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Iron Supplements (Feosol brand, or any?)


LilyR

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LilyR Rising Star

Hi there, everyone. I have not been taking my iron supplements yet since realizing I have a gluten sensitivity, but I'm having  a bad fatigue weekend and was hoping I could take one today.  I just went online trying to find out if the supplements I have contain gluten, but couldn't seem to find info.  I have a brand called Feosol.  Their website has an 800# but they are not open today.  I thought I'd come check here to see if anyone takes any iron supplements, and if so, do you take the Feosol brand - do you know if it contains gluten?  Or what brand do you take that is gluten-free?  

 

Hope you all are having a nice day.  

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ironictruth Proficient
20 hours ago, LilyR said:

Hi there, everyone. I have not been taking my iron supplements yet since realizing I have a gluten sensitivity, but I'm having  a bad fatigue weekend and was hoping I could take one today.  I just went online trying to find out if the supplements I have contain gluten, but couldn't seem to find info.  I have a brand called Feosol.  Their website has an 800# but they are not open today.  I thought I'd come check here to see if anyone takes any iron supplements, and if so, do you take the Feosol brand - do you know if it contains gluten?  Or what brand do you take that is gluten-free?  

 

Hope you all are having a nice day.  

Has your iron been checked? I started supplements to avoid anemia but asked the doc to re-test to make sure I am not getting too much. You do not want to take too much iron. 

I use Solgar gentle iron (lower dose) and Vitron C (vitamin c helps absorption). In three months I brought my ferritin up from 20 to 33. It had been in the 70's. 

So, my body is absorbing the iron in pills and I have Marsh 2-3a damage on my biopsy. My diet contains a great amount of iron as well. So, just make sure you do not overdo it! 

Have you been tested for celiac? 

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Ennis-TX Grand Master

Reminds me of my iron debacle trying to find one. I tried Jarrows first but did not realize it had dairy in it and had a bad reaction, moved to another brand my GI suggested and got constipation, tried NOW foods and got cross contamination, moved to Lucky Vitamins brand but found it upped my folic acid and and B-vitamins too much as it also had them in it then  I finally settled on some off brand one I found and got on a whim. Seems to work but my iron even with vitamin C supplementation (vitamin C is required for your body to use iron) is only up to 6 from 1 which it had been at for the past few years. ( I have ulcer issues and I work our all the time)

What I am currently using

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LilyR Rising Star
On 9/11/2017 at 7:02 AM, ironictruth said:

Has your iron been checked? I started supplements to avoid anemia but asked the doc to re-test to make sure I am not getting too much. You do not want to take too much iron. 

I use Solgar gentle iron (lower dose) and Vitron C (vitamin c helps absorption). In three months I brought my ferritin up from 20 to 33. It had been in the 70's. 

So, my body is absorbing the iron in pills and I have Marsh 2-3a damage on my biopsy. My diet contains a great amount of iron as well. So, just make sure you do not overdo it! 

Have you been tested for celiac? 

I tested a low positive for celiac, but then they did more bloodwork and then said I don't have it, but I apparently do have a gluten sensitivity.  It's been about two months going gluten-free, but I am finally started to feel some improvement with my stomach.  

I tend to always be low in iron my whole adult life, whether it's a little, or at times a lot.  I had been put on two iron pills a day a few years ago, but then was back to just one a day, or I'd take it every few days which seemed easier on my stomach.  I try to eat iron-rich foods too.  Right now my bloodwork is a mess, and they may do some further test (I forget what it was called, but I looked it up online and it sounds like some blood smear test, which checks for anemia, leukemia, etc).   My next dr's appt is in October.  Right now the gastro and the rheum. dr's are having me go gluten-free and see if that helps.  But I am still having daily fever (have had it since February).  I've had health issues since I was 18 and had epstein barr virus, and then started improving after being sick for a few years with that, but then started getting similar symptoms and new symptoms again in my early 20's.  I get fatigue easily, muslce weakness, I would get fevers that could last days or weeks here or there.  But this is the longest my fever has ever lasted, going over a half a year now.  I haven't been taking iron since having bad stomach issues, which also acted up in February.  I have photo sensitivity which has gotten worse over the years.  A few times over the years dr's have said maybe there is some underlying autoimmune disease, and now that was the last I heard when a nurse called last month about bloodwork.   But I never get a diagnose or any help.  I sure hope this time I get some answers.  

