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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Please help, 

I am 30.All my life from childhood I had upset stomach pain and cramps.As a child was frequently treated for giardia and still had cramps.As a child so strange I had bumps with water on skin.Not redness nothing else.Just bumps filled with water all over my body.Later I never had these.But in my early teens I started with fatigue anxiety.Then extreme fatigue.Hair fallen.Eyebrow loss over a few years to nonexistent eyebrow.Always low iron even with supplementing.Low vitamin D3.Low calcium and magnesium.Gastrointestinal for a few months now I have cramps daily.Diarheea almost daily.Treated for parasites and giradia.nothing changed.

OTHER symptoms.  Bone pain.Spinal pain.Headache.Eye floaters.Done MRI and eye exams nothing all clear

Low iron again at blood work.

Low exercise tolerance.

So bloated I seem like pregnant in 9 months even !!!if i lost weight the last three months

Itchiness all over body but no bumps just redness

Itchiness extreme on the scalp.

Petechiae small red spots all over my body this is for years now.

Tried gluten free even though in my country very hard to keep up with this.

Only for few days then gave up and tried again and so on.

Did some blood work but only 2 antobodies and not IGa and Igg judt one of them.Negative.this was two years ago.

I don't know what to do.

Oh and mouth ulcers.

And have gas i am afraid because i can hardly control because i am extremely bloated.

I am desperate.

Thanks.

 

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Welcome. You do sound like you could be one of us.  You should get retested for celiac. Just because tests were negative a couple years ago doesn't mean they will be now.  Any doctor can run the panel but if you can see a GI doctor that  is familiar with celiac that might be best. Do not stop eating gluten until your celiac related testing is finished.

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1 hour ago, ElenaM said:

Please help, 

I am 30.All my life from childhood I had upset stomach pain and cramps.As a child was frequently treated for giardia and still had cramps.As a child so strange I had bumps with water on skin.Not redness nothing else.Just bumps filled with water all over my body.Later I never had these.But in my early teens I started with fatigue anxiety.Then extreme fatigue.Hair fallen.Eyebrow loss over a few years to nonexistent eyebrow.Always low iron even with supplementing.Low vitamin D3.Low calcium and magnesium.Gastrointestinal for a few months now I have cramps daily.Diarheea almost daily.Treated for parasites and giradia.nothing changed.

OTHER symptoms.  Bone pain.Spinal pain.Headache.Eye floaters.Done MRI and eye exams nothing all clear

Low iron again at blood work.

Low exercise tolerance.

So bloated I seem like pregnant in 9 months even !!!if i lost weight the last three months

Itchiness all over body but no bumps just redness

Itchiness extreme on the scalp.

Petechiae small red spots all over my body this is for years now.

Tried gluten free even though in my country very hard to keep up with this.

Only for few days then gave up and tried again and so on.

Did some blood work but only 2 antobodies and not IGa and Igg judt one of them.Negative.this was two years ago.

I don't know what to do.

Oh and mouth ulcers.

And have gas i am afraid because i can hardly control because i am extremely bloated.

I am desperate.

Thanks.

 

You might want to see about getting the blood test done again and getting a full celiac panel. You have to be consuming gluten daily for 12 weeks before the test. At least half a slice of bread a day. And keep eating gluten til you get the endoscope. The endoscope with biopsy is the golden standard as some people do not show up on the blood test.

You mentioned itchiness and redness, look up DH and tell me if it looks like. If you have DH then you HAVE celiac. They test it by taking a skin biopsy from a clear spot next to one of the lesions and testing it.

I have seen some others with this disease distend where they look pregnant when they get glutened. I have some distention but never that bad, just a obvious bump that pressing out. 

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