• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
4 4
Xgth

Could This be Insidious Neuro-Celiac?

Rate this topic

Recommended Posts

Greetings, everyone!

My name is David. I have dealt with high-functioning autism since I was a little kid. I had a healthy childhood, and then, in the summer of 2012, back when I was fifteen and a half years old, I began experiencing a weird combination of semi-mania, occasional and inexplicable brain fog, and an overall state of high energy and very strong self-confidence. However, a few months later, in September and early October of 2012, I rather abruptly stopped feeling so great, and the brain fog hit me even worse,  Anhedonia and a pervasive sense of depersonalization also began. During this short span, I began to fear that my Asperger's (which I still highly valued at the time) was somehow fading away and that I would turn into a neurotypical. But mysteriously enough, after three weeks of being in this lull, I quickly returned to a state of inner peace, good well-being, relatively high energy, and renewed ambition. Moving ahead to the spring of 2013, I made new friendships and was again in a state of near-euphoria, strength, and persistent joy. 

And then, in the early summer of 2013, the fatigue began, and the elation faded away. Initially, this fatigue was physical in nature and limited to a mild loss of endurance while going out on jogs, but eventually, by February of 2014, I was also beginning to experience mental fatigue, occasional-yet-intense depression, and a stubborn and new OCD-like anxiety about losing my own thoughts and emotions of value. As the months went by, my performance in both academics and track and field began to decline, subtly but surely. and the depression worsened. Thinking at the time that my dopamine system was underactive, I began taking the NDRI, Wellbutrin, in 2014's summer, and ultimately, my anxieties, fatigue, and depression only worsened. In the fall of 2014, I ended the Wellbutrin treatment and began taking Risperidone, which, thankfully, did quickly relieve my OCD-like anxiety and eventually my depressed mood as well. For the most part, I consistently have been on antipsychotics since then, which have kept me calm, polite, and sleeping well at night.

Nevertheless, by now, I am now twenty years old, and I now take Abilify everyday. I continue to deal with treatment-resistant anhedonia, which seems to grow a bit each day and effects me at all points in the day and night. Even my dreams seem to be devoid of much happiness (although, luckily for me, I at least rarely have nightmares). Also, for whatever little emotions I still have, I am detached from them to the point that it almost seems as if someone else inside my head is experiencing the pleasure or pain, not "me." And, finally, the chronic fatigue also continues to get a bit worse every week, more or less.

I have not dealt with any gastrointestinal issues that I am aware of, and to be fair, I also have NOT had to experience any headaches or pains from anywhere on my body, so I am not overly-convinced that I actually have gluten intolerance of any kind. HOWEVER, we have definitely ruled out Neuro-Lyme, chronic fatigue syndrome, or any real neurodegenerative disease. I will again say and add that SSRI's, SNRI's, and pro-dopamine medications either failed to help me or even made things worse. I consider myself to have some peculiar form of depression, but, as I have mentioned before, it doesn't really manifest like standard (or atypical, for the matter) depression, because low mood and anxiety were never the initial or primary symptoms to begin with. The emotional detachment, in my opinion, probably goes beyond a simple case of depression, because there are no negative emotions in my mind anymore that would be a likely cause of it. Even for depression, my anhedonia seems extremely stubborn and severe, almost as if a neurological hiccup of some kind if occurring in my frontal lobes.

Traditionally speaking, I have always been a lover and heavy consumer of bread and carbs. In your opinion, could my depression-like disorder, in fact, be a rare and extremely insidious manifestation of Celiac Disease, or at the very least, bad gluten intolerance? OR, on the other hand, am I just suffering from unusually pervasive depression? I plan on getting tested within a few months, but I am very curious as to what you all have to say about my own experience in the meanwhile. Any thoughts, comments, or insights would be greatly appreciated. Thank you. :) 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


That is a crazy thing about celiac.  There are several hundred different symptoms and everyone seems to have a different combination.  It could be celiac.  Good for you for thinking of it!  Now get tested so you won't be left wondering......

Make sure to keep eating gluten while you are waiting for the testing. About the equivalent of 1 piece of bread per day.  

And, just curious, why do you have to wait several months to get tested? the preliminary testing is a blood test (but you do need to be eating gluten for 8-12 weeks prior)

let us know how it goes!

  • Like 1

Share this post


Link to post
Share on other sites

Hi David,

Welcome to the forum! :)

Here is a study link looking at neurological effects associated with gluten sensitivity and celiac disease.  There are many symptoms of celiac disease, and also a higher chance of schizophrenia and other conditions like T-1 diabetes. rhuematoid arthritis etc.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/

Here is a link to a thread about some mental symptoms people have suffered.  There are more threads on the subject on the forum.

