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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi everyone! 

I got diagnosed last August after suffering from Mono. Since then things have been okay but not great. Still an icky stomach, started taking pre/probiotics and some vitamins. Now after a year a few months..for a week or two I’ve been getting migranes, sinus pressure and body aches? (Which is weird)..I’m currently putting myself on a dairy-free diet to see if it will help. I hope it does but the other part of me hopes it isnt dairy and maybe ive just glutned myself somewhere in the past week lol. I love my cheese, I can live without milk but cheese is my thing! Any sugguestions or help if anyone is dairy free and these were also their symptoms? Thanks! 

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Could your probiotics or vitamins have gluten in them?

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33 minutes ago, BrittanyM said:

Hi everyone! 

I got diagnosed last August after suffering from Mono. Since then things have been okay but not great. Still an icky stomach, started taking pre/probiotics and some vitamins. Now after a year a few months..for a week or two I’ve been getting migranes, sinus pressure and body aches? (Which is weird)..I’m currently putting myself on a dairy-free diet to see if it will help. I hope it does but the other part of me hopes it isnt dairy and maybe ive just glutned myself somewhere in the past week lol. I love my cheese, I can live without milk but cheese is my thing! Any sugguestions or help if anyone is dairy free and these were also their symptoms? Thanks! 

Plenty of dairy free cheese, I make own cheese sauce, I buy dairy free cheese extracts, I make my own vegan Parmesan, and I buy dairy free cheese often. I love the new leaf cuisine diary cheese spreads, the smoked Gouda is to die for. I sometimes snack on daiya cheese like yesterday I had some Daiya Havarti and jalapeno slices with my omelette. Bit of a list at the end of this, note their are more options but the ones are things I have tried and are also soy free. The dairy thing is something most celiacs only have a issue with for a few months. Some have life time issues with dairy like me, I also went and watched a bunch of anti diary propaganda and did a bunch of research to convince myself to give it up when I became lactose intolerant 10+ years ago. >.> like why do human drink cow milk....same as drinking dog milk.,...both not for human consumption why drink it when it is meant for another species. Anyway just what I confirm with myself to no touch it.

Dairy Free Alternatives to Dairy Foods

https://www.bluediamond.com/brand/almond-breeze
^ Almond, cashew, coconut, blends etc.

https://silk.com/products
^ More Almond, cashew, coconut, blends, they also offer yogurt and icecream alternatives.

http://sodeliciousdairyfree.com/products
^ They offer many coconut options, Yogurt, cheese, milks, icecream pints, icecream bars.

http://malkorganics.com/products/
^VERY high end minimally processed almond milk, one the the best

https://www.ripplefoods.com/products/
^ NUT FREE, Dairy Free options of a rich milk alternative from yellow peas (legumes)

http://goodkarmafoods.com/products/
^Flax Based milk alternatives

http://www.leafcuisine.com/raw-vegan-food-dairy-free-probiotic-cashew-spreads/
^ BEST and least processed cheese spreads, cream cheese etc. I can eat these without any issues

https://daiyafoods.com/
^Offers Vegan cheese slices, cheese blocks, cheese shreds, pizza, CHEESE CAKES!, yogurt, s

https://followyourheart.com/products/
^ Diary free and vegan, cheese, spreads, dips, dressings, condiments

https://winkfrozendesserts.com/collections/wink-frozen-desserts-pints
*^ICE CREAM by the pint AND THEY SHIP IT TO YOU, Dairy free, soy free, sugar free, PERFECT bliss I suggest getting the gluten free pastry pack

PS I have a vegan bacon cheese sauce and a vegan queso dip on my recipe blog on my profile if you want to try them both are good in other recipes like the sauce makes a excellent base in potato gratin or broccoli casserole.