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LilyR Rising Star
On 9/11/2017 at 7:52 AM, Ennis_TX said:

Reminds me of my iron debacle trying to find one. I tried Jarrows first but did not realize it had dairy in it and had a bad reaction, moved to another brand my GI suggested and got constipation, tried NOW foods and got cross contamination, moved to Lucky Vitamins brand but found it upped my folic acid and and B-vitamins too much as it also had them in it then  I finally settled on some off brand one I found and got on a whim. Seems to work but my iron even with vitamin C supplementation (vitamin C is required for your body to use iron) is only up to 6 from 1 which it had been at for the past few years. ( I have ulcer issues and I work our all the time)

What I am currently using

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Thank you for that link.  It was such a busy week and I've not felt well so I still never called the iron company yet. It's on my to-do list.  I've been eating eggs, chicken, meat, and just got some spinach to make salads. I do take C when I take my iron pills.  Right now I have been having some orange juice when I make eggs.  I had been going easy on citrus and the C supplements because the gastro dr said it could upset my stomach and stomach acid, but now that I have been going gluten-free, and have weened off the stomach meds they put me on back in February (which was before them thinking maybe I had a gluten issue), I have no longer been having stomach acid issues.  I've been having lemon in drinks again too and it doesn't seem to bother me.  So I don't think stomach acid was ever the big problem.  So hopefully I can go back to vitmin c and citrus now.  

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ironictruth Proficient
3 hours ago, LilyR said:

I tested a low positive for celiac, but then they did more bloodwork and then said I don't have it, but I apparently do have a gluten sensitivity.  It's been about two months going gluten-free, but I am finally started to feel some improvement with my stomach.  

I tend to always be low in iron my whole adult life, whether it's a little, or at times a lot.  I had been put on two iron pills a day a few years ago, but then was back to just one a day, or I'd take it every few days which seemed easier on my stomach.  I try to eat iron-rich foods too.  Right now my bloodwork is a mess, and they may do some further test (I forget what it was called, but I looked it up online and it sounds like some blood smear test, which checks for anemia, leukemia, etc).   My next dr's appt is in October.  Right now the gastro and the rheum. dr's are having me go gluten-free and see if that helps.  But I am still having daily fever (have had it since February).  I've had health issues since I was 18 and had epstein barr virus, and then started improving after being sick for a few years with that, but then started getting similar symptoms and new symptoms again in my early 20's.  I get fatigue easily, muslce weakness, I would get fevers that could last days or weeks here or there.  But this is the longest my fever has ever lasted, going over a half a year now.  I haven't been taking iron since having bad stomach issues, which also acted up in February.  I have photo sensitivity which has gotten worse over the years.  A few times over the years dr's have said maybe there is some underlying autoimmune disease, and now that was the last I heard when a nurse called last month about bloodwork.   But I never get a diagnose or any help.  I sure hope this time I get some answers.  

My heart breaks for you. It sounds awful. I wish you the best of luck and health.  Keep advocating and researching and hopefully you will find a medical team that can get to the root. 

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Ennis-TX Grand Master
4 hours ago, LilyR said:

I tested a low positive for celiac, but then they did more bloodwork and then said I don't have it, but I apparently do have a gluten sensitivity.  It's been about two months going gluten-free, but I am finally started to feel some improvement with my stomach.  

