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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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In 2013 I went in to my gasto dr. after continued abdominal pain. He did a Celiac panel b/c I requested it. I had tried a 3 day gluten-free diet prior to my test. My results were:

tTg IGA 35U/ml ref 0-15

 

The dr did not read my test result before doing an endoscopy. All I know is I feel better without gluten so I live gluten-free but i just want to know what these tesults mean

965D5E5B-AC38-40D7-BBD8-7A5578781D2E.jpeg

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10 hours ago, Amber C said:

In 2013 I went in to my gasto dr. after continued abdominal pain. He did a Celiac panel b/c I requested it. I had tried a 3 day gluten-free diet prior to my test. My results were:

tTg IGA 35U/ml ref 0-15

 

The dr did not read my test result before doing an endoscopy. All I know is I feel better without gluten so I live gluten-free but i just want to know what these tesults meanimageproxy.php?img=&key=1feb3715dcf3f684

965D5E5B-AC38-40D7-BBD8-7A5578781D2E.jpeg

As the test says, your TTG results indicate that you could have celiac disease and that the next step would be to get an endoscopy to obtain intestinal biopsies.  But it sounds you did not do that or that your biopsy was negative.  

You have been gluten free for years.  Do you suspect that gluten is not an issue for you?   What made you look at the old test result?

 

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I had an endoscopy it was negative or didnt show damage to the villi. he didnt read my blood work before performing my endoscopy, and called me back telling me that my blood work was positive but that he was just going to keep my diagnosis of IBS. i have been living gluten-free i just would like to know if his IBS diagnosis is accurate bc i keep hearing that if i eat gluten-free and do not need to i may do myself more harm than good.

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And i am now anemic and just want to make sure that my gluten-free lifestyle is necessary and what i need to do

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You could try the gluten free diet for six months then have your antibody levels remeasured.  If the  tTG IgA goes down, it would suggest that gluten was causing your body to make that antibody.  Celiac damage can be missed in an endoscopy.

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I take it you have been gluten free since the test in 2013?

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yes but i’m experiencing some fatigue and anemia so i wanted to make sure that i am going the right route

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Then are you positive you aren't getting cross contaminated somewhere? I take it the anemia is reflected in blood tests? Read the Newbie 101. It will help you determine if you really are as gluten free as you think you are.

 

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On 12/15/2017 at 3:56 PM, Amber C said:

I had an endoscopy it was negative or didnt show damage to the villi. he didnt read my blood work before performing my endoscopy, and called me back telling me that my blood work was positive but that he was just going to keep my diagnosis of IBS. i have been living gluten-free i just would like to know if his IBS diagnosis is accurate bc i keep hearing that if i eat gluten-free and do not need to i may do myself more harm than good.

Well, the gluten free diet will not hurt anyone really.  The problem is that people who go gluten free often trade one bad food for another — like cookies for gluten free cookies.  Neither is really healthy for you.  If you eat a varied diet of meats, fish, poultry, veggies, fruit, nuts, good fats and gluten free grains, you will be fine.  

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