Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

High cholesterol/statins


icelandgirl

Recommended Posts

icelandgirl Proficient

I just want to say thank you so much to each of you that has responded...so helpful to have someone understand!  I love this board...so many wonderful people willing to help each other! ??

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 51
  • Created
  • Last Reply
icelandgirl Proficient
48 minutes ago, cyclinglady said:

Researchers think that a decline in female hormones may impact your risk for  heart disease.  It basically puts us at the same risk as men.  Lipid levels are known to increase.  Your shortening periods may be due to natural decline in hormones.  If your symptoms are severe, you may consider Hormone Replacement Therapy.  Discuss this with your GYN.  But seriously, no worries.  All women  go through menopause.  So, you are not alone!  

I'm definitely not worried about it, but it is annoying!  My mom went through this for years!  Thanks for the encouragement ?

Link to comment
Share on other sites
icelandgirl Proficient
17 minutes ago, knitty kitty said:

Yes, supplementing really helped my body get back to "normal" functioning... I had been terribly nutrient deficient prior to Celiac diagnosis, and the doctors just kept throwing more and more medicine at me to alleviate the deficiency symptoms and cascade of deficiency related health problems, but didn't try to discover the cause or the reason my body was "malfunctioning".  I've become disillusioned with the "take a pill" philosophy so prevalent now.  

You'll feel much better if you get your Vitamin D levels up over seventy.  There was a study done on people living on tropical islands where people get plenty of sunshine to make vitamin D.  They found the islanders' vitamin D levels were between 80 and 110.  Researchers are beginning to take a second look at RDA's (recommended daily allowances) of many vitamins and finding RDA's may be set too low.  

This study found:

Open Original Shared Link

"Large doses of vitamin B6 may reduce the risk of kidney stone formation in women."

I take evening primrose oil to help with those menopausal symptoms.  It's a source of more healthy fats.  And because vitamin D works as a hormone, you may feel better when your vitamin D level gets higher.  

Hope this helps.

Kitty

 

 

Thanks Kitty!  

How much vitamin D do you take?  I'm at 4000 ius a day.  I can tell an increase in energy since upping from 2000.  I'm getting my levels checked again in 2 weeks...I'm fairly sure that there will be an increase.

Link to comment
Share on other sites
knitty kitty Grand Master
1 hour ago, icelandgirl said:

Thanks Kitty!  

How much vitamin D do you take?  I'm at 4000 ius a day.  I can tell an increase in energy since upping from 2000.  I'm getting my levels checked again in 2 weeks...I'm fairly sure that there will be an increase.

I take at least 5000 IUs a day.  If I get a cold or glutened, I take double.  No, it won't hurt to take that much, but I'm not a doctor, I just researched a great deal.  

After finding me deficient, my doctor prescribed D2, the synthetic form of vitamin D, but I just didn't like it.  So, after some researching, I learned D3, cholecalciferol, is the natural form found in nature which is more bioavailable to the body.  I found a 2000 iu non-fishy supplement (because I was having allergic reactions to fish), and found I couldn't get enough.  I ate them like candy.  It felt really strange to crave a vitamin, I will admit, and it rather freaked me out, so I did more research.  I found that one's body needs to have a certain amount stored in body fat and the liver and other organs like the brain before the body can really get back to functioning properly.  My blood level was six at this point, so I decided to listen to my body and ate several vitamin D supplements at every meal.  I bought 10,000 iu capsules and tapered off over the following months as the voracious craving subsided.  My depression lifted, my skin cleared, I have more energy, I lost excess weight, my fatty liver is no longer fatty, no more cholesterol worries.  My last vitamin d level was 84.  

I had also started supplementing other vitamins and minerals, especially the B complex vitamins, several months after I started taking the vitamin D, so my overall health improved.  But I credit vitamin D with making the biggest difference.