I tend to always be low in iron my whole adult life, whether it's a little, or at times a lot.  I had been put on two iron pills a day a few years ago, but then was back to just one a day, or I'd take it every few days which seemed easier on my stomach.  I try to eat iron-rich foods too.  Right now my bloodwork is a mess, and they may do some further test (I forget what it was called, but I looked it up online and it sounds like some blood smear test, which checks for anemia, leukemia, etc).   My next dr's appt is in October.  Right now the gastro and the rheum. dr's are having me go gluten-free and see if that helps.  But I am still having daily fever (have had it since February).  I've had health issues since I was 18 and had epstein barr virus, and then started improving after being sick for a few years with that, but then started getting similar symptoms and new symptoms again in my early 20's.  I get fatigue easily, muslce weakness, I would get fevers that could last days or weeks here or there.  But this is the longest my fever has ever lasted, going over a half a year now.  I haven't been taking iron since having bad stomach issues, which also acted up in February.  I have photo sensitivity which has gotten worse over the years.  A few times over the years dr's have said maybe there is some underlying autoimmune disease, and now that was the last I heard when a nurse called last month about bloodwork.   But I never get a diagnose or any help.  I sure hope this time I get some answers.  

Umm I ran a fever for a few years, we learned I was allergic to corn and it always caused me to have a 99-102F fever. Got off corn...now when I eat it I get blood blisters, fever, and sometimes a rash from contact.   SO you might have a allergy to something that your exposed to everyday and running a fever in relation to that.

See about getting tested for food allergies, you might findyour have a allergy to a daily staple.

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Victoria1234 Experienced

I ran a fever for a few years until I went gluten-free. Was around 99 and my usual temp is 96.7.

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LilyR Rising Star

Hi there.  Sorry it has taken me so long to reply back about this.  I had a few busy weeks, which were also weeks I didn't feel well.  But I finally called the Feosol company and the person on the phone did some digging and what they came up with is that their Feosol Complete is gluten-free.   But he did not see any notes of their Original or Natural Release being gluten-free.  So, only their Complete is safe.  Since that means I have to buy some new ones (I had an almost new bottle, but it's the Original) I figure I'll look around online, see what different gluten-free iron supps out there that I can find and compare any reviews and also the prices.  I just saw the rheum. dr this morning and they are running more bloodwork, including some muslce enzyme thing because muslce weakness has been a problem since my young adulthood.  And while she was at bloodwork, she's checking my iron again, so I'll see where it is.  I told her I haven't taken any iron supplements the past three months, since going gluten-free.  So, she's checking a few more things, mentioning possible autoimmune issues, but just not in her realm of specialty (I have had chronic inflammation and a few other things that suggest possible autoimmune issue my entire adult life - I'm 46 now, and still never a diagnose or answer).  She mentioned possibly a nerve issue, or a muscle issue.  And also suggests I go back to the G.I. dr for more testing, and mentioning autoimmune issues like with the pancreas.  So, still searching.  Going gluten-free has helped a lot with the severe stomach issues and weight loss.  Although the weight loss was the only good thing about it, lol!  I've gained weight on meds all these years.  It sure was nice to finally lose a little.  But I do think I might have to avoid corn. Thanks Ennis and Victoria, for sharing about your fever issues.  Maybe it is a food allergy.  I had some corn ingredients I seemed okay with, but other products with corn that seemed to bother me, so I think I'll just stop all corn ingredient all together.  When I see my primary care provider in a few months I'll ask her about other food allergies.  Can they do bloodwork for that?  Or do they just tend to want people to test different foods out?  

I appreciate all the sharing and suggestions here. 

This rheum dr is seeing me again in three months, and even though she said I am basically not in her realm of specialty that she treats (lupus, rheum arthritis, etc), she is doing a follow-up to make sure I don't slip off the radar.  She wants to make sure someone is helping me.  I have never, ever seen a dr like that before.  Well, actually I think she is a nurse practitioner.  I am trying hard to not feel frustrated.  Hopefully, I'm getting there.  Ruling some things out, but hopefully will get answers.  Counting my blessings. 

Anyone order supplements from Puritan's Pride?  I haven't checked them out yet, but this nurse practitioner said they have good deals price wise.  I just need to see if they have gluten-free options.  She mentioned taking B12 too.  I did try a chewable B12 in the past and did seem to like it. But my budget is so tight, I cut down to just a few supplements.  But I might need to squeeze B12 back in.  I'm not sure if those chewables were gluten-free though.  So, more checking to do. 

I hope everyone is feeling well and having a good day.  

