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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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alex1234

Further Testing? DQ8 hetero gene and Symptoms resolved on gluten-free diet

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I recently found out I have the DQ8 hetero gene. Because my life was being affected so drastically, I discontinues eating gluten and have started to feel myself. about 90% of my symptoms have resolved during the past 2 weeks of eating gluten-free. Now, I need to decide whether I should continue with a gluten challenge and test for antibodies and do the endoscopy/biopsy. I am one that would be unsettled not knowing whether or not I have Celiac. Does anyone have advice on whether or not I should do a gluten challenge and do further testing to pursue a diagnosis?

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20 minutes ago, alex1234 said:

I am one that would be unsettled not knowing whether or not I have Celiac.

I believe you have answered your own question. You need to go back on gluten and schedule a full panel celiac blood test in 12 weeks. 1-2 pieces of bread per day is fine.

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Read this about the benefits of having a celiac disease diagnosis.  It is written for doctors, but it is very useful.  

https://www.ueg.eu/education/latest-news/article/article/mistakes-in-coeliac-disease-diagnosis-and-how-to-avoid-them/

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Thank you both for the replies. The article is very insightful. Right now I am trying to reason with the thought of being miserable for 4-8 weeks to get a diagnosis. I feel so good right now it seems almost not worth it, but I also need to know if something is wrong and if there are potentially any other digestive system issues. I will likely go on a gluten challenge and deal with the side effects... after all, Thanksgiving is coming up ;)

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1 hour ago, alex1234 said:

4-8 weeks

Pretty sure it's 12 weeks recommended by experts. Good luck to you!

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The length in time can vary, but this leading celiac research center confirms 12 weeks.  You should be under a doctor’s care.

http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/

 

Edited by cyclinglady

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Thank you Cyclinglady and Victoria1234

 

I would be curious to know if anyone has done the gluten challenge for say... 6-8 weeks and had either a positive or false negative result on the endoscopy/biopsy AND the Serology? It will work out best in regards to my insurance deductible to do less than 10 weeks. Thanks everyone!

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