Celiac disease causes malabsorption of fats. Vitamins A, D, E, and K are fat soluble vitamins.  If you're deficient in Vitamin D, you may also be deficient in other fat soluble vitamins.  It's a good idea to get them checked, too. I was also deficient in Vitamin A and experienced eye problems because of it.   And don't neglect the water soluble vitamins, the B's and vitamin C, and minerals.  Your body needs all of these nutrients to function properly.  I found so many health problems resolved for me with proper nutrition and supplementation when when warranted.  

Hope this helps.

K

 

 

Link to comment
Share on other sites
Gemini Experienced
6 hours ago, plumbago said:

We are all different, true. But according to Dr Terry Wahls,

“When you look at chronic disease on a cellular and molecular level, we see it’s all the same disease – too much oxidative stress, inflammation, and nutrient deficiencies, toxins that are present. We see it in mental health, neurodegeneration, autoimmunity. It’s remarkably similar. Treat at the cellular level.”

She also says leaky gut happens largely because of our processed grain-based diets.

...and:

“Epigenetics is the science of understanding how the environment determines which genes are active or turned on and which are turned off. It’s thought to hold a lot of answers to why we develop chronic diseases like cancer and diseases of aging.”

(I read Taubes for the truth, Dr Wahls for understanding, and Michael Pollen to bring it all together!)

 

How true this is!  I always tell people that disease does not happen without inflammation and then I get the weird looks.  At the root of everything is inflammation and that is where people have to concentrate their effort on getting healthier........drive down the inflammation and that can happen by dietary change.

My cousin is a triathlete at the age of 61.  She does full Iron Man competitions and is one of the fittest people I know.  Her cholesterol?  Usually around 240 for a total.  She will not take statins but I doubt she will ever have plaque.  Everyone is so different in what a healthy cholesterol is for them but try telling that to most MD's.

Link to comment
Share on other sites
Posterboy Mentor
4 hours ago, icelandgirl said:

I just want to say thank you so much to each of you that has responded...so helpful to have someone understand!  I love this board...so many wonderful people willing to help each other! ??

Icelandgirl,

They (doctor's) will definitely bang you over the head with their big (pharma) stick  when they cann.

this movie can out before me but the movie title is appropriate.

"dr. strangelove or how i learned to stop worrying and love the bomb "cholesterol".

since I am a prediabetic (borderline) I tried their "pharma" solution of statins.

I immediately had memory problems in the first couple months of taking it (statins) and developed low level muscle pain (similar to fibromyaglia) that they obviously denied any connection too!

My fatty liver turned into prediabetes then diabetes before I stopped the  statins.

I have never looked back.

My links were about Vitamin K.  Until I found Vitamin K I struggled with cholesterol levels within in normal range.

They are  still higher than they want for a diabetic but are within normal range for the "healthy indvidiual"

which are (much) lower for diabetics . . . go figure.

but I Have learned to love cholesterol because I learned they/it is the basis for our hormones and 70% of free cholesterol is needed by the body to function properly and they (pharma/statins) turn off 100% of your body's ability to produce it.

And I would have to take expensive c0q10 if I was taking a statin (which it blocks for) and coq10 is important for a healthy heart.

Not to mention kidney issues' they (statins) can cause and oh by the way "statins are so safe" that you don't need routine blood montoring anymore???

If they could hurt your kidney's 10 years ago what's changed?

***** sorry for the rant but you need to know what you are getting into if they ( big pharma) is clubbing you over the head with you need "our safe statins" pitch.

My cholesterol went down with Vitamin K.  Niacin in high doses can help but be very aware the first week will include intense itching/hives unless you take it at night to minimize flushing.

I found the itching too intense and stopped the Niacin regimen before the itching/flushing could stop.

But if you titrate/step it up 100mg at a time any flushing you have will be minimal if taken with food.

everybody on this board has give you good advice.