 

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LilyR Rising Star

I just popped in to the Puritan Pride website and I searched Gluten-free and you can actually narrow your search to that, and see all the gluten-free supplements they have.  And prices do look good too.  Although I haven't checked out the shipping fees yet. 

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Posterboy Mentor
8 hours ago, LilyR said:

Hi there.  Sorry it has taken me so long to reply back about this.  I had a few busy weeks, which were also weeks I didn't feel well.  But I finally called the Feosol company and the person on the phone did some digging and what they came up with is that their Feosol Complete is gluten-free.   But he did not see any notes of their Original or Natural Release being gluten-free.  So, only their Complete is safe.  Since that means I have to buy some new ones (I had an almost new bottle, but it's the Original) I figure I'll look around online, see what different gluten-free iron supps out there that I can find and compare any reviews and also the prices.  I just saw the rheum. dr this morning and they are running more bloodwork, including some muslce enzyme thing because muslce weakness has been a problem since my young adulthood.  And while she was at bloodwork, she's checking my iron again, so I'll see where it is.  I told her I haven't taken any iron supplements the past three months, since going gluten-free.  So, she's checking a few more things, mentioning possible autoimmune issues, but just not in her realm of specialty (I have had chronic inflammation and a few other things that suggest possible autoimmune issue my entire adult life - I'm 46 now, and still never a diagnose or answer).  She mentioned possibly a nerve issue, or a muscle issue.  And also suggests I go back to the G.I. dr for more testing, and mentioning autoimmune issues like with the pancreas.  So, still searching.  Going gluten-free has helped a lot with the severe stomach issues and weight loss.  Although the weight loss was the only good thing about it, lol!  I've gained weight on meds all these years.  It sure was nice to finally lose a little.  But I do think I might have to avoid corn. Thanks Ennis and Victoria, for sharing about your fever issues.  Maybe it is a food allergy.  I had some corn ingredients I seemed okay with, but other products with corn that seemed to bother me, so I think I'll just stop all corn ingredient all together.  When I see my primary care provider in a few months I'll ask her about other food allergies.  Can they do bloodwork for that?  Or do they just tend to want people to test different foods out?  

I appreciate all the sharing and suggestions here. 

This rheum dr is seeing me again in three months, and even though she said I am basically not in her realm of specialty that she treats (lupus, rheum arthritis, etc), she is doing a follow-up to make sure I don't slip off the radar.  She wants to make sure someone is helping me.  I have never, ever seen a dr like that before.  Well, actually I think she is a nurse practitioner.  I am trying hard to not feel frustrated.  Hopefully, I'm getting there.  Ruling some things out, but hopefully will get answers.  Counting my blessings. 

Anyone order supplements from Puritan's Pride?  I haven't checked them out yet, but this nurse practitioner said they have good deals price wise.  I just need to see if they have gluten-free options.  She mentioned taking B12 too.  I did try a chewable B12 in the past and did seem to like it. But my budget is so tight, I cut down to just a few supplements.  But I might need to squeeze B12 back in.  I'm not sure if those chewables were gluten-free though.  So, more checking to do. 

I hope everyone is feeling well and having a good day.  

 

LilyR,

"But I do think I might have to avoid corn".

This is about the possible corn issue.

It is an old forgotten disease but if you think  you are having trouble with corn you need to research about Pellagra.

You have probably never heard about it.

see my blog post about it where I talk about how I had celiac disease but developed Pellagra.

Knitty Kitty also talks about how she had Pellagra.

Here is where celiac.com ran an article about how Pellagra can be confused for Celiac disease.

https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html

The term is co-morbid.  You can have both that occur in the same person though it is considered rare mainly because doctor's don't know to look for it today and have not studied it extensively.

It probably don't explain the gluten problem however it most certainly can explain the corn problem(s) if you are having trouble with corn.

I hope this is helpful and good luck on your continued journey.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

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LilyR Rising Star
9 hours ago, Posterboy said:

LilyR,

"But I do think I might have to avoid corn".

This is about the possible corn issue.

It is an old forgotten disease but if you think  you are having trouble with corn you need to research about Pellagra.

You have probably never heard about it.

see my blog post about it where I talk about how I had celiac disease but developed Pellagra.