Anger, Quick Temper, Depression

http://www.celiac.com/gluten-free/topic/34917-anger-quick-temper-depression/

There is a condition called gluten ataxia that affects some people with celiac disease where the antibodies attack cells in the brain.  It can cause difficulty walking and coordinating muscle movements.  So there is definitely a link between gluten ingestion and possible brain affects.

I am currently taking the NAMI family to family class so have a vague understanding of some condition symptoms.  It sounds like you are describing bipolar disorder?  It's good you are getting treatment for it.  I was depressed for a time before going gluten-free myself.

https://www.drugs.com/risperidone.html

Common risperidone side effects may include:

  • headache;

  • dizziness, drowsiness, feeling tired;

  • tremors, twitching or uncontrollable muscle movements;

  • agitation, anxiety, restless feeling;

  • depressed mood;

  • dry mouth, upset stomach, diarrhea, constipation;

  • weight gain; or

  • cold symptoms such as stuffy nose, sneezing, sore throat.

Here is an article about wheat and schizophrenia.

https://www.psychologytoday.com/blog/evolutionary-psychiatry/201103/wheat-and-schizophrenia

If you want to try the gluten-free diet,we can help with pointers on getting started.  But the best thing to do is stay on a regular gluten eating diet until all celiac testing is completed.  The testing involves taking blood samples to check for gluten antibodies, and usually an endoscopy later to check for intestinal damage.  There is no testing for GS (gluten sensitivity) yet.  Sometimes we call that NCGS, or non-celiac gluten sensitivity.

I suggest staying on your regular medication until your doctor says anything different.

Edited by GFinDC
  • Like 1

Share this post


Link to post
Share on other sites

Welcome

I can get a whole basket of symptoms with my gluten and other food intolerances in addition to gi, cognitive, nerve, mood.

As a woman somehow my autoimmune and nerve issues if I'm not fully in remission  is tied to flares and hormones of my cycle.

I lose my balance easily after consumption of cc and regularly spent years catching my wrist watch on walls and door  frames.

So yes this can be worth investigating for you. Gluten and other foods etc can inflame the brain in my opinion.

Good luck on your journey.

 

  • Like 1

Share this post


Link to post
Share on other sites

......de-ja vu sorry for the amusement. I find it very enlightening to find someone else with Asperger here. And yes it is possible for the neuro symptoms to cause depression, for me it was a combination of depression, anxiety, fog, etc. It got worse right up before my dia. thought I was dying. I also get gluten ataxia issues with it where it caused me brain damage and loss of feeling in my hands and feet.

Gastro wise I never really noticed it much as I thought only having a bowl movement every 3-11 days was normal. I also thought puking a bit of your food up every other meal was normal. I assumed most of the issues  I had were "normal" as I had them most of my life and they slowly progressed.
 

Many of the issues with the brain, neuro side of it can be a combination of antibody reactions and nutrient deficiency caused by damaged intestines. I can give you a few supplements I swear by that work wonders with them. Look up these and perhaps invest in them along with getting tested for celiac like ther others have mentioned
Liquid Health Stress & Energy 1tbsp 3 times a day
Liquid Health Neurological Support 1 tbsp 3 times a day
Natural Vitality Calm Magnesium start with 1/4 tsp a day and slowly over the period of a week ramp it up to the full dose. This can cause some gastric issues if you take the full dose straight

Love to chat more but I am a bit preoccupied thought wise with some things.

  • Like 1

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for your input, everyone! :) I will get tested soon enough for this condition, and I will definitely update you all when the results finally come in.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

4 4

  • Forum Statistics

    • Total Topics
      108,431
    • Total Posts
      941,233
  • Member Statistics

    • Total Members
      66,361
    • Most Online
      3,093

    Newest Member
    Louie17
    Joined
  • Popular Now

  • Topics

  • Posts

    • Turkey, vacuum pack it, you can use it later for soups, stews, sandwiches, omelettes etc. Will keep for months in the freezer

      Dressing,
      You can use it in various ways my fun thing to do with it is moisten it back up a bit and load it into a waffle maker these can then be frozen or eaten when ever, dressing and sausage flavored waffles are AWESOME.
      Other leftovers can be put in a icecube tray and froze these cubes can be kept in a bag in the freezer, they are perfect for just putting a few in a bowl and zapping in the microwave later for quick meal, I love stir frying them in with eggs.

      Gravy, Gravy can be frozen in icecube trays, and kept in bags, you can then put these over bread, mash, etc and melt them over them later in the microwave or use in a soup like a stock to add flavor.

      Most Desserts can be frozen but around here I have hardly ever had any last the next week.