Ratio's (HDL/LDL) are more important than the total number of either/each one.

but I wont' worry too much and learn to love your numbers! and don't let them (big pharma) worry you to death!   I find like knitty kitty find your true deficiency (vitamin d, e, k, a,) etc. is much more important!

posterboy by the grace of God,

Link to comment
Share on other sites
RMJ Mentor

To support what Gemini said about inflammation, a brand new study showing a relationship between inflammation and heart disease.  

Open Original Shared Link

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plumbago Experienced
9 hours ago, Posterboy said:

Ratio's (HDL/LDL) are more important than the total number of either/each one.

The triglyceride/HDL cholesterol ratio is a good one to look for. According to Dr Wahls, it should be less than 3, and if greater than three, it may indicate insulin resistance. She notes that this ratio is less predictive in people of African descent.

Link to comment
Share on other sites
icelandgirl Proficient

I found a calculator online that does the ratios and interprets them.  Mine were all ideal.   That's got to mean something!

Blood cholesterol

Total cholesterol 201mg/dL

HDL  69mg/dL

LDL 116mg/dL

Triglycerides 80mg/dL

Cholesterol ratios

Cholesterol/HDL ratio 2.913

Tryglicerides/HDL ratio 1.1594

LDL/HDL ratio 1.681

Link to comment
Share on other sites
Gemini Experienced
7 hours ago, icelandgirl said:

I found a calculator online that does the ratios and interprets them.  Mine were all ideal.   That's got to mean something!

Blood cholesterol

Total cholesterol 201mg/dL

HDL  69mg/dL

LDL 116mg/dL

Triglycerides 80mg/dL

Cholesterol ratios

Cholesterol/HDL ratio 2.913

Tryglicerides/HDL ratio 1.1594

LDL/HDL ratio 1.681

Make sure you take these calculations to your appointment!  ;)

Funny enough.........your numbers are very close to mine, Icelandgirl!  My HDL is a little higher and my triglycerides are a little lower but the total is the exact same!  OMG.........does this mean I am dying of high cholesterol?????????    :o  :P

Link to comment
Share on other sites
icelandgirl Proficient
14 hours ago, Gemini said:

Make sure you take these calculations to your appointment!  ;)

Funny enough.........your numbers are very close to mine, Icelandgirl!  My HDL is a little higher and my triglycerides are a little lower but the total is the exact same!  OMG.........does this mean I am dying of high cholesterol?????????    :o  :P

I will absolutely be taking these!

Having numbers close to yours makes me feel way better!  You are my celiac inspiration! ?

Link to comment
Share on other sites
Gemini Experienced
2 hours ago, icelandgirl said:

I will absolutely be taking these!

Having numbers close to yours makes me feel way better!  You are my celiac inspiration! ?

Thank you, icelandgirl....you are sweet!  :)  I will be interested to hear what he has to say because, after all, our numbers are very similar!  My cholesterol numbers were always way too low and it took me 10 years of being gluten free before they went up to normal. I figured that was a good thing because it meant I am finally absorbing fats like a normal person without Celiac.  I hope this doctor doesn't rain on our parade.......<_<

Link to comment
Share on other sites
  • 5 weeks later...
icelandgirl Proficient

For anyone still following...an update...

It's been a week since I saw my Dr and it has taken this long to write, because I find it depressing. ?

So...my right carotid is clear, but the left has 20% buildup.  Both have normal blood flow.  My Dr now wants me to get my ldl below 70!  I stared at him and quickly said, "I don't want to go on a statin."  He stared back and said, "I didn't say anything about medication."  He handed me a sheet with 10 lifestyle changes and I go back in 6 weeks to see if I've managed to lower it over 40 points.

It's crazy right?  I'm not overweight, my BP is perfect, never smoked, eat healthy, exercise.

So, I'm working on it.  I replaced butter with a cholesterol helping margarine and my half n half with a coconut creamer and today have so far had non stop D!  

Pity party is over.  I'm just going to continue on trying and see what happens.

If anyone has any experience with this or words of wisdom, feel free to share. ?

