• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Oh My Tummy!
0

6 posts in this topic

I have had TWO Endoscopies with bisopys, and TWO rounds fo the blood test, no sign of celiac disease. So after 2 weeks of gluten-free'ing I had some gluten on Sunday. Couple little cake thingys at a chuch function, that was around 1130am or so. Felt fine rst of day, and then at dinner for some reason that I do not know remember (brain fog prbly LOL) I order a burger and did not tell them to keep the bun. Prbly been 4 years since i had a bun on my burgers, maybe once or twice in that period but I realy like burgers better with out the bun. That was around 6 or 630pm. Felt fine after that too... well for a while. Then at around 3am I woke up with a very bad stomache ache. Then around 445 when I get up and do my morning bible reading I could not focus at all, and had tons of gas/etc and stomache still hurting (even now at 7am).

BAH!!! :angry:

I guess that means either the four tests missed celiac disease, or it somehing thats normaly found with gluten like Dairy, eggs, etc. BAH. Why cant this be easy????? Maybe that test kit I ordered from Great Plains Labs will have a clue in it, I just hope I can get my doc to sign off on it so that its covered.

I have had the skin prick test for jsut about every food I eat and non of them should any re-action at all.

BAH!!! :angry::(

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Sorry to hear you're feeling crummy. :( I bet it's the gluten though. With your son's celiac it just seems so likely.

I just recently read a post by a lady on a Dutch celiac board where she'd had three rounds of tests (blood&endo), and only the last one detected damage. It had just not progressed far enough before then to be detectable. Kudos to her and her doctors to keep testing I must say. Although personally, I would have gone gluten-free long before that (as I did, lol).

hang in there,

Pauliina

0

Share this post


Link to post
Share on other sites

Vincent, Sorry to hear you're not feeling great.

So your tests are negative for celiac disease, however, you may have gluten intolerance without any detectable damage. I still think you should remain gluten free.

I had a mini cheesecake when I was intending to have a biopsy and I was fine BUT then I had 2 slices of bread and thought I was going to die. Took 10 days to fully recover. Specialist says the absolute worst thing thing we gluten sensitive can eat is bread.

I have read a lot of your posts and it definitely sounds like you have a problem with gluten, especially with your son's history. He got it from somewhere!

My 2 cents worth. Hope you feel better soon!

Yvonne

0

Share this post


Link to post
Share on other sites

Hi, Vincent--So sorry that your not feeling well. Bummer, I know. I have to say that your symptoms do sound like they're gluten related. And the family connection with your son. Maybe the new tests will uncover something--I hope so! At this point, I would listen to what your body is telling you (since the tests won't tell). I wish I had more to offer :)

0

Share this post


Link to post
Share on other sites

Sorry to hear you have been feeling bad...since you know you have a problem with it and see even some improvement on the diet what is keeping you from following it? You have nothing to lose and everything to gain by it. Even if it's just an intolerance and not celiac you definitely seem to have an issue...I hope you get feeling better here soon :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Sorry to hear you have been feeling bad...since you know you have a problem with it and see even some improvement on the diet what is keeping you from following it? You have nothing to lose and everything to gain by it. Even if it's just an intolerance and not celiac you definitely seem to have an issue...I hope you get feeling better here soon :)

Well if it was just me, probably would. But I ultimatly need to know if theres somthing else, for my son's sake. He seems to have inherited most of my umm "issues" so if theres some other intolernce here, I want to know to watch him for it too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,320
    • Total Posts
      935,469
  • Member Statistics

    • Total Members
      64,979
    • Most Online
      3,093

    Newest Member
    Elizabeth A. Haberle
    Joined
  • Popular Now

  • Topics

  • Posts

    • No anti-sm(lupus)? Yes, anti dsDNA is for SLE(lupus). No ENA panel,anti-RNP, anti-SS-A, anti-SS-B, anti histone, scl-70, etc? I'd ask for a referral, if you feel that there is something going on. I think that would be a logical step because of the positive ANA and lack of investigation. 1:640 is definitely positive. 
    • My MCH is always high too. Have some other oddities but doc always say labs are great as well. I dont think they ever really bother with the MCH. I'm also in testing and showed negative on the same ones you did. My IGA is fine though. As far as the other tests, maybe your girls GI can order or you could try your primary. 
    • Hi there!   I follow a low histamine diet that Cycling Lady brought to my attention a long time ago.  Citrus fruits and their juices are histamine releasing foods.  High histamine levels can cause hives just like in an allergic reaction.  Here's a helpful site:   https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ I don't drink orange juice because because of the hives and stomach upset I get from it, and also because I'm type two diabetic and my system can't handle all the sugars in it.  High glucose contributes to inflammation. I also avoid things with added flavors and scents because they often contain sulfur components like sulfites or sulfates.  Corn products are often processed with sulfuric acid.  Some Celiacs, like me, develop a sulfite sensitivity.  Here's a helpful site:  http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/ Garlic and onions are high in sulfites.  People who can't tolerate foods high in sulfites are often deficient in a trace mineral, molybdenum.  Molybdenum is also involved in blood production.  Here's another site:  http://www.whfoods.com/genpage.php?tname=nutrient&dbid=128 So, there's not always a simple answer.  I'm leary of processed foods because you don't really know how they're processed and what really goes into them.  I'd rather stick to fresh foods.  Hope this helps.
    • No, no, no!  Don't cut yourself off from your friends and social life because you feel you can't eat what everyone else is eating!  I can't think of a single bar or restaurant I've been to where I haven't found something to eat.  It may not always be what I would like to order/eat, but I'm not sitting without food while everyone else is eating!  If I'm going to a private party or someone's home where I'm concerned about food selection, I bring my own, tell the hostess and without making a big deal of it, eat what I brought.  Other times I eat a bit before I go, snack on the veggies or other obviously safe food,  and eat when I get home. If I go shopping for the day or somewhere that it's difficult to pick up a quick gluten-free snack, I put a piece of fruit or a gluten-free granola bar in my purse in case I get hungry.   It's only a big deal if you make it one.  I have been gluten-free for 7 years.  My attitude about food is now this:  eating out is strictly a social event. I always find something to order though at times it seems the gluten-free selections are kind of bland, but I won't go hungry.  If I want a good, tasty meal, I make it for myself at home.  There is nothing that I can't duplicate in my kitchen in a gluten-free version.   It's only been a couple of months for you so I'm hoping you will gradually see that this becomes such a way of life that you won't even give it a second thought.  Your meal prep will take less time as you grow accustomed to this--any new diet takes time to learn.  Good luck and hang in there!
  • Upcoming Events