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Should I Get 2nd Opinion? DH

RY1974

By RY1974
in Dermatitis Herpetiformis

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RY1974 Rookie
RY1974
Posted

Over the last 1.5 years I have had a rash that will not go away.  The rash is around the neck, hairline on the front of my head, the back of my scalp, elbows, knees, shins, parts of my ankle, and buttock.  The rash seem to get very itchy during the evening. 

I did have a skin biopsy completed and blood tests last year and they came back negative.   I was on oral steroids when I had the test would this possible skew the results?

Also its seems the body parts that are exposed to the sun seem to have the rash.

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes steroids will give a false negative on the DH tests. In addition many doctors will biopsy the lesions when they need to look for antibodies in the intact skin next to active lesions. There are also some times when folks with DH will have negative blood work. Don't know why. After all celiac related testing is done do give the diet a good strict try. At the top of the Coping section is the 'Newbie 101' thread that has a lot of info for you on what you need to do when you are either diagnosed or giving the gluten free diet a try.

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