Link to comment
Share on other sites
TexasJen Collaborator

Hi Iceland girl-

I'm sorry this situation is so depressing right now!  Cholesterol is a complicated issue. Remember the reason doctors want to treat cholesterol is that high cholesterol has been associated with heart disease and strokes.  Of course, so have a lot of other things like genetics, weight, smoking, etc.  Because these are the #1 and 3 leading causes of death in the US, doctors want to reduce those numbers and delay a heart attack so that your quality of life is better.

I don't know if your doctor is using evidenced based medicine or not, but this is what the American College of Cardiologists recommends right now on how to decide who takes a statin.

Open Original Shared Link

If your risk is >10%, take a statin. If it's less than 7.5%, don't take a statin. If it's 7.5-10%, think about statins.  There are some other things that can be considered. It's not a perfectly simple formula. For example, if your risk is really low, but all 3 of your brothers (for example) had heart attacks in their 40s, you might reconsider etc

Statins do reduce your chance of heart attacks and strokes really well. They are good medications. They do have side effects - like every medication. So, you only want to take a medication when the risks are outweighed by the benefits.  That's why the calculator is helpful.

Hope that helps.

 

Link to comment
Share on other sites
icelandgirl Proficient

Hi Jen,

Thanks so much for your response!  Are you talking about the 10 year risk?  If so, mine was .4%.  So, that's good! I have no siblings and have no knowledge of my father or his family history as he took off before I turned 1.  My mom's family has high cholesterol, but not usually this early.  

Thanks again!

Link to comment
Share on other sites
Ennis-TX Grand Master

Yeah drop butter and margarine, drop dairy also. Nutiva Makes a butter flavored coconut oil I use on my grain free toast, in baked goods, and sometimes to saute something.
I am actually in the process of doing various research and pulling a bunch of info on different nut and seeds in both whole and protein form. I am finding alot of them have a high reputation for lowering bad cholesterol and raising good. Same with many alternative protein source from vegan sources. I myself am supposedly genetically predisposed to bad cholesterol. I found in addition to all these foods I also supplement with pectin mixed up into a pudding that brought my numbers into check.
Do research on Whole Pumpkin Seeds, Whole Hemp Seeds (GERBS is the only gluten-free source), Sacha Inchi Seeds, Almonds, etc for regulating cholesterol.  Gerbs Allergen Friendly Foods has great selection of whole pumpkin seeds for snacking (whole with shell provides fiber), the hemp seeds from them, I have a recipe to make vegan parmasan out of them, you can even make great pesto with them great in salads. Look at using konjac noodles, and konjac rice in recipes the fiber and bulking abilities of the konjac root can help also, Miracle Noodles makes these.
 

Link to comment
Share on other sites
icelandgirl Proficient
1 hour ago, Ennis_TX said:

Yeah drop butter and margarine, drop dairy also. Nutiva Makes a butter flavored coconut oil I use on my grain free toast, in baked goods, and sometimes to saute something.
I am actually in the process of doing various research and pulling a bunch of info on different nut and seeds in both whole and protein form. I am finding alot of them have a high reputation for lowering bad cholesterol and raising good. Same with many alternative protein source from vegan sources. I myself am supposedly genetically predisposed to bad cholesterol. I found in addition to all these foods I also supplement with pectin mixed up into a pudding that brought my numbers into check.
Do research on Whole Pumpkin Seeds, Whole Hemp Seeds (GERBS is the only gluten-free source), Sacha Inchi Seeds, Almonds, etc for regulating cholesterol.  Gerbs Allergen Friendly Foods has great selection of whole pumpkin seeds for snacking (whole with shell provides fiber), the hemp seeds from them, I have a recipe to make vegan parmasan out of them, you can even make great pesto with them great in salads. Look at using konjac noodles, and konjac rice in recipes the fiber and bulking abilities of the konjac root can help also, Miracle Noodles makes these.
 

Thanks so much Ennis!

