• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
4 4
SadBlueBee

I can't live like this much longer

Rate this topic

Recommended Posts

This pain is constant and nauseating it's in my back and stomach burns all the time.  My GI doctor barely knows about cealic they did an ultra sound came back clear. 

I can't sleep my stomach hurts it feels like someone ripped a scab off and like it's being eaten by acid 24/7 I'm starting to fail school, I can't work because of the pain I feel like crying, I kind of just want everything to end I've been in pain for a year and half now and doctors are just taking my money and not solving the problem it's driving me insane.

Just a burning nasunating feeling that never goes away, makes it hard to walk hard to live hard to drive to do anything I feel like I'm being tortured everyday.

 

dont know what else to do, I kind of hope someone on this site had similar pain and maybe can suggest what this may be? Because I can't function anymore.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hello and welcome :)

I'm sorry you're having such a tough time. There are lot's of people here who have been through tough times of their own and come through the other side. There's no shortage of support and good advice available. However, it would probably help if you could put down some details about what medical checks your Doctors have conducted? Have you had a celiac blood test for instance?

Share this post


Link to post
Share on other sites
28 minutes ago, SadBlueBee said:

This pain is constant and nauseating it's in my back and stomach burns all the time.  My GI doctor barely knows about cealic they did an ultra sound came back clear. 

I can't sleep my stomach hurts it feels like someone ripped a scab off and like it's being eaten by acid 24/7 I'm starting to fail school, I can't work because of the pain I feel like crying, I kind of just want everything to end I've been in pain for a year and half now and doctors are just taking my money and not solving the problem it's driving me insane.

Just a burning nasunating feeling that never goes away, makes it hard to walk hard to live hard to drive to do anything I feel like I'm being tortured everyday.

 

dont know what else to do, I kind of hope someone on this site had similar pain and maybe can suggest what this may be? Because I can't function anymore.

Have you had the blood test for celiac? Or how about a endoscope with biopsies? These are the standards for checking for celiac disease. http://www.cureceliacdisease.org/screening/
IF your diagnosed with celiac you have to follow a STRICT gluten free diet, as crumbs, or even residue from shared utensils/cookware/prep surfaces/shared condiments can make you miserably sick. There are tons of symptoms and everyone is a bit different, in the words of another member the disease is like a chameleon in the way the symptoms can evolve and change.

Share this post


Link to post
Share on other sites

In the US you can order blood tests online. If you want to go that route here is the info:

The full celiac panel includes:

TTG IGA
TTG IGG
DGP IGA
DGP IGG
EMA
IGA

You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive antibody test and costs $298.00 (not covered by insurance). The blood draw is done at your nearest Labcorp. You get your results in less than a week at walkinlab.com .

 

If you are going to buypass testing for some reason you can try a really basic diet for a couple of weeks. If you start to feel a little better you can slowly add on basic meats and veggies and see how you feel.

For a basic diet I'm thinking chicken cooked with salt and chicken broth.

 

I'm not a doc, just my opinion.

 

Share this post


Link to post
Share on other sites

If you are not getting any cooperation from your healthcare providers you can also just try a gluten free diet for a few weeks/months and see if symptoms improve. You would need to educate yourself on where gluten is found, especially how it is hidden in prepared foods like canned soups and condiments. You would need to become a dedicated fool label reader and educate yourself on terms used by the food industry that can mask the presence of wheat, barely and rye.

Because your pain could be caused by other things, some of which could be serious, you still need to stay engaged with the medical community. And do realize that if you go with a gluten free diet it would render some celiac disease diagnostic tests invalid. If you were having testing done after going gluten free you would need to start eating gluten again before the testing was done.

Share this post


Link to post
Share on other sites
Ads by Google:


Have you been tested for a stomach ulcer?  That's what the pain sounds like to me.  You can also get pain in your stomach from too much gas.  Another possibility is GERD.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

4 4