• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Barley Grass And Wheat Grass
0

26 posts in this topic

I am really wondering about the juice from the grass only of barley and wheat. I was told by a doctor that they DO NOT contain gluten - that only the grain part of the plant contains gluten. If this is true, then it would open up a lot of vitamins and healthy "green drinks". If the doctor was wrong, then he's wrong, but I don't want to avoid something unneccessarily.

I'm wondering if it's like being allergic or intolerant to milk and avoiding beef because it comes from the same basic source. Would this make sense? (I don't think so.)

Does anyone KNOW for sure? I've tried looking it up and haven't had much luck or time.

Liz

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


you can't *know* for sure, because of the process. as the grain sprouts, it uses up the energy stores that it's been holding - that includes the protein. it appears that what it gets metabolized into (the final, fully mature blade) does not contain the same proteins. but, when dealing with things made from wheat grass, you have to ask: is the blade fully mature, having used up *all* of the protein in the original grain? the process of using the energy in the grain is gradual - how do you know when it's "done"? is the grass harvested so cleanly that *no* grain particles are harvested along with the blades?

0

Share this post


Link to post
Share on other sites

One of the things that happened to me that made me start noticing wheat as being a problem for me was when I almost passed out after drinking wheat grass. Which was scary because I was home alone with my 1yo and 2.5yo. Who know what they could have gotten into. :blink:

Nancy

0

Share this post


Link to post
Share on other sites

The only people who I have ever heard say they are safe are non-celiacs. I wont take the chance. My sister is a dietician and she had a discussion with someone about wheat and barley grass and she told him that until he was celiac and could prove it didnt do damage, then she wasn't trying it. She has celiacs too. So, I will never even try it. Personelly, I dont understand why anyone would want it anyways! Deb

0

Share this post


Link to post
Share on other sites

I agree with Tiffany...even if the protein has been eliminated--what a risk for contamination! I use products with wheat or barely or oat grass. Which is a bummer, b/c I had some great vitamins w/them once :(

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for the responses. I just realized that my vitamins have barley grass juice in them - had run out for about 6 weeks and just got more. I guess I'll pass them on instead of taking a chance.

0

Share this post


Link to post
Share on other sites

Watch out for VEGA bars. They say gluten-free but they have wheat grass in them!

0

Share this post


Link to post
Share on other sites

I tried a protein/whey powder with "greens" including barley grass

container SAYS "gluten free"

BUT I get a (mild, but quite noticeable) reaction

So I'm steering clear for now

0

Share this post


Link to post
Share on other sites

I was at wholefoods last night and was looking at green drinks. I complained to DH audibly that they all had wheat grass in them and this lady next to me said "Well wheat grass is good for you". I explained that I was allergic to gluten and she looked at me like I was crazy and told me that wheatgrass is gluten free. It just seemed very counterintuitive to me that anything with wheat in the name would be safe so I didn't buy it and come here to check it out. Nice to know that I'm not crazy. Just the CC risk is mind boggling.

0

Share this post


Link to post
Share on other sites
I was at wholefoods last night and was looking at green drinks. I complained to DH audibly that they all had wheat grass in them and this lady next to me said "Well wheat grass is good for you". I explained that I was allergic to gluten and she looked at me like I was crazy and told me that wheatgrass is gluten free. It just seemed very counterintuitive to me that anything with wheat in the name would be safe so I didn't buy it and come here to check it out. Nice to know that I'm not crazy. Just the CC risk is mind boggling.

Hi Psipsina,

It is hard to know who to trust these days. :rolleyes: I would certainly check it out anyway. I also had a lady tell me that something did not have gluten in it at whole foods the other day.... I think it was sorghum. :) I've only been with this for a short time, so I"m learning too.

Here is what I found: I'll post here and the link is at the bottom if you want to check it out.

0

Share this post


Link to post
Share on other sites

I ask Clan Thompson this question awhile ago. I don't have the relpy any longer but the message was clear...... STAY AWAY FROM WHEAT GRASS, now I didn't mention Barley grass but my guess is the answer would be the same.

Hey, Jenvan, its good to see you on here again.... How are you...I've missed chatting with you!!!

blessings

mamaw

0

Share this post


Link to post
Share on other sites

Well, ;)

It seems that some say it is okay and some say it is not. Whom do we believe on this?

