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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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I've got the Enterolab test kit, but won't be sending it in until probably tomorrow. So I'm highly suspicious about things, but don't have anything confirmed yet. So here's a question for you all, because now I'm puzzled.

I've been mostly gluten free (the obvious stuff) since Thanksgiving. On Friday I broke down at my favorite restaurant and had quite a bit of their unbelievably fabulous white French bread, plus a dessert that undoubtedly had gluten (small cream puff things). Saturday I seemed OK, no huge reaction yet. Today (Sunday), after my usual egg breakfast, about an hour or two later I just started feeling terrible with a set of symptoms I've had numerous times before (although not all the time). Upset digestive system, going lots of times with semi-D, horrible stomach pain, just HURTING like crazy, and feeling nauseated. This all took about 4 hours to pass, and now I'm feeling better although I'm afraid to eat.

SO....could a gluten reaction take a full day+ to show up? I ate dinner Friday night about 7:00, so this is about 36 hours, and oddly enough, it didn't really get full blown until I ate breakfast. I eat eggs all the time, so shouldn't have been that.

Whenever this type of reaction has occurred before, I had always assumed it was from something I had quite recently eaten...the previous meal...but sometimes what I ate didn't make sense. But if reactions can be delayed 36 hours, that's a different matter and I'm wondering if any of one have had this happen.

Also...my "reactions" seem to vary....usually digestive upset, but sometimes just nausea or nausea and D, and the burning hurting is more occasional but I've never figured out what caused it.

I'll be glad when I get the Enterolab results so I know SOMETHING definite.

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Oh yeah, that is not at all unusual. My symptoms vary to right off the bat to 24 hours, and then the symptoms vary so it's hard to pinpoint the culprit. As a matter of fact, it took me months to realize that the styrofoam tasting wafer at communion was wheat! DUH! Now my symptoms are more neuralogical (brain fog, headache, crushing fatigue) than physical. The D has turned to C. That's what makes this such a 'fun' disease. Hope you get your answers soon!

Annette

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As a matter of fact, it took me months to realize that the styrofoam tasting wafer at communion was wheat! DUH! Annette

So what do you do about communion now Annette? I've been wondering about what I'll do when I go gluten-free.

Susie

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So what do you do about communion now Annette? I've been wondering about what I'll do when I go gluten-free.

Susie

I'm Lutheran, so I'm able to substitute any non-leaven cracker for the communion wafer. I've been using Ka-me rice cruunch crackers, plain. I would break one up and give a small portion in a wax paper envelope that I'd staple together to my pastor for him to bless with the rest of the communion wafers. And only a small portion since the wine in the individual cups is barely more than a sip. I figure anything would work, so long as it was non-leavened. My brother is Roman Catholic now, and I went to my niece's first communion. There they allow everyone to take communion, but of course I didn't because substitution with a gluten-free wafer isn't allowed. There are online places to order your gluten-free wafers, but talk with your pastor to see what is allowed by your church.

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