• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Test results and advice?
1 1

Rate this topic

7 posts in this topic

Recommended Posts

Hello everyone sorry if this is repetitive but I am a 26 year old female with hyperthyroidism, hypoestrogenism, severely underweight 88lbs  (lost 35 lbs)  just recently last week, found out that I have celiac disease. Panel is as follows: 

IgA - 144

Gliadin AB IGG - >160

Gliadin AbB IGA - >320

TTG IGA - >160 

Could someone tell me if the higher the number, does that necessarily mean it's any worse than the next person with the disease?? I'm really scared about all of this honestly, I'm afraid I don't have the self control to begin to stick to a gluten free diet as all I have eaten my whole life is junk..any advice is helpful. The mental is taking a toll on me. Also, I have not had a menstrual cycle in 5 years (was on Depo birth control shot for 3 yrs, been off for 2 yrs) would this celiac disease have anything to do with the lack of menstration? I have been on Hormone Replacement Therapy over a year now with no results. I have to get back to my old self by before I lose it forever...Thanks for the help. 

 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


51 minutes ago, Mgh1213 said:

Hello everyone sorry if this is repetitive but I am a 26 year old female with hyperthyroidism, hypoestrogenism, severely underweight 88lbs  (lost 35 lbs)  just recently last week, found out that I have celiac disease. Panel is as follows: 

IgA - 144

Gliadin AB IGG - >160

Gliadin AbB IGA - >320

TTG IGA - >160 

Could someone tell me if the higher the number, does that necessarily mean it's any worse than the next person with the disease?? I'm really scared about all of this honestly, I'm afraid I don't have the self control to begin to stick to a gluten free diet as all I have eaten my whole life is junk..any advice is helpful. The mental is taking a toll on me. Also, I have not had a menstrual cycle in 5 years (was on Depo birth control shot for 3 yrs, been off for 2 yrs) would this celiac disease have anything to do with the lack of menstration? I have been on Hormone Replacement Therapy over a year now with no results. I have to get back to my old self by before I lose it forever...Thanks for the help. 

 

 

Welcome! 

Chances are your high results are due to celiac disease.  Have you had a gastroenterologist consult?  He/she can refer you to a dietician who can help you with the gluten free diet.  

Celiac disease can wreak havoc on so many different areas of the body.  It just does not affect the GI tract.  There is a good chance that the gluten-free diet will help resolve your hormone issues.  Are you taking medication for your hyper thyroid?  Have you been diagnosed with Graves Disease?   

Higher test result numbers do not necessarily correlate with higher intestinal damage.  Common sense though, seems to indicate that your severe weight loss might mean severe intestinal damage.  Only a GI can confirm that. 

In the meantime, read through our Newbie 101 thread located at the top of the "Coping" section of the forum.  

If you have not met with a GI yet, keep in mind that additional testing for celiac disease requires you to be on a gluten diet.  

Edited by cyclinglady

Share this post


Link to post
Share on other sites

Thank you for your response, it really helps to hear from others and I will check out the coping forum that you mentioned. I do have Graves Disease and have been on anti-thyroid medication for 2 years, I just recently started seeing an Endocrinologist (had been seeing normal MD prior) and they said my thyroid levels were good and suggested some gastro tests since I was still having other symptoms. This included the celiac panel that came back positive. They have not referred me to a Gastroenterologist but I assume that is next. I think I will wait to cut out the gluten totally, until further testing is done by the correct specialist. I'm hoping getting this celiac in line, will help the rest of my problems such as the hormones, as you said. Thank you again for taking the time to reach out. 

Share this post


Link to post
Share on other sites

I have Hashimoto's Thyroiditis, but my Mom has Graves.  I have been both hyper and hypo.  Had crazy swings for a while while going through menopause and being undiagnosed with celiac disease.  My thyroid calmed down on the gluten-free diet.  My enlargement and nodules went as well.  Not sure if it was the gluten-free diet or simply reducing my immune response (inflammation)  by addressing celiac disease.  Does that make sense?  

In the meantime, you might consider eliminating most dairy.  Celiacs tend to be lactose intolerant --- at least temporarily unless you are genetically predisposed (as are some huge chunk of the world's population).  It could bring you some relief while you complete testing.  You might however, be one of the lucky celiacs who can eat all the dairy they want!  Throw in some veggies  and some healthy fats to help off set your weigh loss.  Your body is probably starving for nutrients right now, so make every bite count.  

 

Share this post


Link to post
Share on other sites

Hello and welcome :)

3 hours ago, Mgh1213 said:

I'm really scared about all of this honestly, I'm afraid I don't have the self control to begin to stick to a gluten free diet as all I have eaten my whole life is junk..any advice is helpful. The mental is taking a toll on me.

It can be scary and there's definitely a mental side to dealing with this which is at least as important as the physical. If available to you consider seeking out some counselling to help you process this. It was really useful for me, as were the people on this forum which is a great resource which you should use as much as you need to. 

And, easy to say, try to be optimistic! 

1 hour ago, Mgh1213 said:

I'm hoping getting this celiac in line, will help the rest of my problems

It may be that you've solved a huge health puzzle whilst you're still young and have lots of great years ahead of you, years which will be so much more enjoyable gluten free. Time will help you learn the diet and what at first seems impossible will become the new normal to the point where you won't have to think too much about it. We are an adaptable species and however hard it seems at the outset you will adapt and you will feel better.