0

Share this post


Link to post
Share on other sites

The seed planted contains gluten. If it is allowed to continue to grow, a seed/kernel will form that contains gluten. The stalk never contains gluten.

If you are sure the wheatgrass was harvested prior to seeds forming at the top and that it was cut and no roots (the partially used up gluten in the seed alluded to in an earlier post) were pulled up, you will have gluten free wheatgrass.

While this is a celiac message board by title, there are people here who avoid gluten for other reasons. If you have a wheat allergy - which can occur with and without celiac - you have reason to avoid wheatgrass regardless of gluten content.

The disagreement seems to be between technically gluten free and the high risk of cross-contamination.

0

Share this post


Link to post
Share on other sites
Well, ;)

It seems that some say it is okay and some say it is not. Whom do we believe on this?

Your body.

Challenge it by taking it at least 3 times a day with no other suspect items for a week. If after a week you still feel fine then that particular brand of that item will be something you can add.

0

Share this post


Link to post
Share on other sites

Tim n Va has the good definition.. I for one would not take a chance.

I have asked other doctors who said stay away from it why take the risk.

I agree with Tim how do you prove there is no CC...

mamaw

0

Share this post


Link to post
Share on other sites
Tim n Va has the good definition.. I for one would not take a chance.

I have asked other doctors who said stay away from it why take the risk.

I agree with Tim how do you prove there is no CC...

mamaw

This is what I'm thinking too. There's no way to guarantee no cross contamination and my gluten reaction isn't worth the risk. I guess I'll be juicing at home instead of buying all the green juice products that are on the market with this in it.

0

Share this post


Link to post
Share on other sites

Well,

I did try it as I'm a glutton for punishment. I got really sick twice. I don't remember ever being that sick over something......... I thank the Lord for Activated charcoal. It was the only thing that got me cured from the severe sick stomach and pains almost like ulcer pains.

So, I'm back to my own home made green drinks that never gave me any problems at all.

ML :)

0

Share this post


Link to post
Share on other sites
One of the things that happened to me that made me start noticing wheat as being a problem for me was when I almost passed out after drinking wheat grass. Which was scary because I was home alone with my 1yo and 2.5yo. Who know what they could have gotten into. :blink:

Nancy

I know this post is fairly old, but I do want to make a comment to it.

Passing out after a wheat grass "shot" or consuming it as an additive in a drink is a common side affect of drinking it too fast. Many people get over this symptom and just get a funny kind of high off it after their second or third shot. Wheat grass would be gluten free if it contained no seeds or grain sprouts on the tops. You can monitor the growth of the shoots for proper harvesting to assure a gluten free ingredient.

I wouldn't doubt that people with allergies to wheat would want to avoid this all together, but Celiac's is not a wheat allergy so Celiac's should be safe with avoiding the seeds and grain sprouts.

0

Share this post


Link to post
Share on other sites

I was always under the assumption that wheat grass is natural therefore edible by Celiac standards. Where as Gluten is the process of combing processed flour and water. Now I should preface my knowledge with the fact that my research is limited as I was diagnosed only 4 months ago. Any feedback?

0

Share this post


Link to post
Share on other sites

An argument can be made for its safety as well as the chance of cross contamination.

Sounds like Russion Roulette to me.

0

Share this post


Link to post
Share on other sites

Hi Brendan,

Gluten is not an unnatural product. It is a protein naturally occuring in some grains. It is often manipulated / processed and ends up with different names as ingredients. But the basic stuff is all natural and the natural stuff (gluten protein) is a problem for celiacs. Some celiacs avoid processed foods because gluten can be hidden as ingredients with other names, and because of possible cross contamination. It is easier to avoid it by using more natural, minimally processed or raw food products, than trying to weed out every possible contaminated ingredient in processed foods. At least it is for me. Some people have other food sensitivities in addition to gluten also, and avoid processed foods because of them. Personally I am trying to steer clear of gluten, dairy, yeast, nitrates and tornadoes.

Welcome to the celiac world! :)

0

Share this post


Link to post
Share on other sites

Two words : Cross Contamination

If we can not have oats because of cc, how in the world can we have wheat and barley products sans gluten?

Until I see actual certified gluten free wheat and barley grass, I would NEVER consider consuming it.

