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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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KDB1845

Blood work results and I need help understanding

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I was just tested for celiac and I just got the blood work and I am not sure what to make of it. We already knew I have sensitivities to Wheat, gluten and peanuts. What brought this on is that I was recently hospitalized with Very bad stomach and intentional infections in which I was put into isolation because I had turned septic and every time I eat I get sick and my abdomen swells to the point where my clothes don't fit. I was wondering if anyone could help me figure out what these results could mean or where to look. This is all the information I have. Any help would be greatly appreciated.  

Test                                                     result                                reference

5a18f3cbb4219_ScreenShot2017-11-24at11_37_55PM.png.be258e657a5eb0748a2702e980774026.png

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47 minutes ago, KDB1845 said:

I was just tested for celiac and I just got the blood work and I am not sure what to make of it. We already knew I have sensitivities to Wheat, gluten and peanuts. What brought this on is that I was recently hospitalized with Very bad stomach and intentional infections in which I was put into isolation because I had turned septic and every time I eat I get sick and my abdomen swells to the point where my clothes don't fit. I was wondering if anyone could help me figure out what these results could mean or where to look. This is all the information I have. Any help would be greatly appreciated.  

Test                                                     result                                reference

5a18f3cbb4219_ScreenShot2017-11-24at11_37_55PM.png.be258e657a5eb0748a2702e980774026.png

Hi!  These results are negative.  However, you stated that you knew that you had a wheat sensitivity.  All celiac testing requires you to be on a full gluten diet for about 8 to 12 weeks prior to the blood tests or the results will be negative/invalid.  Were you eating wheat/gluten at the time?   Some celiacs are seronegative, but still have intestinal damage.  Some  are IGA deficient (this control test was not run).  Some test negative to many of the celiac tests like me.  I test positive only to the DGP IgA which you did not have.  

What was your diagnosis given at the hospital?  

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I was eating wheat and gluten at the time of the test. No test or diagnoses was done while I was in hospital they just Gave me a list of could be’s and nothing was done they just sent me home once the sepsis was gone. I went to my auto immune dr because they thought I had lupus or hypothyroid and he suggested having a colonoscopy to test for chrons and endoscopy to test for celiac after the blood work. Having the colonoscopy Dec 7th. Getting tired of being sick, bloated beyond belief all the time and just flat out drained and sluggish.  Gaining weight for no reason at all to which is strange. I read the blood work as negative as well just wanted to see if I was reading it right and see if I could get more info. 

Edited by KDB1845

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You might consider the endoscopy.  Like I said, some celiacs (about 10%) have negative blood tests.    The endoscopy can rule out other issues too (like Crohn’s).  

Not all celiacs are wasting away either.  I hope they figure it out and you feel better fast!  

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