• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

gluten free, detox, mood, supplements
5 5

Rate this topic

10 posts in this topic

Recommended Posts

Hi Guys, 

Im new here, and been gluten free for just over 6 months, so im still learning alot.

heres some background info: I have suffered with bad anxiety, depression, and brain fog (as well as some other stuff) for over 15years, probably longer but it wasnt as bad so i could manage it . I tried different types of medications from doctors but they didnt really work.

I went and saw a naturopath about 6 months ago and he put me on a gluten free diet as well as giving me metagenics neurocalm, glutagenics, ultra flora digest, and a probiotic ultraflora digest immune control, he has interchanged the probiotic with another one, but i cant remember what it was called. Anyway i started feeling really good, and was improving more and more every week. About 4 weeks ago the naturopath decided to do a part detox on me which was silver and aloe vera juice. I stopped my medication while i did the detox apart from the probiotic. All my symptoms came back a little bit but i just thought it was from the detox. I have now been finished my detox for a couple of weeks and back on all my supplements and now i feel like im back where i started. im anxious, depressed, no energy, foggy brain etc. 

Has anyone else been through this, Does anyone have any thoughts on what is going on, any solutions etc?

Any help would be appreciated, as i cant go back to the way i felt, especially when i know how good i can feel

Thanks

Mat

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


4 hours ago, Mat82 said:

Hi Guys, 

Im new here, and been gluten free for just over 6 months, so im still learning alot.

heres some background info: I have suffered with bad anxiety, depression, and brain fog (as well as some other stuff) for over 15years, probably longer but it wasnt as bad so i could manage it . I tried different types of medications from doctors but they didnt really work.

I went and saw a naturopath about 6 months ago and he put me on a gluten free diet as well as giving me metagenics neurocalm, glutagenics, ultra flora digest, and a probiotic ultraflora digest immune control, he has interchanged the probiotic with another one, but i cant remember what it was called. Anyway i started feeling really good, and was improving more and more every week. About 4 weeks ago the naturopath decided to do a part detox on me which was silver and aloe vera juice. I stopped my medication while i did the detox apart from the probiotic. All my symptoms came back a little bit but i just thought it was from the detox. I have now been finished my detox for a couple of weeks and back on all my supplements and now i feel like im back where i started. im anxious, depressed, no energy, foggy brain etc. 

Has anyone else been through this, Does anyone have any thoughts on what is going on, any solutions etc?

Any help would be appreciated, as i cant go back to the way i felt, especially when i know how good i can feel

Thanks

Mat

Sounds like you haven't seen an actual doctor and gotten tested for Celiac before going gluten free?  

Sounds like you are spending a lot  of money for this stuff.

Edited by kareng

Share this post


Link to post
Share on other sites

I very much understand going to alternative practitioners particularly if allopathic avenues tried previously have not worked. Karen g is suggesting you get formal testing to confirm celiac/ncgs status. 

I am glad the practitioner is providing relief /comfort , and I understand a supplement or two for protocol. I do get  concerned when those numbers increase in products suggested.  Ideally it should be mostly food based nutritional support with a few supplements for deficiencies or a multi to support the regular diet. 

It is very possible that your alternative practitioner is onto your problem. I spent years having more symptom relief and better health with a DC . However I would suggest from the sake of this illness that you also take the knowledge you have discovered with the current practitioner and ask an allopathic physician to test for celiac/ncgs. During my 2016 diagnosis process my own team told me accupuncture sometimes helped ease symptoms for previous patients.

Yes one can get a flood of " memory lane " symptoms with a celiac flare or with alternative treatment. It can be hard to rule out which is which it comes with experience and mind/body self awareness knowledge. Naturopathic Dr' s can stir things up as they are treating, but often times you must communicate reactions /experiences so they know pros and cons to tailor treatment. Sounds the most recent step was too strong/too much. It should be gently and positively moving you along not exacerbating the bad.

In my opinion the symptoms are back strongly consider testing for celiac with a celiac hospital/clinic and then let them know you use alternative practitioners for symptom management. For testing they'll need you back on gluten. I know what I'm asking you to do is huge because I've done just that myself.