A couple of struggles for me...I have calcium oxalate kidney stones and have to limit high oxalate foods, like nuts ?.  I have to try to get in dietary calcium to offset oxalates and that is hard without dairy.  Calcium supplements are a no as they cause kidney stones.

Link to comment
Share on other sites
Ennis-TX Grand Master
2 hours ago, icelandgirl said:

Thanks so much Ennis!

A couple of struggles for me...I have calcium oxalate kidney stones and have to limit high oxalate foods, like nuts ?.  I have to try to get in dietary calcium to offset oxalates and that is hard without dairy.  Calcium supplements are a no as they cause kidney stones.

LUCKY, I knew I found something relevant for someone when I saw that info. Here is the entry on pumpkin seeds form that protein entry.

Pumpkin
Are rich in Magnesium, zinc, Iron, copper, b-vitamins along with the vitamins K and E. They are also a great source of various amino acids, and are alkaline forming so they help balance diets high in acidic foods and to maintain a balance of you bodies PH levels.
The Antioxidant levels in pumpkin seeds have also been shown to improve blood sugar regulation. Whole seeds have the added bonus of dietary fiber to lower insulin spikes, and promote regularity.
Pumpkin seeds and the powder from pumpkin seeds have relatively high amounts of the amino acid tryptophan. Tryptophan is the amino acid the body uses to make the feel-good and relaxation neurotransmitter serotonin and niacin. 
Pumpkin seeds also contain high amounts of zinc, which can help the brain convert tryptophan into serotonin. Zinc is also a natural protector against osteoporosis.
According to various studies, pumpkin seed prevents calcium oxalate kidney stone formation, and reduced inflammation for arthritis without the side effects of anti-inflammatory drugs.
Pumpkin seeds contain phytosterols, compounds that that have been shown to reduce levels of LDL cholesterol
Pumpkin seed oil is rich in natural phytoestrogens and studies suggest it may lead to a significant increase in good "HDL" cholesterol along with decreases in blood pressure, hot flashes, headaches, joint pains and other menopausal symptoms in postmenopausal women.
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link

Link to comment
Share on other sites
Posterboy Mentor
On 9/3/2017 at 3:24 PM, icelandgirl said:

I just want to say thank you so much to each of you that has responded...so helpful to have someone understand!  I love this board...so many wonderful people willing to help each other! ??

Icelandgirl,

I think I mentioned this before but Vitamin K really helped my cholesterol.

I also had a friend who really swore by high dose Vitamin E but it didn't seem to help me.

Raw Almonds and Sesame seeds are a good source of Vitamin E.

Here is the Japanese research on Vitamin K.

People who took K2 had excellent results at 6 months.

Open Original Shared Link

As if you are having trouble with Kidney stones you might try taking some Boron. 

Open Original Shared Link

here is the algaecal site summary on some of the possible boron benefits.

Open Original Shared Link

And load up on Magnesium (3/day with meals) as Magnesium Citrate and/or Magnesium Glycinate preferably if cost is not an issue for you (glycinate can be more expensive) but doesn't have diarrhea issue Citrate can cause in higher doses.

Here is Dr. Wilson's summary of why when low in Magnesium then calcium overloads/calcifies our organs.

Note: he noted K (potassium) in this electrolyte balancing act.

a K deficiency (Potassium) can be corrected by taking Magnesium.

**** this is not medical advice but on one of the best articles (dr. Wilson) I have ever read on why being low in Magnesium creates so many problems.

dr. wilson's summary.

Summary: "Disorders of electrolyte homeostasis are known at many diseases and clinical situations. They have serious consequences for the cell. Mg-deficiency is followed by a K-deficiency, which cannot be equalized by K alone: a refractory hypokalemia always needs additional Mg supply for its restitution. From K, Mg-deficiency a Na/Ca-overload of the cell with aggravating consequences will follow: impaired activity and vitality with electric instability. Mg, which is responsible for development of a Ca-overload is also able to restore electrolyte homeostasis by sufficient supply competitively. The pathophysiologic relations for development of a cellular imbalance and its restitution concern the Na/K-pump, the Ca-pump and the Na/Ca-exchange. The clinical applications of Mg therefore are manifold: recovery under diuretic treatment, coronary heart disease, arrhythmias, perioperative electrolyte therapy, transcellular shifts, coronary dilatation and so on."

