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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Finding a Living parnter with a speical diet.
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This has probably been addressed many times. But from a personal view point I keep on looking for someone with a similar diet, who can put up with me and my broken self, and we can live together running my cooking side job, and supporting each other. Odd as this might sound I have a non existent understanding of love and more just want a living partner to help support me and I can help. Dating sites have been a miss for years, found a few people and made friends but no one that has this kind of diet or would be willing to stick to it. Dried all kinds of dating meet ups, dating apps, dating sites. even a gluten-free dedicated one to no avail..........

Anyone have any suggestions? Heck perhaps even start a dating or "Looking for room mate/living partner" thread. Just so annoying and drives you crazy being isolated by this diet and lifestyle, in a huge house, stuck talking to your self pacing for hours going slowly insane. Too broke to even go out and do most things or enjoy myself mostly due to medical, and food expenses....

I have aspergers, (think sheldon from big bang theory) Celiac, Ulcerative colitis, supposedly was previously diagnosed with ADHD, OCD, Bipolar, and a few other things but these all calmed down on a gluten-free diet. I have a whole list of allergies and intolerance (check my profile) . I work out daily, 5' 11'' and 128lbs   love watching anime, playing video games in the evening. And I have a obsession with power walking or biking 10-14miles a day. For fun I like going to anime conventions, theme park when I can, working with firearms, cooking, and cosplay.

YES I JUST TRIED A DATING PROFILE

Random rant done, hopefully something good comes of it.

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Good for you Ennis. I hope you find someone to appreciate your creativity when it comes to food preparation. I've been on my own for some time now. I don't know if I want to subject someone else to the paranoia of ordering food etc. It's lonely at times but I've gotten used to it a lot more now. :( 

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Good for you Ennis!  

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We have joked on here that we should get a job at a GI office.  That would give us access to poeple being diagnosed!  Lol   

I think that the best way to meet a life partner is to meet lots of people....or be really lucky.  But, when you meet lots of people, they  know lots of people for you to meet.  Being active in something you enjoy, helps you meet others doing that.  I have known several marriages that met in on-line forums for gaming or such things.  

Maybe you don't need someone to be as restrictive in thier diet as you are? My husband is not gluten-free but willing to eat gluten-free most of the time at home or maintain proper care with his gluteny stuff.  My grown ( mostly) boys eat gluten-free at home, because that is what the cook is making.  My one son has a friend with Celiac - when she wants to eat or cook with him,  they eat gluten-free.

Maybe gluten-free in your home is the only way for you.  But, for other foods, if you think you can't eat "x", does it matter if a roommate eats it? 

 

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6 hours ago, kareng said:

We have joked on here that we should get a job at a GI office.  That would give us access to poeple being diagnosed!  Lol   

I think that the best way to meet a life partner is to meet lots of people....or be really lucky.  But, when you meet lots of people, they  know lots of people for you to meet.  Being active in something you enjoy, helps you meet others doing that.  I have known several marriages that met in on-line forums for gaming or such things.  

Maybe you don't need someone to be as restrictive in thier diet as you are? My husband is not gluten-free but willing to eat gluten-free most of the time at home or maintain proper care with his gluteny stuff.  My grown ( mostly) boys eat gluten-free at home, because that is what the cook is making.  My one son has a friend with Celiac - when she wants to eat or cook with him,  they eat gluten-free.

Maybe gluten-free in your home is the only way for you.  But, for other foods, if you think you can't eat "x", does it matter if a roommate eats it? 

 

Yep pretty much I do not care if they eat several things I can not, it is the ones I am trace sensitive to. Gluten, Corn, Dairy, Peanuts are the ones that cc can make me sick. Few of the things I can not eat I love the flavor of, I just can not consume them as they are more of a intolerance. I love cooking with these and getting to try a bit of them before spitting it back out lol. Sounds odd but when you know you can not digest meats, or carbs (beans, rice, potatoes)  correctly but they otherwise do not bother you, or certain seasonings that irritate you, it sorta becomes a guilty pleasure to cut a bit off when cooking for someone set it a side and try just chewing it to taste it before spitting it out.

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    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
    • I don't know what you drank or where.... so here are a few thoughts. - sure, a dive bar might have dirty glasses and serve a cocktail in a beer glass?  But a nice reminder place, with a dishwasher, should be fine.  If it's a sketchy place, Stick to wine, then it's served in wine glasses that aren't used for beer or bottled ciders in the bottle.   - ciders on tap might, just a slight chance, have an issue.  Because of beer on tap, mixed up lines, etc. - you may have a problem with alcohol - you may have issues with The  high sugar content of the drink.  I know I have similar issues if I drink serveral ciders of extra sugary brands - are you positive it was a gluten-free drink?  Not this " redds Apple" pretending to be a cider - it's beer with apple flavor.  Or one of those " gluten removed " beers?  
    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
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