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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Hatbox121

Should I request a panel for my kid?

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So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 

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6 minutes ago, Hatbox121 said:

So I'm waiting biopsy results, no blood panel for me yet(will call my GI tomorrow). I'm wondering if I should go ahead and request a panel for my daughter. Backstory on her is- has multiple health issues including JIA (autoimmune arthritis for kids) now in remission. She has been to the pedi numerous times for stomach pain, nausea, vomiting, etc. They give her GERD meds and have checked h.pylori via blood test(negative). No other testing. We are always told it's just reflux or it's just anxiety or whatever. She has a history of weight gain and is technically overweight, but not much. Her eating habits never changed. She has a hump on her back (was told poor posture and weight gain caused it. No testing except thyroid which was fine). She vomits after meals at times(for example a couple of weeks ago we ate out at a restaurant and she had to stop mid meal to go vomit. Not the first time). Should I wait on my biopsy to come back or request a panel now? I've been pushing for a GI referall but keep getting denied. 

Request the panel now. It'll probably take some time to get it anyways. Sounds like the symptoms match up.

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

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You could wait until your biopsy results come in.  It is only a few more days.  But in any case, Put that request in writing.  List the symptoms.  Letter or patient-portal email,  it works every time for me.  I nicely ask and tell my doctor my concerns.  It is hard for them to disregard a letter.  It subjects them to a potential lawsuit.  

You child's regular doctor can order the celiac blood panel too.  

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6 hours ago, Victoria1234 said:

 

how did your doc skip the less expensive blood panel on you and go straight to the biopsy?

I was already having a colonoscopy for other reasons. Had polyps before so was on a 5 yr repeat. Dr saw something in terminal ileum and took biopsies. 

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Thanks. I'll call on Monday. Dr said 2 weeks before results of mine, so maybe this Friday but might be next Monday before I hear any results. Going to try her pedi first, but if denied will try my GI. 

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