I hope this is helpful.

posterboy,

Link to comment
Share on other sites
JaneWhoLovesRain Enthusiast

Having an LDL of 158 and total cholesterol of 241 my doctor insisted I had a coronary calcium ct scan to look for build up in the arteries.  When it showed I did have plaque he "demanded" (in a very loud and aggressive way) I go on statins, telling me if I don't I'm going to drop dead of a heart attack.  I had read Dr Stephen Sinatra's book "The Great Cholesterol Myth" before the appointment and wanted to discuss this with him but he refused, telling me that the info in there is biased, one sided, no medical backup to it, one person's opinion, dangerous, etc.  In the end I took the prescription for statins but have yet to take one.  My HDL and trigs and all ratios are excellent, it's just the LDL that is ruining it all.  My cholesterol has been  high for years and my doctor has never taken the time to discuss my diet, exercise, stress level or anything that may contribute to high cholesterol.  He says the only way to get it down is by statins.  (I'm not stupid though, I do know good food from bad food and based on what I eat my cholesterol shouldn't be so high, imo.)

Dr. Sinatra's book is a real eye opener.  He takes many studies and shows exactly why and where they are flawed with their biases towards statins.  He talks about the real reasons behind high cholesterol and why having cholesterol that is too low is dangerous.  His viewpoints  (similar to those of Dr. Mercola and many other functional/integrative physicians) are so opposite of what the mainstream doctors say.  Only in very rare circumstances does he think women should be on statins and men should be only when their risk of heart disease/attack is high enough.

But is he right?  There is so much controversy on this issue - butter is good, butter is bad; get your cholesterol under 100, that number doesn't matter; statins have lots of side effects, statins have few side effects; everyone should be on them, no one should be on them; take CoQ10, don't take CoQ10; meat is good; meat is bad; carbs are good, carbs are bad; canola oil is good, canola oil is bad; saturated fat is good, saturated fat is bad; coconut oil is the best thing since apple pie, coconut oil is as bad as any other fat so avoid it.  The only thing that they all agree on is that sugar is bad and most vegetables are good.

How does one ever know what to believe when there are so many different opinions?  How can two different groups look at the same study and come away with totally different conclusions? What good does listening to your doctor do when the doctor next door will look at the exact same lab results and hear the exact same story but recommend something totally different?

I do recommend Dr. Sinatra's book just to give a different side to the entire cholesterol debate.  It is very interesting and he does bring up a lot of good points.

Icelandgirl - I'm glad to hear your doctor is willing to work with you on ways to bring your cholesterol down without taking statins.  Your numbers aren't that bad, but like me you have the build up which puts a different light on it all.  Seeds and nuts are a great way to get needed nutrients, and they are tasty and filling as well.  Also pomegranate juice is supposed to be good at slowing down the plaque build up and in one study it was shown to reverse it.

Link to comment
Share on other sites
cyclinglady Grand Master
52 minutes ago, JaneWhoLovesRain said:

Having an LDL of 158 and total cholesterol of 241 my doctor insisted I had a coronary calcium ct scan to look for build up in the arteries.  When it showed I did have plaque he "demanded" (in a very loud and aggressive way) I go on statins, telling me if I don't I'm going to drop dead of a heart attack.  I had read Dr Stephen Sinatra's book "The Great Cholesterol Myth" before the appointment and wanted to discuss this with him but he refused, telling me that the info in there is biased, one sided, no medical backup to it, one person's opinion, dangerous, etc.  In the end I took the prescription for statins but have yet to take one.  My HDL and trigs and all ratios are excellent, it's just the LDL that is ruining it all.  My cholesterol has been  high for years and my doctor has never taken the time to discuss my diet, exercise, stress level or anything that may contribute to high cholesterol.  He says the only way to get it down is by statins.  (I'm not stupid though, I do know good food from bad food and based on what I eat my cholesterol shouldn't be so high, imo.)