This is not an easy path, nor easy illness, you had a glimmer it's the right path when you went gluten-free, you likely have had this longer than you realize, do you have kids? Family? I never thought I'd do testing once gluten-free,  but through an error by a restaurant I got badly exposed to gluten and at that point went for testing for my kids. It was a good thing for my son also has my issues and my daughter will always be aware of her genetic potential. I'm still working on my dad and my brother who I very much worry about as I believe they may have celiac.

Sometimes our path unfolds not as we want, but as it's destined.  The alternative Dr clued you in now take that knowledge rule in or out celiac by testing . Lastly the alternative Dr can be great comfort, but celiac can be on two fronts. You need it all in your arsenal. I have a very allopathic medicine based family so my alternative practices often are disregarded I find  with celiac both are helpful.

Lastly, I wanted my allopathic medical record to have connected dots celiac explains it , but I had decades of celiac symptoms bundled and diagnosed as other illness. This finally puts it together for my offspring and future Dr s. My alternatives help a lot , but I focus on treatment not the supplemental products.

It will be a long journey to diagnose and heal you had a glimmer of it so ....

Good luck 

Share this post


Link to post
Share on other sites
6 hours ago, Mat82 said:

Has anyone else been through this, Does anyone have any thoughts on what is going on, any solutions etc?

Any help would be appreciated, as i cant go back to the way i felt, especially when i know how good i can feel

What do you typically eat in a day? I’m wondering if nutritional deficiencies could be the problem..

As for the anxiety/depression/brain fog/lack of energy - these issues can be confusing because they can be either symptoms of health conditions or withdrawal/detox side effects. For example, brain fog was a gluten intolerance symptom for me and then after I went gluten free, it was a gluten withdrawal symptom. I think the same applies to quitting caffeine, sugar, etc. How strict was the detox program?

Share this post


Link to post
Share on other sites

Welcome.  Anxiety, depression and brain fog can certainly be part of the Celiac spectrum of issues.   You could have gotten glutened and be dealing with that and it can take some time for those neuro symptoms to resolve after you have been glutened.  Do check out the Newbie 101 thread at the top of the Coping section to make sure that you are strictly gluten free.  Be sure to check any medications or supplements to be certain they are gluten free.  One of my worst glutenings in the beginning was from a naturopathic medication.

I don't think it is unusual for us to not respond to the typical drugs that are given for things like depression. They can at times make things worse. They did for members of my family anyway. I think it is because the drugs are treating for something caused by one thing when our issues are caused by the antibody reaction not something like a serotonin imbalance.

It would be a good idea to get tested for celiac but you would need to go back on gluten for a couple months to do so.  Whether you choose to get tested or not we are here to help in any way we can.

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for the replies

I have not done a celiac test, i didnt even know it was a thing until 6 months ago. i have been diagnosed by the doctor with social anxiety and adhd inattentive, all they want to do is give me drugs, the last one i had made me want to kill myself. I live in a small country town in Australia, i think ive seen every doctor here over the last 10yrs trying to get help and not one of them helped me :( 

Yes it is costing alot of money, but i was feeling so good that he could have had all my money, just this set back has got me a bit worried, as im scared of going back to how i was.

I have children, one of them is exactly like me, she has been diagnosed with mild autism, we try to get her to eat gluten free but she is very hard as she only likes certain things, so she is a work in progress. My sister is seeing the naturopath too after she saw how well i was doing, she has hoshimoto disease but the doctor never tested her for celiac or gluten intolerence either. My mum is similar, but she seems to manage so she hasnt done anything about it.

I thought i didnt have celiac because i dont feel nausea or vomiting, and my wife said that you feel really sick if you eat gluten, but i only get some pains in my stomach and mostly mental problems, is this right or can it affect people differently?

In a day i normally eat watermelon, banana, apple, yoghurt and nuts for breakfast

lettuce, cheese, cucumber, tomato, avocado, beetroot and either ham salmon or chicken with it for lunch

dinner is normally some sort of meat and vegetables

occasionally i will have gluten free cereal or gluten free bread if im in a hurry that day

the detox was literally silver and aloe vera juice, i didnt change anything else except the supplements

I would like to get tested, so i know whats going on, and it would be good to have a doctor that can help me and suport me. 

