Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

All the symptoms, not diagnosed


Gnalif

Recommended Posts

Gnalif Newbie

The first symptoms I noticed were giant hives on feet, palms, scalp, and down spine, that would leave  extremely painful areas after disappearing. The were preceded by a metallic taste in the mouth. dermatitis herpetiformis on both arms and ankles. heart palpitations, foot drop, numb hands, hemorrhoids, pain in cecum area, the usual stool problems with extremes of both. Severe pain in all my broken bones and old injuries. Eye twitching. I did an elimination diet starting with gluten. Angioedema went away immediately, but other problems persisted. Cut out all grains soy and dairy, and other symptoms went away except for dh. Cut out canola and the dh. went away. Then i bought some store meat, fresh cuts, because I ran out of my homegrown meat, the dh came back, along with the nerve problems, so I quit eating meat until I got a pig back from the butcher. Tied that meat and the dh and nerve symptoms returned again. Note all along I was eating organic produce from my own garden, other than in winter. Went vegeterian over the summer and felt great, untill winter hit and I was forced to by food from the store. All symptoms except for the angioedem returned. This is my third winter gluten free, and I'm down to eating locally bout organic potates, organic kale from the store, bananas and avocadoes. Dh is less severe, but the stomach problems, cecum pain, and nerve issues have returned and gotten worse. I literally eat the same thing every day. I cant get tested because I am self employed and cant afford insurance, ineligible for medicare/medicaid. 33 year old male, feel like Im going on sixty. Thinking I might have to move to a country where I can grow organic produce all year around, or I might die. My wife also started having the same symptoms, but much less severe, about 6 months after me. We were buying high gluten organic wheat flour from the co op and baking our own bread before all this started. We think that might have been the trigger. Anyone have a situatiion like this.? As far as possible contamination I think its in the air in the store? I drink organic coffee, black. No spices or seasonings, no sugar, literally potatoes, kale , bananas and avocadoes. I don't know what else to cut out. I'm down to 140 pounds.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
1 hour ago, Gnalif said:

The first symptoms I noticed were giant hives on feet, palms, scalp, and down spine, that would leave  extremely painful areas after disappearing. The were preceded by a metallic taste in the mouth. dermatitis herpetiformis on both arms and ankles. heart palpitations, foot drop, numb hands, hemorrhoids, pain in cecum area, the usual stool problems with extremes of both. Severe pain in all my broken bones and old injuries. Eye twitching. I did an elimination diet starting with gluten. Angioedema went away immediately, but other problems persisted. Cut out all grains soy and dairy, and other symptoms went away except for dh. Cut out canola and the dh. went away. Then i bought some store meat, fresh cuts, because I ran out of my homegrown meat, the dh came back, along with the nerve problems, so I quit eating meat until I got a pig back from the butcher. Tied that meat and the dh and nerve symptoms returned again. Note all along I was eating organic produce from my own garden, other than in winter. Went vegeterian over the summer and felt great, untill winter hit and I was forced to by food from the store. All symptoms except for the angioedem returned. This is my third winter gluten free, and I'm down to eating locally bout organic potates, organic kale from the store, bananas and avocadoes. Dh is less severe, but the stomach problems, cecum pain, and nerve issues have returned and gotten worse. I literally eat the same thing every day. I cant get tested because I am self employed and cant afford insurance, ineligible for medicare/medicaid. 33 year old male, feel like Im going on sixty. Thinking I might have to move to a country where I can grow organic produce all year around, or I might die. My wife also started having the same symptoms, but much less severe, about 6 months after me. We were buying high gluten organic wheat flour from the co op and baking our own bread before all this started. We think that might have been the trigger. Anyone have a situatiion like this.? As far as possible contamination I think its in the air in the store? I drink organic coffee, black. No spices or seasonings, no sugar, literally potatoes, kale , bananas and avocadoes. I don't know what else to cut out. I'm down to 140 pounds.

Wow!  I am sorry that you are so sick!  I realize  gluten may be an issue for you, but perhaps you might have issues with Lyme Disease?  I read that ticks can cause a meat issue.  Research Mast Cell Activation Disorder too since you struggled with swelling and hives.  

Let’s hope someone else has some suggestions.  

I wish you well! 

Link to comment
Share on other sites
Victoria1234 Experienced

If you have been diagnosed with DH, it means you have celiac. Just an FYI.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,173
    • Most Online (within 30 mins)
      7,748

    Art34
    Newest Member
    Art34
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
    • Denise I
      I did reach out to them on April 4th and left a message. I will try calling again. Thank you!
    • trents
      PPI's can be a wonderful healing agent when used as prescribed on the label which I believe recommends use of up to 8 weeks. But they are like antibiotics in that they are overprescribed and undermonitored. Docs generally prescribe them and then keep prescribing them because they take care of immediate symptoms so well. Physicians are more into treating symptoms than uncovering causes.
×
×
  • Create New...