      Mashed potatoes, again these can be loaded into icecube trays frozen and kept in bags for quick reheat and use meals. Goes great in soups later to thicken them up. Green beans, after thanksgiving....you might want a new flavor thankfully the green beans can be incorporated into another cuisines using spices, in a soup or stir fried Asian style in coconut secret teriyaki sauces.
      Casserole dishes honestly freeze quite well in may cases, I have not had many survive the next week but often you can top them other other cuisine spices or sauces and fry them up in a skillet or reheat in a bowl for something different.  
    • Appreciate the thorough responses.    The stomach issues have been dreadful the past few weeks and brought hurrendous awakenings.the worst I have slept in a long time. I have had a few gluten foods in all honest. Maybe a mcdonalds twice in 2 months. Which isnt ideal. But I dont seem to feel anything afterwards (terrible excuse I know)  My biggest worries were my memory and cognitive behaviour! I was in London Bridge station and forgot where I was heading for 15 minutes. My memory is terrible, as is the concentration. So its a bit of a battle at the minute and I am flunking in my new job. I feel like as you said, neurologically I have deteriorated. Wit and brain function out the window. Considering I was a pretty switched on person. Balance and diziness at points. (all this on a gluten free diet after 4 months triggered me too my mcdonalds binge) ha ha.  I think the memory was the worst.    As you said about the brit medical side being useless. I think you are correct. I understand its the NHS and free etc. But this is just not considered a worry. Ive considered pulling myself into A and E this past few weeks because of the pain and I know this is the only way anyone will give me a thorough look over. I was also sent for a bone scan ( no reasoning as to why) But from research it seems to be for searching the nutrients in the bone?    Neurological side has been really i think what has been the toughest. My job requires an awful lot of high concentration and memory. Which when I fail at, causes stress, and then I am caught in the vicious cycle! Thanks for the help guys. Nice to meet some fellow people who can relate. I just feel like celiacs seem to know more then the doctors, which shows primitive practice in order to solve it. Once again, I would never know the NHS or doctors. I understand free health care is health care. But how low on the list this is, is a worry.    
    • I get vomiting with large amounts of gluten, and motion control loss, followed by either Diarrhea or constipation for a week was back in June 2016 when I decided to eat at a new place, I was on my floor unable to move vomiting so hard there was blood in it.
      NOW trace amounts I have gotten sense then and confirmed via Nima Gluten sensor then following lab testing have show that for me I get constipation, gas, bloat, and nerve issues with fog and peripherally neuropathy. The vomiting was missing from stuff confirmed at 6ppm, but obvious other nerve and fog issues were apparent (I kept dropping stuff and walking into things, mind kept on wondering and having those what was I doing moments, topped with backed up to hell with painful gas)
      Everyone is a little different and symptoms seem to change and evolve with time and type/form of exposure. I used to get a angry Mr, Hyde rage mode, and weeks of constipation and I used to not have the motor loss issues just brain fog and looping thoughts. It changes

      The cause is mostly due to your antibodies going up and your immune system attacking your own body, where it attacks, how, and to what degree greatly varies and after a exposure it can take weeks to wind down off the response and for the antibodies to go down. Just giving a basic idea here.

      Once you get exposed all you can do is treat the symptoms and wait it out, up supplementation of b vitamins, magnesium etc. Take pepto, or Imodium depending on what you have, teas and bone broths and try to eat easy to digest foods for the next week, Mushed up, blended, purreed, stewed/steamed super soft foods.
    • Hi everyone,  Once again I am here looking for your help. I was diagnosed with Celiac less than a year ago. It took quite a while to find out because I didn't experience any particular symptoms after eating gluten. I was always tired, had memory problems and was frequently ill; sometimes I had gastrointestinal issues, but they came and went.  Last night I went out for dinner, to a Thai place I trust(ed). Later, I could hardly sleep, I had horrible nightmares, those where you can hardly tell apart when you are awake or not. I expected to have high fever but nothing!  Today all my body aches, I am very tired and was nauseated all day. A little bit gasy and bloated as well.. Was I glutened?? Did I already clean my body enough that I now start to react in this fashion? If so, why does that happen?  There is also gastroenteritis going around, that would be the alternative explanation. I thought I excaped it. I also didn't vomit or have diahrrea like the rest.  What do you think?
    • With a positive EMA and a positive tTg, that is a slam dunk for Celiac Disease.  If you read about testing results, the odds are 99% that you have it. You also had very high numbers on your testing so that adds to the diagnosis.  At this point, the biopsy, if you have it done, is to check for the amount of damage, and is not needed for a diagnosis. I declined the biopsy as I was very sick at diagnosis.  The doctor who ran my blood panel said there was no doubt I had it due to the high numbers on my blood work.  I have been gluten-free for 12 years and every single doctor I have ever seen since then, who whined about me not having the biopsy, shut up about it once they saw my initial blood work.  The difference in my health since going gluten free was nothing short of amazing. I am sure you will have the same results, once you go gluten free.
  • Upcoming Events