Dr. Sinatra's book is a real eye opener.  He takes many studies and shows exactly why and where they are flawed with their biases towards statins.  He talks about the real reasons behind high cholesterol and why having cholesterol that is too low is dangerous.  His viewpoints  (similar to those of Dr. Mercola and many other functional/integrative physicians) are so opposite of what the mainstream doctors say.  Only in very rare circumstances does he think women should be on statins and men should be only when their risk of heart disease/attack is high enough.

But is he right?  There is so much controversy on this issue - butter is good, butter is bad; get your cholesterol under 100, that number doesn't matter; statins have lots of side effects, statins have few side effects; everyone should be on them, no one should be on them; take CoQ10, don't take CoQ10; meat is good; meat is bad; carbs are good, carbs are bad; canola oil is good, canola oil is bad; saturated fat is good, saturated fat is bad; coconut oil is the best thing since apple pie, coconut oil is as bad as any other fat so avoid it.  The only thing that they all agree on is that sugar is bad and most vegetables are good.

How does one ever know what to believe when there are so many different opinions?  How can two different groups look at the same study and come away with totally different conclusions? What good does listening to your doctor do when the doctor next door will look at the exact same lab results and hear the exact same story but recommend something totally different?

I do recommend Dr. Sinatra's book just to give a different side to the entire cholesterol debate.  It is very interesting and he does bring up a lot of good points.

Icelandgirl - I'm glad to hear your doctor is willing to work with you on ways to bring your cholesterol down without taking statins.  Your numbers aren't that bad, but like me you have the build up which puts a different light on it all.  Seeds and nuts are a great way to get needed nutrients, and they are tasty and filling as well.  Also pomegranate juice is supposed to be good at slowing down the plaque build up and in one study it was shown to reverse it.

Did he measure LDL particle density?  There are two types: hard/tiny and soft/fluffy.  What about your triglycerides? 

I have been reading about inflammation has a cause for heart disease and not cholesterol.  We have rejected statins for my hubby for this reason and the side effects from a statin just do not justify "supposed" benefits.  But that is based on our set of circumstances and yours may differ.  

Link to comment
Share on other sites
JaneWhoLovesRain Enthusiast
3 hours ago, cyclinglady said:

Did he measure LDL particle density?  There are two types: hard/tiny and soft/fluffy.  What about your triglycerides? 

I have been reading about inflammation has a cause for heart disease and not cholesterol.  We have rejected statins for my hubby for this reason and the side effects from a statin just do not justify "supposed" benefits.  But that is based on our set of circumstances and yours may differ.  

I asked about measuring the particle density but he didn't feel that was important.  He was so narrow and so focused on my high total cholesterol and getting me on statins that he wouldn't even discuss if there is possibly another reason why it is so high despite my excellent diet and daily walking.  Then he accused me of being narrow minded because I wanted to look at other causes.

Dr. Sinatra agrees with you about inflammation causing heart disease, not cholesterol.  He sees four causes, inflammation, oxidation, sugar and stress.  Cholesterol isn't a cause according to him.  He gives great evidence to back it up but other doctors also give great evidence as to cholesterol being the main culprit.  It's all so confusing.

My trigs are excellent at excellent at 52 and my HDL  is likewise good at 72.