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I am not able to eat dairy and it has been over three years since diagnosis of celiac.  However, I am not lactose intolerant.  My symptoms are headache, neck and back pain l, congestion and swollen joints.  I have been told it is the protein in dairy for me versus the lactose.  I have also been allergy tested and do not have an allergy.  And like you...  I LOVE cheese.  Sometimes I go for it and just know that I will suffer the consequences.  Keep a food journal because I also react to corn, oats, soy and eggs.  All inflammatory foods to boot!  Good luck.

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The casein in milk is very similar to the gluten protein, and over time the ammune  system can react to the casein as though it was gluten. This happens over time, and though you may have been able to consume dairy previously, you may have to avoid it now. Not good to suffer the consequences, it can do damage that you are not aware of.

 

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1 hour ago, PTArt said:

The casein in milk is very similar to the gluten protein, and over time the ammune  system can react to the casein as though it was gluten. This happens over time, and though you may have been able to consume dairy previously, you may have to avoid it now. Not good to suffer the consequences, it can do damage that you are not aware of.

 

Is there new legitimate research on this?  Please post a link.  I have not seen anything that proves that assumption.

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There's this study...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

On 12/12/2017 at 8:12 AM, kareng said:

Is there new legitimate research on this?  Please post a link.  I have not seen anything that proves that assumption.

 

On 12/12/2017 at 7:04 AM, PTArt said:

The casein in milk is very similar to the gluten protein, and over time the ammune  system can react to the casein as though it was gluten. This happens over time, and though you may have been able to consume dairy previously, you may have to avoid it now. Not good to suffer the consequences, it can do damage that you are not aware of.

 

 

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2 hours ago, knitty kitty said:

Knitty Kitty, 

Did you read and understand the study?  It did not say that milk proteins can trigger celiac disease (or mention cross reactions), but that they can cause an inflammatory response similar to what occurs in Celiac patients.  The study suggests this might be as a result of a leaky gut and other food proteins may cause the same effects.  We all know that celiacs tend to have too much zonulin causing “leaky gut” for a better term.  Foods, like corn, soy, etc. can cause the same effect (villi damage or symptoms)  as stated in the study.  

The milk proteins did NOT raise specific antibodies for gluten.  However, they can damage intestinal villi (as can many things besides gluten).  

https://www.verywell.com/villous-atrophy-562583

The study suggests that if celiac disease patients are still experiencing symptoms they may need to look for hidden gluten or consider a milk (or another food) protein intolerance.  

We normally suggest to people who are not recovering fast on a gluten free diet to maintain a food/symptom diary to help indentify additional food intolerances or allergies.  After all, celiac disease is under the umbrella of Hypersensitivity (Type 4) and it makes sense that we would be more intolerant or allergic than the average person.  

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15 minutes ago, cyclinglady said:

Knitty Kitty, 

Did you read and understand the study?  It did not say that milk proteins can trigger celiac disease (or mention cross reactions), but that they can cause an inflammatory response similar to what occurs in Celiac patients.  The study suggests this might be as a result of a leaky gut and other food proteins may cause the same effects.  We all know that celiacs tend to have too much zonulin causing “leaky gut” for a better term.  Foods, like corn, soy, etc. can cause the same effect (villi damage or symptoms)  as stated in the study.  

The milk proteins did NOT raise specific antibodies for gluten.  However, they can damage intestinal villi (as can many things besides gluten).  

https://www.verywell.com/villous-atrophy-562583

The study suggests that if celiac disease patients are still experiencing symptoms they may need to look for hidden gluten or consider a milk (or another food) protein intolerance.  

We normally suggest to people who are not recovering fast on a gluten free diet to maintain a food/symptom diary to help indentify additional food intolerances or allergies.  After all, celiac disease is under the umbrella of Hypersensitivity (Type 4) and it makes sense that we would be more intolerant or allergic than the average person.  

That's what I thought, too!  

I think a lorn of people are having problems with lactose.... not casein.  I know one of the above posters said low lactose foods were fine

 

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On 12/7/2017 at 4:51 PM, BrittanyM said:

Hi everyone! 

