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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sensitivity level means...??
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pschwab    11

My son was diagnosed with celiac a little over a year ago. Our whole house is gluten free, and we rarely go out to eat. He is in preschool and they are very careful with him. As best I can tell he has not been glutened since he went gluten free. My question is about sensitivity levels. I read this forum often and sometimes see comments like, "I'm very sensitive so what affects me might not trigger others". If he's not showing outward signs of being glutened, I'm wondering if he's doing an excellent job staying away from cross contamination or if he is being cross contaminated and we don't know. Also if he's not showing signs of being glutened, could he still be doing unknown damage to his intestines? We are super careful with him but he's three and puts toys in his mouth that I fear neighborhood kids might have touched with "gluten hands." We require anyone entering the house to wash immediately but with three siblings there are lots of kids in and out daily. When he was diagnosed his ttg levels were 300, 6 months later they were 71, a year later they were 26. He will be tested again next February. I'm just anxious since he's in such critical growing years. Any insight would be great. Thanks!

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    • Yeah sounds about normal for a line up of symptoms, You have to keep eating the gluten for the blood testing for 12 weeks prior and 2 weeks for hte following endoscope and biopsy. You can cut down to only eating 1/2 slice of bread a day or a few handfuls of wheat thins. Many of us have issues with nutrient absorption and common problem foods due to damaged intestines. Magnesium it is different from person to person what form works best but either Natural Vitality Calm (can irritate the gut, it needs to be started at 1/4 tsp 2x daily and slowly raised to the full dose over week or 2) if this is too irritable I suggest Doctors Best Magnesium both are powdered and can be blended with a drink. B-vitamins I suggest a blend like Liquid Health Stress & Energy in combination with Liquid Health Nurolgoical Support 1tbsp each 3 times a day, again this is blended with a drink, is liquid form making it easy for your body to absorb. Vitamin D is also available from Liquid Health be careful with dosing on this as too much can trigger vomiting and it stays in your body so not everyone needs it daily. Painful hours with more gluten yeah. slight residue make me sick, numbness in my extremity, brain fog, bit of Mr Hyde mood swings and alternating D and C. Full on gluten....happened in June of 2016 when I last ate out.....I lost motor control (I have gluten ataxia in addition), and was on the floor in extreme pain vomiting violently for hours so hard I was puking blood. I had a friend who thought I had died kept checking my pulse my heart rate monitor averaged my BPM in the 30s for this, and I turned completely white. Later that night I was able to make it the toilet for the back half of the purge and the rest of the week was fogged blur...... Other foods to avoid, dairy as the enzymes to break it down are produced by the tips of the villi which are damaged first by this disease. Oats are a common cross contaminated foods and some celiacs react to them regardless of gluten in them the same way so we suggest removing these foods from your diet for a while til you heal a bit then trying them again if you wish. Please look at the following information links as your new to this BUT STAY ON gluten til your testing is done, if you test negative then you might still have NCGI and might want to try gluten free anyway. SO you can start cleaning out and getting ready if you wish for the change over. https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/
    • Saw this and was debating it so I can try getting nuts from Nuts.com and a few other places and test them for CC of peanuts....it has been just try them and see if they make me sick. Yeah seems peanut CC happens a lot in companies that sell them in combination with other nuts.... As it is right now I can order, Almonds from a dedicated almond only producer, same with walnuts and pistachios but they can get EXPENSIVE. Recently had luck with some macadamia nuts but they are SO iffy that they scare me.
      Honestly peanuts are not LIFE threatening to me nor seem to have long term effects after the purge. so right now shelling out that kind of cash on the tester is out of the question.
    • Nima is coming out with a sensor for those with peanut allergies this fall!  Yay!  My Grandson has a bad allergy to peanuts (epi pens kind) and this sensor will help to make a huge difference to my daughter's family eating out dilemma.
    • Thank you for all this good information.  My first test (2011) contained results for DGP IgG, which was negative and results for DGP IgA, which was highly positive (because I was eating gluten for the challenge testing).  This particular test was not done in my most recent testing.   I have found a lab close to where I live that does a full panel and allows walk ins.  This has been my experience as well; the mainstream doctors are not very educated on Celiac disease and thus very short on answers.   Many doctors use the principle of Occam's razor to diagnose.   
    • Most doctors only care about the money, you to find one that cares and is knowledgeable. Compassion...yeah if your a normmy, do not have any AI issues, or obviously do not care enough to take care of your own body (various things form my judgement), then your at the bottom of my list. I will prioritize showing help to those who have helped me, those who I can relate to, and those who seem to care. I have been that kicked sick puppy on the side of the road to know most of these "Humans" are not worth my personal time and effort. This might sound heatless but in all honestly if I can not relate, or directly connect you to my life I should not worry or drive myself into a corner trying to help you when I am struggling myself and would and have not been helped.   Call it heartless, I am just setting priority for those I CAN best help and serve over those who I can't effectively with a side equation of who has helped me or would directly effect my daily life.    Maybe doctors use a similar thought process involving money, billing, what pills they can give you, and their area of expertise?
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