Knitty Kitty also talks about how she had Pellagra.

Here is where celiac.com ran an article about how Pellagra can be confused for Celiac disease.

https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html

The term is co-morbid.  You can have both that occur in the same person though it is considered rare mainly because doctor's don't know to look for it today and have not studied it extensively.

It probably don't explain the gluten problem however it most certainly can explain the corn problem(s) if you are having trouble with corn.

I hope this is helpful and good luck on your continued journey.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

Thanks for the links.  I just read your blog.  I could relate to some of that.  Stress - yes!  This whole thing flared up last winter when I was going through a lot of stress.  I already had undiagnosed health issues for decades.  But the digestive issues all happened this past winter.  And one of the dr's mentioned that if I was having trouble with gluten, I might need to avoid all grains, including corn and oats too.  But she never mentioned Pellegra.  I do have sun sensitivity, but not really any of the other Pellegra symptoms.  Yet. (ugh!)  I need to go back and re-read your blog - I think you mentioned a specific type of niacin you take?  I was just looking online to get some supplements.  My dr did suggest B12.  I already take D and magnesium.  

I was not sure about the burping though.  I have had some major burping.  But it is with major bloating.  Do you mean after a while on niacin you will notice burping, but just without any bloat?  

I have been eating rice without any trouble.  But last night I had some new noodles and the ingredients were  brown rice and rice bran.  And I had issues.   Normally I've been just having white rice.  Is brown rice or rice bran anything anyone here has had trouble with?  It starts to get a bit maddening when you are trying to eat right, and still have troubles.  

My dr yesterday sent me for more bloodwork.  They are checking muscle enzymes.  I was weak yesterday.  I have some days that are better than others and yesterday happened to be a bad day with that.  I have been telling dr's since I was in my early 20's I had muslce weakness and fatigue.  Every complaint I had was always chalked up to my having had epstein barr virus, so they never really did anything for me.  But now this dr is at least checking the muscle issue, I guess.  She  mentioned my weakness could be autoimmune (but not in her specialty dept - she said I don't have lupus, rheum arthritis, etc), or it could be a nerve thing, although I don't know what type of bloodwork tests that.  She didn't mention seeing a neurologist.  She mentioned maybe having a colonoscopy since I only had an endoscopy.  Oh joy.  I think the cost is stressing me more than the procedure.  Not to mention tired of costly tests that lead to no answers.  She did mention there are autoimmune things like with pancreatitis, although also said it doesn't mean that is what she thinks I have, but just mentioning more possibilities. 

Posterboy, other than gluten, do you also avoid corn, and all grains (oats, is that it for grains?), and take the niacin, and feel better?  Do you eat rice?  Even brown rice or anything ever with rice bran?  Do you take any other supplements? 

Thanks for all the info. This sure is a process. 

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Posterboy Mentor

LilyR,

Here are some threads that might be of help to you if you are struggling with IDA.

https://www.celiac.com/forums/topic/119240-diagnosed-with-ttg-iga-level-of-128-three-days-ago-trying-to-conceive-or-should-i-hold-off/?tab=comments#comment-981475

and this one that help explain your question about burping and bloating together.

but in short yes. It is better when burping happens without being bloated.

CARBS typically can be a trigger for bloating because they ferment.

Other people on this board have noticed this effect they tolerate carbs better (Rice etc) when they eat either/or carbs not carbs and fats together.

According to the Mayo Clinic Bloating maybe related to “eating fatty foods, which can delay stomach emptying and make you feel uncomfortably full .  .  . With bloating, you may also have abdominal pain that can vary from mild and dull to sharp and intense”

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and could explain when you ate mashed potatoes (CARBS) alone you didn't have any problems but combined with fat you had a problem.

It also explains why/when people who go Ketogenic or just plan oh low carb many of their GI problems improve (bloating etc).

I think someone said the Suzanne Summers diet emphasized the "not mixing of fat and carbs" in the same meal.

I hope this is helpful but this is not intended to be medical advice.

posterboy by the grace of God,

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LilyR Rising Star

Thanks for the info.  Wow, can eating become confusing.  It's feeling stressful right about now. 

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This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
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