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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free, but is it Really?!?!
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9 posts in this topic

I just bought a big old box of trail mix packages from Sam's Club (first time shopping in there with the kids since diagnosis) it had GLUTEN FREE written all over the box, and it's all over each individual package, but when I got home and looked closer at the box it says manufactured on shared equipment with wheat!!!! How can they have the GLUTEN FREE labeling all over it when it's been on shared equipment? So is it safe to use? Or is it not? Should I donate it to church? Of course I gave a package to each of them in the car to eat on the way home :( So Frustrating! 

Also, what's everyone's opinions on Gluten Free Cheerios? I've read so much that says don't do it, but of course my husband told my daughter she could have some. 

Thanks!

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The cheerios are STILL making many celiacs sick. They separate the oats from the wheat contamination mechanically. This does not really work and has been causing hot spots where your playing Russian roulette on if you get a good box or a bad box......as to the same club, I would not trust them.     Here is a list of some safe foods, BTW if you want a cheerios like food go with Vans's Gluten free ones they have some strawberry and other flavored ones. I keep them on hand for a friend who sometimes stays over.

https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/

  Everything from entree, staples, breakfast, ramen, soups, condiments, chips, burritos, hot pocket knock offs, etc. I have complied a list of trusted companies, places to get goods, and ways to order them from stores.

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Thanks! I've been trying to find recent advice on the Cheerios, seems like everything I see is from 2015, not more recent. :( That's a huge bummer! 

Thanks for the suggestion on Van's I'll have to search for them.

 

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Hi :)

Just to add whenever I see this: 

9 hours ago, RaRaLorna said:

manufactured on shared equipment with wheat!

I (albeit sometimes reluctantly) pass on the product. They could just be covering their ass, but any warning that would impact on sales is only on that package for a reason. There's nearly always a safe acceptable alternative so why take the risk? 

 

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Just an FYI- Unless it says "Dedicated gluten-free facility" or you call on everything, the "made on/in/shred equipment" is all voluntary labeling.  So just because it doesn't say "made on" doesn't mean it isn't.  They will most likely say "we use industry standards for cleaning equipment between batches" in many cases. 

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Someone correct me if I'm wrong, but I believe companies can label foods "gluten free" as long as they have no gluten containing products in the ingredients.  "Gluten free" labeled foods can still be highly cross contaminated and even test above the 20 ppm standard.  I've started only purchasing foods labeled with the "certified gluten free" label as I believe they are tested as less than 10 ppm (once again, correct me if I'm wrong!) 

We think our daughter cannot tolerate oats even if gluten free, so Cheerios are definitely out for us.  We really did love the Van's products (crackers, bars, cereal), but most are made with oats.

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Posted (edited)

 T

12 minutes ago, CeliacMommaX2 said:

Someone correct me if I'm wrong, but I believe companies can label foods "gluten free" as long as they have no gluten containing products in the ingredients.  "Gluten free" labeled foods can still be highly cross contaminated and even test above the 20 ppm standard.  I've started only purchasing foods labeled with the "certified gluten free" label as I believe they are tested as less than 10 ppm (once again, correct me if I'm wrong!) 

We think our daughter cannot tolerate oats even if gluten free, so Cheerios are definitely out for us.  We really did love the Van's products (crackers, bars, cereal), but most are made with oats.

Ok....you said correct you....lol

i am assuming US.  It can be a bit different in different countries.

The US law does not require actual testing....but, your food must be <20 ppm.  So, most big companies that say " gluten-free" on the package are very sure of that fact.  It is  a legal nightmare for them if the food is tested and not <20 ppm.  What I mean is, if they are asked to prove it, they better be able to prove <20 ppm.

Various " certifying" agencies have different requirements for gluten-free.  What you should understand, is that they train a company ( could be anything from providing basic instructions to a short training course) and that isnit.  They do not come around and do random checks or require the company to send them samples.

Most of this " certified gluten-free" pertains to baked goods & noodles.  There are major companies that make entirely gluten-free products -Schar, Glutino, Udis, etc.  that does not mean that a can of tomato sauce or a block of cheddar, not labelled gluten-free are not safe,  

 

Edited by kareng
Spell check hates " Udis"
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5 minutes ago, kareng said:

 T

Ok....you said correct you....lol

i am assuming US.  It can be a bit different in different countries.

The US law does not require actual testing....but, your food must be <20 ppm.  So, most big companies that say " gluten-free" on the package are very sure of that fact.  It is  a legal nightmare for them if the food is tested and not <20 ppm.  What I mean is, if they are asked to prove it, they better be able to prove <20 ppm.

Various " certifying" agencies have different requirements for gluten-free.  What you should understand, is that they train a company ( could be anything from providing basic instructions to a short training course) and that isnit.  They do not come around and do random checks or require the company to send them samples.

Most of this " certified gluten-free" pertains to baked goods & noodles.  There are major companies that make entirely gluten-free products -Schar, Glutino, Udis, etc.  that does not mean that a can of tomato sauce or a block of cheddar, not labelled gluten-free are not safe,  

 

Thank you for the corrections!  I hope I didn't lead anyone wrong!  Sad, that after 2 years, I'm still not sure about all of the labeling!!!!

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On ‎4‎/‎17‎/‎2017 at 10:01 PM, CeliacMommaX2 said:

Thank you for the corrections!  I hope I didn't lead anyone wrong!  Sad, that after 2 years, I'm still not sure about all of the labeling!!!!

Companies get so sneaky with labeling.  I stick with the companies that are dedicated gluten free if I am buying processed foods.  Most will have a website with a section under Frequent Q&A's.  If they don't, email or call to get clarification as to how the item is processed.  I know that my family can't eat anything that has been made on a shared line and then cleaned.  Good Luck....   

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