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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hello, I am very new to all of this so please bear with me. After about a year of GI issues and random testing, I was given an Upper GI and told my stomach was irritated and to go gluten-free then be re-tested. On my retest, the results said my stomach had healed and looked good, yet said they did not see celiac evidence. I was extremely confused by this. To me, if my stomach healed from being gluten-free, then gluten was my problem. Anybody else have any idea on this strange result? 

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Yeah, your GI seems like he does not know anything about celiac disease.  Run, don't walk, to another GI for a consult.  If celiac disease was suspected, a simple blood test could have been ordered prior to the endoscopy.    Even the endoscopy without the blood test  and before recommending that you go gluten free, the blood panel should have been ordered that day.  

You should get all copies of your lab tests and medical records to share with your new GI and possible attorney.  You should always keep all your medical records.  You are the customer and it is you health.

At this point, since you have been gluten free, it might be difficult to get a firm diagnosis because all celiac tests require you to be on a gluten diet.  Maybe some information is missing here.  Another reason to get these medical records.  

I wish you well.  

Edited by cyclinglady
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Thank you so much, I really appreciate the advice!! I have an app in Dec with a different doctor so hopefully it will give me some clear answers! 

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Did you have any problems before going gluten-free? Did they resolve when you went gluten-free? 

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I was having lots of abdominal pain randomly and suffered from terrible migraines at least twice a week. Since going gluten-free, my migraines are much better. Stomach issues still occur once in a while. My biggest problem is that when I eat an actual meal, I have a BM and then am immediately starving again. This problem is stil there, but I'm happy to at least be rid of the migraines! 

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