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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi guys. It's me Jenny ūüėäI feel like I post every other day with problems or questions. Well I'm here again. I have this problem with my left leg (in particular) at night going numb it wakes me up in the middle of me sleeping and is difficult to fall back to sleep. It's not my bed mattress, it's not the location on how I sleep. I don't know what it is. It only happens at night. The neurologist said I was sleeping on my spine wrong because I sometimes end up on my back wrong! Happens just as much on my side. Don't know if this is celiacs related damage or something else my quality of sleep sucks! Any one experience this? Also I have a mysterious pain that started in my neck atleast 2 years ago got use to it but over the summer I noticed there was pain (unbearable) on the shoulder generating down to the wrist on one side. Any one know what this could be. My doctor diagnosed arthrits but I'm only 30

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Hi Jenny. How long have you been gluten free? Have you potentially come across CC ate away from home, a processed  food that is new to you? 

I get neuropathy issues among many other issues. For me it is my left upper arm goes numb aka falls asleep like sensation and my big toes both feet. Typically this is when I am actively consuming gluten before  went gluten-free and at/after my challenge. As gluten-free if I get cc by gluten I go numb , if  get cc by corn another intolerance I get shooting nerve firing.

So yes celiac and food intolerance s can cause this in some people. It is best to stick to whole foods for now and keep a food diary to suss out any gluten cc or other intolerance.

Edit - also check vitamin b12, other b' s and magnesium also are important. Do you get enough? B vitamins are water soluble so if you have absorption issues and don't consume enough and they are depleted this also should be on your radar. Sublingual b12 maybe necessary so t enters the blood stream vs. Pill /gi route. Lastly some require b12 shots if the prior options do not work.

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Have you ever seen a chiropracter?  I have had issues like this a few times and it turned out to be a pinched nerve. I have a good chiro and he was able to help. I should also note that I do have some nerve damage from celiac that has lead to a loss of feeling and motor signals in my right leg. That was helped with seeing a physical therapist. The numbness remains but he was able to help me retrain muscles so I can walk normally now. That was a constant thing though not intermittent.

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Awol touched on what I thought it could be, night numbness and cramps is often a magnesium issue, Also with gluten ataxia nephropathy is common causing numbness, tingling, or control loss. As you mention a constant I am thinking perhaps more of a deficiency,

Raven goes on another topic, I had a issue in my shoulder messing up and pain and numbness in my back/shoulder with numbness in my arm a while back from some muscle and nerve issues and had to have it worked on by a massage therapist, seems my muscles had healed wrong after working out and caused some issues, she was getting rolling, bands and large knots out of the area around my shoulder blade and neck for over 30mins.

 

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7 hours ago, Awol cast iron stomach said:

Hi Jenny. How long have you been gluten free? Have you potentially come across CC ate away from home, a processed  food that is new to you? 

I get neuropathy issues among many other issues. For me it is my left upper arm goes numb aka falls asleep like sensation and my big toes both feet. Typically this is when I am actively consuming gluten before  went gluten-free and at/after my challenge. As gluten-free if I get cc by gluten I go numb , if  get cc by corn another intolerance I get shooting nerve firing.

So yes celiac and food intolerance s can cause this in some people. It is best to stick to whole foods for now and keep a food diary to suss out any gluten cc or other intolerance.

Edit - also check vitamin b12, other b' s and magnesium also are important. Do you get enough? B vitamins are water soluble so if you have absorption issues and don't consume enough and they are depleted this also should be on your radar. Sublingual b12 maybe necessary so t enters the blood stream vs. Pill /gi route. Lastly some require b12 shots if the prior options do not work.

Ive been receiving b12 shots since March and the only difference is my numbers went up to about 400. I'm considering taking a sublingual daily in addition to the monthly injection. I'll start looking into other intolerances as well thanks for the idea!

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3 hours ago, Ennis_TX said:

Awol touched on what I thought it could be, night numbness and cramps is often a magnesium issue, Also with gluten ataxia nephropathy is common causing numbness, tingling, or control loss. As you mention a constant I am thinking perhaps more of a deficiency,

Raven goes on another topic, I had a issue in my shoulder messing up and pain and numbness in my back/shoulder with numbness in my arm a while back from some muscle and nerve issues and had to have it worked on by a massage therapist, seems my muscles had healed wrong after working out and caused some issues, she was getting rolling, bands and large knots out of the area around my shoulder blade and neck for over 30mins.

 

Thanks ennis I'll try that for the shoulder issue. How about the magnesium even if blood serum was normal would I still need it? Weird because I have symptoms of low magnesium but that was one of the normal blood levels when vitamin tested a few month ago. Can I still try it? 

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3 minutes ago, Jherm21 said:

Thanks ennis I'll try that for the shoulder issue. How about the magnesium even if blood serum was normal would I still need it? Weird because I have symptoms of low magnesium but that was one of the normal blood levels when vitamin tested a few month ago. Can I still try it? 

VERY much so. as me and poster boy can both attest just because levels are normal does not mean you do not need more. HECK their was even talk about raising the FDA recommended daily value of it as it was the suggested minimum. Either Docters best glycinate before bed or if you have C issues or no D issues then perhaps natural vitality calm citrate version in small doses at first before adjusting up.

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4 hours ago, Ennis_TX said:

VERY much so. as me and poster boy can both attest just because levels are normal does not mean you do not need more. HECK their was even talk about raising the FDA recommended daily value of it as it was the suggested minimum. Either Docters best glycinate before bed or if you have C issues or no D issues then perhaps natural vitality calm citrate version in small doses at first before adjusting up.

Ok great. Should I be Warned of any side effects. I hope not. 

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