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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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PJP

Hello new here - need advice

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Hello,

I went to my GP yesterday about my abdominal pains that I have been having since Wednesday (still going on now). I have had issues with my adomen like this before and other symptoms and from what the doctor said and from what I've gathered its most likely celiac.

She told me that for my blood tests to work I'd need to eat gluten for two weeks and I took this advice and I also need an ultrasound. But here I after eating pizza with my pains getting worse and buscopan barley helping and struggling to type because I'm in so much pain. Sorry if it makes no sense.  

Im thinking of goung to ae tomorrow as its so bad. Any advice would br sppricatef. Im sorry this couldn't be better. Thank you. 

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2 hours ago, PJP said:

I went to my GP yesterday about my abdominal pains that I have been having since Wednesday (still going on now). I have had issues with my adomen like this before and other symptoms and from what the doctor said and from what I've gathered its most likely celiac.

She told me that for my blood tests to work I'd need to eat gluten for two weeks and I took this advice and I also need an ultrasound. But here I after eating pizza with my pains getting worse and buscopan barley helping and struggling to type because I'm in so much pain.  

Hello and welcome :)

Were you previously gluten free? For celiac blood tests to work you need to have been eating gluten for several weeks beforehand. Two weeks may not be enough for an accurate result :( It may be, people differ, but if the test is negative be aware it could be due to such a short time on gluten. 

A gluten challenge can be rough, although I found in my case that it got easier to endure as it went on (note I tested negative). If your pain is intense do go to A&E to ensure that there's not another factor at work.  

There's some info on testing here

 

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Thank you :) I'm making my way up to A&E in a bit. I went gluten free for 6 days and that was 3 days ago. I'm not sure if thats enough? Ive only ever been gluten free for those 6 days.  

Edited by PJP

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I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. 

As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. 

did you go gluten free before or after the stomach pains?

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6 hours ago, Jmg said:

I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. 

As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. 

did you go gluten free before or after the stomach pains?

Ahh I see. After. I went to A&E and they said to go for blood tests on Tues. I've been given tablets for acid reflux as well. 

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Ahh I see. After. I went to A&E and they said to go for blood tests on Tues. I've been given tablets for acid reflux as well

I hope you're feeling better now.

When you get the test results you can post them here if you'd like some input from the members. They were really helpful with me when I was going through the diagnostic process :)

Once you've completed testing you may want to go gluten free regardless of the results as it seems as if your body is reacting strongly to it, celiac or not...

 

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Thank you so much and I will do. Tbh as of now things aren't much better, going for bloods tomorrow. Also I will post about my results :)

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Thank you so much and I will do. Tbh as of now things aren't much better, going for bloods tomorrow. Also I will post about my results :)

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Sounds good. Try not to worry, lots of people have been where you are and come through it feeling better than they thought possible. :)

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On the gluten challenge you do not have to eat a ton of gluten, you cant eat mostly gluten-free, and just have half a slice of bread or a few crackers before bed and try to sleep off the worst of it. You just have to consume it daily to keep the antibodies up for the testing.

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10 hours ago, Ennis_TX said:

On the gluten challenge you do not have to eat a ton of gluten, you cant eat mostly gluten-free, and just have half a slice of bread or a few crackers before bed and try to sleep off the worst of it. You just have to consume it daily to keep the antibodies up for the testing.

I wonder if you meant "you can eat mostly gluten-free, and just have half a slice..."

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