• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

I have been covered under my husband's insurance for 38 years. He is now retired and his company went bankrupt and we are trying to find insurance and they will take him but not me since I have celiac. Has anyone else had this problem

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My personal opinion is that insurance is a rip-off. However, with all of the problems that celiacs have, it is necessary for the testing. I wish you the best of luck finding a company to cover you. If you have been diagnosed, and are gluten-free, shouldn't they have to cover you? I know they claim preexisting condition, but I thought they could only use that to say they will not pay for certain things. Maybe I am just ignorant about health insurance.

Share this post


Link to post
Share on other sites

The world doesn't take celiac seriously enough, in other words, no products get labeled, restaurants don't care, and friends and family think we're hypochondriacs..

but when it comes to insurance, they take it too seriously! A gluten-free celiac is not a health risk!

so frustrating...

Share this post


Link to post
Share on other sites

Tally, if you weren't diagnosed with a biopsy, then you don't OFFICIALLY have celiac disease. Just wanted to mention this in this discussion for completeness.

In my opinion, this is one good reason NOT to have a biopsy (although there are reason TO have one as well so it's not an easy call at all.)

Share this post


Link to post
Share on other sites

I was diagnosed with a biopsy. The only outward signs I have basically is anemia, and very little dermatitis. I had had diahrea for six months and lost a lot of weight, so I went to a gastrologist and he did a biopsy and diagnosed me. I went off flour, etc. and it cleared up within a few days. I went glueten free for nine months, then slowly put it back in my diet. I have had no problem except once in a great while I get diarhea for a day or two and I stay off it again, otherwise I am healthy as a horse. It just irritates me that I am well with it for probably 99% of the year, but since I was so called "branded" with the term celiac they lump me in with the uninsurable. I went again to another insurance company and asked them to check with their underwriters if they could insure me. I told them up front that I was diagnosed with it even though I have hardly any trouble with it. The underwriter came back on the phone and said I would not be accepted. When the agent asked why they said that their book said that celiacs have a greater tendency for lymphomas and that is why they would not take me. The only recourse is to go with state insurance which is $493.00 a month, which to me is a big chunk of change.

Share this post


Link to post
Share on other sites
Ads by Google:


Would it be possible to collect some reliable information about the fact that the lymphoma rate in Celiacs on a gluten-free diet is about the same for non-celiacs. It is only non-treated celiacs that is at higher risk. Maybe you could convince one company to change their mind. $493.00 a month is just too much to have to pay!

God bless,

Mariann

Share this post


Link to post
Share on other sites

Tally, If you have been biopsy-diagnosed with celiac disease, then YOU MUST STAY OFF GLUTEN FOR THE REST OF YOUR LIFE. It is NOT something you can eat, period! The diarrhea is because of the damage done to your intestines. Eating gluten causes the damage. It takes time to cause the level of damage required for diarrhea, which is why you only get it occasionally. When you go off gluten to clear up the diarrhea, your body heals, but when you add it back in, you destroy your body again. Your body will only heal so much, then the damage will become permanent. If this is the treatment you follow, no insurance company in the world will cover you. You put yourself in the extremely high risk category for lymphomas and other very expensive illnesses by eating the way you do. You can not add gluten back into your diet, ever!!

Share this post


Link to post
Share on other sites

I agree with Dessa, according to your story, you have added gluten back in your diet. If you have Celiac, you cannot do that! Your risk for lymphomas, and other serious automimmune diseases is exremely high if you are ignoring the strict regime of gluten free eating. Celiac is controlled through a 100% gluten-free diet for LIFE! IF you are not doing that, wether you FEEL different or not, it is not under control. Please reconsider your eating habits. This is very dangerous to ignore.

Share this post


Link to post
Share on other sites

Laura and Dessa are both right. I missed that fact when I was reading through the post yesterday. As long as you are not on the gluten-free diet, you are shortening your life expectancy. You are certainly increasing your risk for lymphoma, as well as an enormous array of other diseases. Please reconscider the diet. Even if you do not have symptoms you still need to be gluten-free. One of my children is asymptomatic and he is still on the diet. I have never given him the option of not doing it. In my opinion it is not a viable option for anyone who is Celiac, or even just gluten sensitive.

God bless,

Mariann

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,955
    • Total Posts
      943,654
  • Member Statistics

    • Total Members
      67,255
    • Most Online
      3,093

    Newest Member
    MarshallOBlount315@gmail.c
    Joined
  • Popular Now

  • Topics

  • Posts

    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
    • You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.   The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.     http://www.cureceliacdisease.org/faq/are-there-vitamins-created-specifically-for-nutrient-deficiencies-in-celiac-patients-2/  
  • Upcoming Events