Best of luck!

 

Share this post


Link to post
Share on other sites
Ads by Google:


14 hours ago, Mgh1213 said:

Thank you for your response, it really helps to hear from others and I will check out the coping forum that you mentioned. I do have Graves Disease and have been on anti-thyroid medication for 2 years, I just recently started seeing an Endocrinologist (had been seeing normal MD prior) and they said my thyroid levels were good and suggested some gastro tests since I was still having other symptoms. This included the celiac panel that came back positive. They have not referred me to a Gastroenterologist but I assume that is next. I think I will wait to cut out the gluten totally, until further testing is done by the correct specialist. I'm hoping getting this celiac in line, will help the rest of my problems such as the hormones, as you said. Thank you again for taking the time to reach out. 

I can guarantee you that once you get your weight back up to normal, your period will come back.  You sound really malnourished and if your weight gets too low, your periods will stop.  Don't panic.......I was down to about 92-94 pounds at diagnosis so you will be able to heal if you do the diet correctly and don't cheat. Once you start to feel better and your other problems are under control , you will find it easy to stick to the diet. Nothing beats health!  Good luck to you!

Share this post


Link to post
Share on other sites

Thank you all so much for the encouraging words and advice, it has been the most help so far! @cyclinglady I have heard of others that have had thryoid issues improved with the gluten-free diet so that definitely makes sense! I think a lot of things will get better once the gluten is gone. And wow! That is a lot to deal with mentally emotionally, etc. going through menopause, and dealing with celiac and thyroid problems. Major props to you for maintaining a positive attittude..that is most admirable and reminds me I can do this!

@Jmg I have considered talking to a counselor, like you said, it would help to talk to someone and I have very grateful to have figured this out while I am still young, I'm ready to take control!

@Gemini Thank you for your encouragement as well, it helps to hear someone has gone through a similar process..doctors have made me feel like I am the only person in the world trying to gain weight so I am excited for the future! Thank you all again. 

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

1 1

  • Forum Statistics

    • Total Topics
      108,137
    • Total Posts
      939,858
  • Member Statistics

    • Total Members
      66,117
    • Most Online
      3,093

    Newest Member
    T-lil
    Joined
  • Popular Now

  • Topics

  • Posts

    • Are doctors even getting close to diagnosing the actual number of cases of celiac disease? Or are they missing the vast majority? Researchers have said for some time that there are far more people with celiac disease than are being diagnosed, and that the vast majority of case go undiagnosed. If a new study by Canadian nutrition researchers is any indication, most cases of celiac disease remain undiagnosed. View the full article
    • Thanks for your input, everyone!  I will get tested soon enough for this condition, and I will definitely update you all when the results finally come in.
    • Have you had a sleep study? I have severe sleep apnea and used to sleep 12 hours a night and still was exhausted. Falling asleep at a stoplight exhausted. I do not fit the typical male and overweight stereotype either! But my cpap keeps me more well rested and alive. A sleep study is easy and it's the cost of an office copay. 
    • Have you ruled out the common Keratosis Pilaris (KP) also know as chicken skin?   https://www.aad.org/public/diseases/bumps-and-growths/keratosis-pilaris
    • Squirmingitch brought up the macaroon idea, I find Zsweet, and Swerve Sugar Free sweeteners do not throw me out of keto and I use them to make my "treats" You might sub it in these if your like that idea. I personally just use coconut and almond meal in my baked goods with high fat nuts like walnuts and pecans (Walnuts and pecans have so much oil in them you can butter then in a blender or food processes into a pour able sauce that can be used as a dressing or mixed with eggs and coconut flour into a dough)

      Also brought up batch beans....bad idea for keto, but to integrate a keto version, try cooking a roast in a crock pot, or a whole bunch of chicken breast. You can eat on it for a week just serve it over greens. Or Miracle Rice (zero carb rice) Batch cooking will become a life saver. (works with some foods) and meal preps give you time to just grab a pre fixed meal out of the fridge and go if you need to do something later in the day. First year I was gluten free I did this daily for myself before meat became a issue (I look forward to doing it again).
        CB brings up the issue of selenium and melotonin. YES this is a huge thing and completely evaded my thoughts. I consume massive amounts of seeds, like pumpkin, sancha inchi, hemp all high in these in addition to flax and chia. I tend to rotate my seeds to prevent intolerance issues and only the roasted ones. Look up GERBS allergen friendly foods for pumpkin, hemp, flax, and chia.  I suggest the ground flax under meals as the seeds I notice have issues, I personally always have to cook my chia, and flax seeds into egg dishes or I can not eat them. If you blend them in with the eggs  1-2tbsp seed meal to 1 1/2 cups eggs -1/2 cup almond milk 2tbsp coconut flour and some almond butter and stevia to taste let it set up 5-10mins then blend again you have a batter for pancakes/waffles/doughnuts/breading batter. >.> something like this I whim it as a chef.

      I was thinking of another think I like to snack on. Rythem Super foods roasted kale and the kale chips in moderation. I also crush the kale chips up and sprinkle over eggs as a condiment, Adds plenty of vitamins and the ranch flavor for this is amazing.




       
  • Upcoming Events