Stick with Nori if you want an excellent green, natural supplement!

0

Share this post


Link to post
Share on other sites

Hi folks.

If anyone is still curious about this topic. I bought Amazing Grass Organic "Amazing Trio" Barley Grass, Wheat Grass & Alfalfa Whole Food Drink Powder, which is labelled Gluten Free & Raw.

And, right now (2 days after drinking it), after having put it in a juice, I feel very raw on the inside! :blink: I'm not 100% sure that this caused a reaction, but it seems the overwhelmingly likely candidate, as I am very strict and careful with what I eat. And, I haven't had a reaction like this in years.

I also have post-herpetic (post-shingles) neuralgia, and after two days feel like I was in the ring with Joe Frazier, with a lot of serious diarrhea.

One spoonful of this gave me a major reaction. I have no idea how they separate the seed kernel and the roots from the stalk, but something is amiss!

They note on their website:

"Q.Are Amazing Grass products Gluten Free?

Yes, Amazing Grass products are gluten free. Our cereal grasses are harvested prior to jointing, before the grain forms and any gluten is present. We test for gluten and our products are enjoyed by people worldwide with gluten free diets including celiac disease. Please note, our Energy Bars are manufactured in a plant that processes wheat, milk, eggs, soy, peanuts and tree nuts."

I don't know how they are testing for gluten, but I'd say avoid this is you don't want take the chance.

good luck!

Seosamh

0

Share this post


Link to post
Share on other sites

The problem is the grass started from a seed which of course contains our problem. When they're talking about things in terms of ppm, parts per million, or gliaden or gluten protein molecules, how can you take a chance. Granted some are more sensitive than others but after y years of being celiac there is no chance I would ever try wheat or barley grass juice. I drink green juice many times a week but I make my own with kale and celery.

Hi folks.

If anyone is still curious about this topic. I bought Amazing Grass Organic "Amazing Trio" Barley Grass, Wheat Grass & Alfalfa Whole Food Drink Powder, which is labelled Gluten Free & Raw.

And, right now (2 days after drinking it), after having put it in a juice, I feel very raw on the inside! :blink: I'm not 100% sure that this caused a reaction, but it seems the overwhelmingly likely candidate, as I am very strict and careful with what I eat. And, I haven't had a reaction like this in years.

I also have post-herpetic (post-shingles) neuralgia, and after two days feel like I was in the ring with Joe Frazier, with a lot of serious diarrhea.

One spoonful of this gave me a major reaction. I have no idea how they separate the seed kernel and the roots from the stalk, but something is amiss!

They note on their website:

"Q.Are Amazing Grass products Gluten Free?

Yes, Amazing Grass products are gluten free. Our cereal grasses are harvested prior to jointing, before the grain forms and any gluten is present. We test for gluten and our products are enjoyed by people worldwide with gluten free diets including celiac disease. Please note, our Energy Bars are manufactured in a plant that processes wheat, milk, eggs, soy, peanuts and tree nuts."

I don't know how they are testing for gluten, but I'd say avoid this is you don't want take the chance.

good luck!

Seosamh

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,677
  • Member Statistics

    • Total Members
      63,884
    • Most Online
      3,093

    Newest Member
    Mato Sapa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Similarly, I've been vegetarian for 25+ years.  A 2015 Nature study connecting emulsifiers with microbiome changes has me wondering about the processed foods that I ate in the past, and I wonder about the wisdom of eating as much seitan as I did.  I mostly prefer my post-diagnosis diet since it forces me to consider every ingredient and to cook from scratch more.
    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
    • I don't know what you drank or where.... so here are a few thoughts. - sure, a dive bar might have dirty glasses and serve a cocktail in a beer glass?  But a nice reminder place, with a dishwasher, should be fine.  If it's a sketchy place, Stick to wine, then it's served in wine glasses that aren't used for beer or bottled ciders in the bottle.   - ciders on tap might, just a slight chance, have an issue.  Because of beer on tap, mixed up lines, etc. - you may have a problem with alcohol - you may have issues with The  high sugar content of the drink.  I know I have similar issues if I drink serveral ciders of extra sugary brands - are you positive it was a gluten-free drink?  Not this " redds Apple" pretending to be a cider - it's beer with apple flavor.  Or one of those " gluten removed " beers?  
  • Upcoming Events