So the best thing for me to do would be to eat gluten, then go to the doctor and ask for a celiac/ncgs test?

Share this post


Link to post
Share on other sites

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/

This article examines how vitamin deficiencies contribute to one's mental health.  

Celiac Disease causes malabsorption which results in malnutrition.  Even if you don't have horrible gastrointestinal problems, you can still be deficient in vitamins and minerals.  

Some chemical messengers used in the brain, like serotonin, are made in the gut.  Intestinal bacteria help make certain vitamins available for absorption.  If your intestinal flora are messed up (maybe by that silver aloe cleanse), it may take some time to reestablish that beneficial bacteria again.  

https://www.celiac.com/articles/24743/1/What-Causes-Villus-Atrophy-in-Symptomatic-Celiac-Patients-on-a-Gluten-free-Diet/Page1.html

https://www.ncbi.nlm.nih.gov/pubmed/28220520

These are articles that look at how some antidepressants might cause problems for Celiacs.  

I was prescribed a variety of  antidepressants and they only made me worse.  Turned out I had serious vitamin deficiencies.  Once the vitamin deficiencies were addressed, I felt much better and did not need the antidepressants.  The root of the problem needed to be addressed.  Covering up the symptoms with more antidepressant medications doesn't work.  

Perhaps having your doctor check for vitamin and mineral deficiencies for you and your daughter would be beneficial.  Supplementation may be necessary until you're healed enough to absorb nutrients.  

Hope this helps.

K

P.S. Omit dairy from your diet for a while.  Celiacs may become lactose intolerant during a flare up.

Edited by knitty kitty
Added postscript

Share this post


Link to post
Share on other sites


Ads by Google:


G'day Matt (couldn't resist it).

22 hours ago, Mat82 said:

Has anyone else been through this,

Yes, my story is similar. I had all sorts of prescriptions over the years and nothing worked particularly well until a few years ago I changed my diet and the brain fog lifted and my mood began to lighten. It was a revelation and once I knew I could feel that way I never wanted to go back. 

23 hours ago, Mat82 said:

Does anyone have any thoughts on what is going on, any solutions etc?

It's a little complicated by the range of treatments from the naturopath, supplements and detox etc. If you make several changes at once then it's difficult to pin down one as a cause.

My first suggestion is to do a little research. It's very good news that you found this site, it's a helpful community and there's lots of knowledge here. You'll find a forum faq above and I collected some Q&A's awhile ago in this post:  https://www.celiac.com/gluten-free/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?do=findComment&comment=970127 try reading through, following a couple of the links and you'll feel better once you have a better grasp of this. 

 

Second, start to keep a food / mood diary! Note what you eat and when and how you're feeling at that point. Note any health related things you notice. Skin rash etc. This can really help you tie down anything which may be affecting your mood/health. You may have more than one issue, eg dairy.

9 hours ago, Mat82 said:

my wife said that you feel really sick if you eat gluten, but i only get some pains in my stomach and mostly mental problems, is this right or can it affect people differently?

No this isn't right. Celiac and gluten sensitivity can affect people in a lot of different ways.  See link above. 

9 hours ago, Mat82 said:

I would like to get tested, so i know whats going on, and it would be good to have a doctor that can help me and suport me. 

So the best thing for me to do would be to eat gluten, then go to the doctor and ask for a celiac/ncgs test?

Ok, testing would need you back on gluten for a 'challenge'. This is so your body can develop the antibodies picked up by the test. You would have to be back on for 8-12 weeks depending on what the doctor says. Be warned, this can be rough. You may find you react worse to reintroducing it than you ever did before. 

First step is to find a doctor that understands celiac. Maybe you need either a referral or just google to see if there's any doctors in your area that specialise? I've driven through rural Oz so I realise you may not have a big choice! If you see them and they want to test you can then start eating gluten again. 

Finally, you may have a problem with gluten but test negative for celiac. I did. So think in advance of what you want from the test and what you'll do with the info. For me, testing negative was difficult to take, but I did manage via the challenge to confirm that gluten was a big problem for me and the Doc told me to avoid it as if I'd tested positive for celiac. This is NCGS, there's no test for it, it's what you wind up with if you find gluten is a problem but you test negative for celiac. It didn't make much difference ultimately, I was gluten free for life regardless once I did the challenge. 

