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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Auntie Shell

Intolerant to lots of foods

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Hi, I've been having trouble with gluten and an abundance of other food sensitivities for three years. I haven't gotten any help from doctors. I've tested negative for celiac's and an allergy test read that I wasn't allergic to anything, including gluten. I'm at my end. It seems I can't eat anything without being sick for days- digestive upset, fatigue, body aches, migraines, brain fog, mood swings, etc. All I can eat are fresh fruit and veggies. That's it. Even the expensive, "clean" pea protein powder I was using has started making me sick. Since I can only eat fruit and veggies, I'm hungry all the time! I have no idea how to get protein (I'm vegetarian and won't change this position). I don't know where to turn. I bought potatoes and tofu just to have something to help me feel full. Bad idea. Got so angry about all of this that I ate a whole thing of gluten-filled cookies  last night, which I normally don't do. All I know is I'm sick and tired of being sick and tired (and angry). I feel like I am all alone and am just winging it. Has anyone else gone through this? How did you find direction and guidance? Have you found direction and guidance?

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2 hours ago, Auntie Shell said:

I've tested negative for celiac's and an allergy test read that I wasn't allergic to anything, including gluten.

I also tested negative for both. A food diary and gluten challenge established however that gluten and dairy was an issue. 

2 hours ago, Auntie Shell said:

I'm hungry all the time! I have no idea how to get protein (I'm vegetarian and won't change this position).

Can you eat eggs? They're a great source of protein and omelettes are a great way to introduce other foods too. I have a large omelette for breakfast stuffed with spinach or other veggies. Good way to start day.

Search this site for some of the vegetarian threads. Lots of people have been in same position as you. 

Also try reading up about GI index. Potatoes for instance can be a bad choice, try and pick foods with a lower index score that take longer to turn into blood sugar.

2 hours ago, Auntie Shell said:

All I know is I'm sick and tired of being sick and tired (and angry). I feel like I am all alone and am just winging it.

You've found a good site, lots of support available here :)

2 hours ago, Auntie Shell said:

Have you found direction and guidance?

This site helped a lot. Trial and error, becoming stricter on diet, learning the pitfalls and cutting out cross contamination. Food diary was probably the biggest single thing which helped me identify what was causing a problem.

Best of luck :)

 

 

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3 hours ago, Auntie Shell said:

Hi, I've been having trouble with gluten and an abundance of other food sensitivities for three years. I haven't gotten any help from doctors. I've tested negative for celiac's and an allergy test read that I wasn't allergic to anything, including gluten. I'm at my end. It seems I can't eat anything without being sick for days- digestive upset, fatigue, body aches, migraines, brain fog, mood swings, etc. All I can eat are fresh fruit and veggies. That's it. Even the expensive, "clean" pea protein powder I was using has started making me sick. Since I can only eat fruit and veggies, I'm hungry all the time! I have no idea how to get protein (I'm vegetarian and won't change this position). I don't know where to turn. I bought potatoes and tofu just to have something to help me feel full. Bad idea. Got so angry about all of this that I ate a whole thing of gluten-filled cookies  last night, which I normally don't do. All I know is I'm sick and tired of being sick and tired (and angry). I feel like I am all alone and am just winging it. Has anyone else gone through this? How did you find direction and guidance? Have you found direction and guidance?

OK on vegan protein powders, IF you have issues with pea this is not unheard of when I was first diagnosed I had a issue with it for like 6+ months which led me to discover a huge range of other vegan protein powders. LUCKILY that intolerance went away and pea protein is a huge part of my diet again. FOR now look up Pumpkin Protein powder, bit grainy but good source of magnesium, zinc, iron. Cheapest brand right now is Jarrow Pumpkin Protein you find it on Luckyvitamin.com, Sacha inichi protein is another one. MRM and Julian Bakery sell it. Julian calls theirs Pegan protein, the unflavored one is the sancha inchi, they make a cinnamon twist one that is a pumpkin blend that is super smooth. You might also want to look into rice protein powder by like Nutrabiotic, I used to use it a lot. PS you might have to cut out soy, many with celiac disease find it to be a issue. try using hte proteins I suggested instead. smoothies are awesome.

OH I do a bunch of vegan options for my baked goods, and I have several recipes here in the recipe section including vegan cheesy bread and garlic bread.
If you want some nice vegan gluten free cookies to binge on look up Enjoy life, free of all major allergies, still sugary/starchy as hell but better then a box of gluten cookies.

You probably have NCGS, while not celiac some of our members have this. They react just as bad and many are even more sensitive then celiacs to gluten. The key is to stick to a gluten free diet. As to other food limitations your not alone I have a whole list just check the about me on my profile. I also get rotating food intolerance to random foods -_-. Try keeping a food diary, you might find a pattern to foods that make you sick, perhaps a seasonings, sauce, pan you used to cook it in being CCed, or even a issue with histamines.
 

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Exactly how did you fail the celiac test?  Many doctors just use the TTG test to check for antibodies to gluten.  A great test, but it catches MOST but not ALL celiacs (like me).  The other blood tests include the DGP and EMA.   Learn more here at the University of Chicago:

http://www.cureceliacdisease.org/screening/

Next, some 10% of celiacs are seronegative.  That means you will fail the blood tests.  If the GI still suspects celiac disease or wants to rule it out, he obtains intestinal biopsies via endoscopy. 

My niece had celiac disease completely ruled out (had the endoscopy).  In one final attempt, her 4th GI ordered a pill camera that found Crohn’s damage well beyond the reach of scopes.  I am not saying you have Crohn’s, but keep advocating for your health.  Something is clearly wrong.  Get copies of your medical files.  It is your right.  Consider consulting with another doctor and share those files with her. 

I hope you feel better soon.  

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Nuts are high in protein so if you can eat them, then go for it. You may not be able to tolerate whole nuts. I found I can't eat almonds but I am fine with almond meal. Dried beans are great sources of protein as well. How about making re-fried beans from dried pinto beans? 

I get my almond flour from Barney Butter since I have an intolerance to peanuts. Barney Butter products are peanut free.

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