Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Symptoms After Going Gluten-Free?


crb1998

Recommended Posts

crb1998 Newbie

Hi everybody! I've been searching for answers to some of these things all morning but can't find much.

I was diagnosed with celiac through a biopsy from my last routine colonoscopy (I've also had Crohn's disease for 12 years) and I've been eating gluten free for about 2 or 3 weeks. I've been having some odd symptoms I didn't have before going gluten free (I didn't have any symptoms before at all actually) such as:

- extreme fatigue

- extreme hunger

- anal discharge/itching

- constipation

- stomach pain

Im just wondering if these are normal at first as my body readjusts? Just freaked out that I'm cross-contaminating myself somehow but I've been extremely careful. The anal discharge and itching is what made me finally post here, it's very uncomfortable. Please tell me if any of you have had a similar experience when first changing your diet.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  

I can not say for sure, but the symptoms you listed can be attributed to celiac disease.  There is a period of adjustment and a very steep learning curve to the gluten-free diet.  I would suggest avoiding processed foods as much as possible until you see improvement or become confident.  Read the Newbie 101 thread pinned at the top of the "Coping" section of the forum.  It contains some valuable tips.  With both Crohn's and celiac disease, you probably have developed some food intolerances too.  Best to keep a food and symptom diary.  Avoid eating out, cut out even certified gluten-free oats too.  Eat soft well-cooked foods like stew or soup.  

Why the change when you were feeling okay prior?  Celiac disease is like a chameleon -- always changing.   My symptoms after a glutening have never been identical.  I just had anemia when I was diagnosed, but I knew of  a few food intolerances and was fine if I avoided them (e.g. Milk).  Yet later, I developed all the classic gut issues when exposed to gluten.  Go figure!

We are here to help each other.  No question is to silly to ask!  

Link to comment
Share on other sites
Jmg Mentor
2 hours ago, crb1998 said:

Im just wondering if these are normal at first as my body readjusts?

A lot of people go through a rough first few weeks on the diet. There could be lots of reasons, from the celiac damage or a 'withdrawal' from gluten itself: Open Original Shared Link (ignore the stuff about 'tapering' as this is not aimed at celiac patients)

It shouldn't last however and hopefully you'll soon be feeling better. 

All the best :)

 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,095
    • Most Online (within 30 mins)
      7,748

    Marazoo
    Newest Member
    Marazoo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...