Best of luck!

Matt

Share this post


Link to post
Share on other sites
13 minutes ago, Jmg said:

G'day Matt (couldn't resist it).

:)

9 hours ago, Mat82 said:

I would like to get tested, so i know whats going on, and it would be good to have a doctor that can help me and suport me. 

So the best thing for me to do would be to eat gluten, then go to the doctor and ask for a celiac/ncgs test?

Matt has given good advice. I'd like to add one more thing: some celiacs are seronegative so the blood tests are not 'perfect'. I tested negative for celiac but didn't have an endoscopy/biopsy so I can be either a ncgs or a seronegative celiac. The important thing is my symptoms have improved so much on the gluten free diet that this is a proof that I do have a problem with gluten and have to avoid it.

Share this post


Link to post
Share on other sites

Thanks everyone for your replies, ill do some more reading so i understand it all a bit better and then decide where to go from there

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

5 5

  • Forum Statistics

    • Total Topics
      108,133
    • Total Posts
      939,840
  • Member Statistics

    • Total Members
      66,113
    • Most Online
      3,093

    Newest Member
    cb1105
    Joined
  • Popular Now

  • Topics

  • Posts

    • You'll get to the point where you can eat other things, you just have to give it time. Can you do eggs? Hard boiled eggs. They make fast snacks and are highly portable. If you make nut butters, you can just eat it by the spoonful.  I don't like "normal" coconut macaroons, too wet for me, ick! I found this recipe though which drives me insane --- sooooooo good I about swallow my tongue. http://www.foodnetwork.com/recipes/alton-brown/toasty-coconut-macaroons-recipe-1912139 Don't know if you like them or not but re-fried beans. I NEED my carbs!!!!! If I don't get carbs, I will get weak & shaking 30 minutes after eating. I can't eat every 30 minutes!!! So I eat a lot of re-fried beans. I make a big vat & then portion into containers & freeze. If you have or get a stick blender, it will make super fast work of mashing those beans up. Only takes 2 minutes or less. I use olive oil in mine & lots of it -- need that fat. 
    • Coconut, almond butter, and cocoa nib fat bombs...I use plant fats to do it. You can make some great snacks out of fresh almond butter, shredded or coconut flour, and cocoa nibs. Sweeten with stevia for little dough like balls of goodness. Oh you miss potato chips, two options here I like to make my own protein chips with pea protein, or I can have 2-4 protes chips (vegan pea protein  chips made by a company) but they have to be eaten in moderation. Coconut chips....yeah I get Lets' Do Organic ones I can snack on a hand full of them or throw a handful of cocoa nibs in my mouth for snacks. If you like meat, try making jerky. get a dehydrator season your own and just do it.....lucky you can eat meat. I miss making roast in a crock pot....I used to make some of the best shredded meats. My old smoker.....I could make some of the best ribs and roast EVER. The jerky can be made and taken for snacks on the road or while out, crack open a can of spinach (canned unsalted delmonte does not bother me) or pack some stewed greens and have some jerky tear it up stir it in canned keto on the go. Other lovely thing are tuna and salmon if the canned bother you I often find them too salty to enjoy I have taken some and smoked it or dipped it in liquid smoke then cooked in a baking dish then loaded in to the dehydrator. I find doing this I can have that little bit of fish when I want without worry of spoilage (sucking on it and chewing it for a long time make it really satisfying for me) ....SOO doing this next week to try the fish again. Speaking of fish...since I perfected keto bread in my bakery this month......I think I might try making a tuna sandwich with avacado mayo....not had a tuna sandwich in over 5 years.....
    • I am a newly diagnosed celiac and am traveling abroad for the first time since starting the diet. I will be going to Greece in the spring. I was wondering if anyone had any tips for eating gluten free abroad or at airports? Thanks! 
    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
    • I see banana pudding in your future! ENJOY! I'm glad you came back to report what happened with the cookies.
  • Upcoming Events