I got diagnosed last August after suffering from Mono. Since then things have been okay but not great. Still an icky stomach, started taking pre/probiotics and some vitamins. Now after a year a few months..for a week or two I’ve been getting migranes, sinus pressure and body aches? (Which is weird)..I’m currently putting myself on a dairy-free diet to see if it will help. I hope it does but the other part of me hopes it isnt dairy and maybe ive just glutned myself somewhere in the past week lol. I love my cheese, I can live without milk but cheese is my thing! Any sugguestions or help if anyone is dairy free and these were also their symptoms? Thanks! 

BrittanyM et al,

I just wanted to post this thread that might answer some of your questions about Casein/Dairy JMG had a similar question.

It has two livestrong links in it that explains well about the different kinds of Casein proteins.

I did not know there "types" of the casein protein but like you I knew I was reacting to dairy.

https://www.livestrong.com/article/495564-what-is-sodium-caseinate/

https://www.livestrong.com/article/396733-types-of-casein-protein/

according to livestrong you are out of luck if can't live without cheese if indeed casein is your problem and not lactose.

from livestrong " There is no way to make cheese free of casein proteins. Do not eat cheese if you’ve been diagnosed with a milk allergy."

but there are lactose free cheeses and they will be labeled so like the gluten free things are.

I think the study Knitty Kitty linked studied Cow's Milk . .. it might be you don't react the same to goat's milk or goat cheese since these casein's are different from CM's caseins' according to livestrong.

who knew right?

I hope this is helpful.

posterboy,

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Lactose intolerance occurs when you lack the enzyme (called lactase) necessary to properly break down the milk sugar lactose.  That undigested milk sugar cannot enter the body. But it then feeds gut bacteria producing gas, bloating, discomfort/pain.   There are no extra intestinal symptoms (this is an important point).

However, gut dysbiosis can ultimately be the result of lactose  intolerance (or any sugar intolerance).  Two things have been demonstrated to increase zonulin production (which opens the tight junctions, resulting in leaky gut): Gluten and Bacteria. SIBO (small intestine bacterial overgrowth), which can occur because of lactose intolerance, is essentially a bacterial infection of the small intestines and results in increased intestinal permeability (AKA leaky gut). SIBO can also damage the villi, making your ability to break down foods more compromised, feeding the SIBO/leaky gut cycle. 

With leaky gut you now have large proteins entering the bloodstream illicitting an immune response.  This is the cause of the extra intestinal symptoms and other protein intolerances.   

Its also worth noting that there is a fairly high prevalence of SIBO in those with celiac disease.

See this very informative lecture given by Dr. Fasano on the topic of intestinal permeability:

Zonulin, intestinal permeability and immune mediated disorders: facts and fantasies

https://cellsciencesystems.com/education/webinars/zonulin-intestinal-permeability-and-immune-mediated-disorders-facts-and-fantasies/

 

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"Activation of the adaptive immune system is one prerequisite for the occurrence of celiac disease and is reflected by the development of gliadin antibodies and auto antibodies. Our finding that, in a fraction of coeliac patients, CM protein challenge may induce an inflammatory reaction of the same magnitude, as did gluten challenge, may also suggest an innate as well as adaptive immune response to CM, and casein in particular. However, lack of increased serum antibodies to casein in our casein-sensitive coeliac patients may suggest that casein is less prone than gliadin to drive adaptive immunity."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

Adaptive as well as innate immune response to casein is possible though not as common.  Casein can cause a reaction as severe as gluten.  

http://journals.sagepub.com/doi/abs/10.1177/1082013207077954

"Rich sources of celiac-disease-potentiating peptides were wheat gliadins, barley hordeins and rye secalins as well as low-molecular weight fractions of glutenin. In addition, amino acid sequences with a high degree of identity to the toxic peptides examined were detected in maize zein, oat avenin, protein of rice, yeast and chicken muscles, as well as β-casein and galanin."

Toxic peptides in corn and oats and casein and chicken.  Interesting.  Very interesting.  

  

 

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