• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

I am sensitive even to airborne gluten, including in aerosols, kitchens where an oven is cooking gluten containing food, or has been recently, plaster dust in building materials.  I work, but suffer migraine when I have fully ingested gluten and numbness and muscle weakness from smells.  Does anyone else experience full-body numbness, or facial or extremities numbness?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yep, you should see my hands, I cook a lot and burn myself often and hardly notice it so they are quite damaged. I believe it is refereed to as peripheral neuropathy, it it present all the time with me but spikes in what I can feel when glutened. Best way to describe it is I have no surface feeling to my hands, I can feel deep tissue pressure, and if I touch something hot for a few seconds I can feel the heat when it reaches the deeper tissues. I have learned to compensate to some degree with this but my the speed at which I do stuff is compromised, and you can imagine some of the issues I get. My feet also have this to some degree, and the face sometimes gets a odd numbness twitch when full on glutened. These can be triggered by really small exposures and even inhaled flours going though a bakery at the store have done this along with the anxiety and brain fog. I have also had this happen with stuff where I have gotten residue from gluten on my hands from touching a door handle, knob etc. and not washed my hands before popping a mint or gum in my mouth. While I do not get the full on vomiting, and D with these forms of exposure the neurological issues to present them selves with these, and sometimes a but of gut issues.

Share this post


Link to post
Share on other sites

I get numbness in my hands, and sometimes when I've been glutened to the extreme I've experienced full-body numbness so that it's difficult to get out of bed. 

Share this post


Link to post
Share on other sites

Hi, yes.  I once sat next to someone who was eating a sausage roll in a house that was being plastered.  I couldn't feel anything from the waist down and had to check my legs were still there.  It's as though my brain is numbed.  The manufacturer of the plaster said it contained wheat gluten as a bonding agent.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

2 2

  • Forum Statistics

    • Total Topics
      108,418
    • Total Posts
      941,165
  • Member Statistics

    • Total Members
      66,342
    • Most Online
      3,093

    Newest Member
    Rosalieblue
    Joined
  • Popular Now

  • Topics

  • Posts

    • In the US you can order blood tests online. If you want to go that route here is the info: The full celiac panel includes: TTG IGA
      TTG IGG
      DGP IGA
      DGP IGG
      EMA
      IGA You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive antibody test and costs $298.00 (not covered by insurance). The blood draw is done at your nearest Labcorp. You get your results in less than a week at walkinlab.com .   If you are going to buypass testing for some reason you can try a really basic diet for a couple of weeks. If you start to feel a little better you can slowly add on basic meats and veggies and see how you feel. For a basic diet I'm thinking chicken cooked with salt and chicken broth.   I'm not a doc, just my opinion.  
    • I have had Costa Coffee, but just plain.  What we miss are their gluten free chicken wraps and brownies!  We lived on those for breakfast before touring around.  Starbucks, bring those to the U.S.!  
    • Everyone here has been so nice and supportive to explain why it's so important to stay gluten free for your disease. I however am going to have to take the tough love way in hopes you will see the seriousness of this.  Going to the bathroom several times a day is just a minor symptom of your body destroying your ability to absorb nutrients, for which all organs and systems in your body require to work properly.  Have you seen the list of diseases this can lead to?  I chose to try to not get fibromyalgia, dementia, alzheimer's, colon cancer, type 1 diabetes, other organ failures, and on and on....these are not just diseases for old people, you can trigger them at any time if you keep pushing your body to it.  If you do not take care of it, this disease will eventually kill you, in a slow and painful and drawn out miserable way... worth it???
    • There are people convinced they react to water.... Use some common sense and read labels. Most Celiacs don't post on here and most probably live their lives believing when a product says it is gluten-free that it is gluten-free.   I have seen people convinced they are reacting to a gluten-free product but it turns out to be something else.  Don't let people scare you if it makes no sense.    
    • I buy both.  Never been glutened by them.   I do avoid the deli counter.  I choose those that are factory packaged.   
  • Upcoming Events