingested gluten and numbness and muscle weakness from smells.  Does anyone else experience full-body numbness, or facial or extremities numbness?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yep, you should see my hands, I cook a lot and burn myself often and hardly notice it so they are quite damaged. I believe it is refereed to as peripheral neuropathy, it it present all the time with me but spikes in what I can feel when glutened. Best way to describe it is I have no surface feeling to my hands, I can feel deep tissue pressure, and if I touch something hot for a few seconds I can feel the heat when it reaches the deeper tissues. I have learned to compensate to some degree with this but my the speed at which I do stuff is compromised, and you can imagine some of the issues I get. My feet also have this to some degree, and the face sometimes gets a odd numbness twitch when full on glutened. These can be triggered by really small exposures and even inhaled flours going though a bakery at the store have done this along with the anxiety and brain fog. I have also had this happen with stuff where I have gotten residue from gluten on my hands from touching a door handle, knob etc. and not washed my hands before popping a mint or gum in my mouth. While I do not get the full on vomiting, and D with these forms of exposure the neurological issues to present them selves with these, and sometimes a but of gut issues.

0

Share this post


Link to post
Share on other sites

I get numbness in my hands, and sometimes when I've been glutened to the extreme I've experienced full-body numbness so that it's difficult to get out of bed. 

0

Share this post


Link to post
Share on other sites

Hi, yes.  I once sat next to someone who was eating a sausage roll in a house that was being plastered.  I couldn't feel anything from the waist down and had to check my legs were still there.  It's as though my brain is numbed.  The manufacturer of the plaster said it contained wheat gluten as a bonding agent.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
2 2

  • Forum Statistics

    • Total Topics
      107,080
    • Total Posts
      934,212
  • Member Statistics

    • Total Members
      64,682
    • Most Online
      3,093

    Newest Member
    aneta dabrowska
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • I had not heard that. What I had heard is that folic acid supplementation can mask B12 deficiency. Feenejya suggested getting tested for H Pylori, not a bad idea. What you're going through sounds awful, I'm so sorry you're going through this. Please stay in touch, and do take care because chronic diarrhea can present some complications of its own, as you know. Try to replenish fluids and electrolytes.
    • There is also a celiac center at UCLA - Dr Weiss
    • mnburis, I'm concerned about your symptoms, especially the diarrhea being so frequent.  I experienced pellagra after prolonged diarrhea.   The symptoms are diarrhea, dermatitis, dementia and death.  Pellagra is a deficiency of niacin (B 3).  With your vitamin D and B 12 already diagnosed as low, you're very likely to be low in all the other vitamins and minerals as well.  The eight B vitamins are water soluble and need to be replenished every day.  The B vitamins all work together.  All should be supplemented if one is low.  Large doses of B 12 by itself can cause folate deficiency anemia if you're low in folate (B 9) already.  Ask your doctor about other vitamin deficiencies.  The easy ones to test for are D and B12.  Tell your doctor how severe your diarrhea is.  Ask about pellagra.  Here's some more information. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html https://www.dermnetnz.org/topics/pellagra/ I really hope this helps.  
    • thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
    • I have had NO breath tests done. Just  blood, stool, colonoscopy and endoscopy. I'm sorry. I'm feeling so discouraged. I just know its going to be put down to IBS. And I personally feel  that IBS is a throw away diagnosis when no one wants to investigate further. 
  • Upcoming Events