Link to comment
Share on other sites
Posterboy Mentor
9 hours ago, JaneWhoLovesRain said:

Having an LDL of 158 and total cholesterol of 241 my doctor insisted I had a coronary calcium ct scan to look for build up in the arteries.  When it showed I did have plaque he "demanded" (in a very loud and aggressive way) I go on statins, telling me if I don't I'm going to drop dead of a heart attack.  I had read Dr Stephen Sinatra's book "The Great Cholesterol Myth" before the appointment and wanted to discuss this with him but he refused, telling me that the info in there is biased, one sided, no medical backup to it, one person's opinion, dangerous, etc.  In the end I took the prescription for statins but have yet to take one.  My HDL and trigs and all ratios are excellent, it's just the LDL that is ruining it all.  My cholesterol has been  high for years and my doctor has never taken the time to discuss my diet, exercise, stress level or anything that may contribute to high cholesterol.  He says the only way to get it down is by statins.  (I'm not stupid though, I do know good food from bad food and based on what I eat my cholesterol shouldn't be so high, imo.)

Dr. Sinatra's book is a real eye opener.  He takes many studies and shows exactly why and where they are flawed with their biases towards statins.  He talks about the real reasons behind high cholesterol and why having cholesterol that is too low is dangerous.  His viewpoints  (similar to those of Dr. Mercola and many other functional/integrative physicians) are so opposite of what the mainstream doctors say.  Only in very rare circumstances does he think women should be on statins and men should be only when their risk of heart disease/attack is high enough.

But is he right?  There is so much controversy on this issue - butter is good, butter is bad; get your cholesterol under 100, that number doesn't matter; statins have lots of side effects, statins have few side effects; everyone should be on them, no one should be on them; take CoQ10, don't take CoQ10; meat is good; meat is bad; carbs are good, carbs are bad; canola oil is good, canola oil is bad; saturated fat is good, saturated fat is bad; coconut oil is the best thing since apple pie, coconut oil is as bad as any other fat so avoid it.  The only thing that they all agree on is that sugar is bad and most vegetables are good.

How does one ever know what to believe when there are so many different opinions?  How can two different groups look at the same study and come away with totally different conclusions? What good does listening to your doctor do when the doctor next door will look at the exact same lab results and hear the exact same story but recommend something totally different?

I do recommend Dr. Sinatra's book just to give a different side to the entire cholesterol debate.  It is very interesting and he does bring up a lot of good points.

Icelandgirl - I'm glad to hear your doctor is willing to work with you on ways to bring your cholesterol down without taking statins.  Your numbers aren't that bad, but like me you have the build up which puts a different light on it all.  Seeds and nuts are a great way to get needed nutrients, and they are tasty and filling as well.  Also pomegranate juice is supposed to be good at slowing down the plaque build up and in one study it was shown to reverse it.

Janewholovesrain,

I agree it can be quite confusing sometimes.

They set the level so low that every "healthy person" it seems needs statin's these days.

It is worse if you are prediabetic or diabetic.

My cholesterol did not go too  normal levels for a healthy person until I took Vitamin K though I never here anybody talk about how it can help.

It might be the reason for the "French Paradox" of why they can eat fatty foods and still have low cholesterol.

Butter is an excellent Vitamin K source and we villify it in the western diet.

If you can't handle dairy in your diet try Ghee a dairy free form of Butter.

Low fat is not all it is cracked up to be.  Or else why does people who eat a ketogenic (fats and proteins)  diet have great cholesterol levels.

We need fat soluble vitamins i n our diet to keep us healthy.

****this is not medical advice but  I have learned to love fat in moderation.  Especially healthy fats.

posterboy,

Link to comment
Share on other sites
RMJ Mentor

Icelandgirl, I think your doctor sounds reasonable.  Your body is showing a genuine cholesterol issue (carotid partial blockage) and he is recommending lifestyle changes before drugs.  I hope you can make a dietary adjustment that helps.

Link to comment
Share on other sites
Victoria1234 Experienced
On 9/2/2017 at 2:53 PM, icelandgirl said:

The LDL was 141 last year and 116 this yea

Mine is 142 and the doc says it's borderline high. 116 on the same chart reads near optimal. My doc would be happy if I had your numbers!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,500
    • Most Online (within 30 mins)
      7,748

    fine one
    Newest Member
    fine one
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
×
×
  • Create New...