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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

A Good One In Anchorage
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5 posts in this topic

Yesterday I met with my gastroenterologist for the first time. His name is Dr. Boisen in Anchorage, Alaska. He was great! He had heard of Dr. Fine and his research, and he accepted the Enterolab results, so I have my biopsy on May 13. He does the endoscopy himself and sends the samples to a lab in Dallas that specializes in celiac. I feel confident that when the results come back I will know for sure whether it is celiac or not.

So there are a few good ones out there.

Lisa

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Hi Lisa,

That's great! I also have lab results from Enterolab as well as an at-home blood test from York Labs. I have my appt with a new gastro on Thursday. I am a little nervous about it. You hear so many horror stories about doctors basically just laughing at us. But you know, that's why I went the Enterolab route in the first place; I was scared to bother my doctor with my "petty" concerns and sure enough, Dr. Fine's results came back positive. So I figure, I have to follow up, don't I? I have to try not to be nervous....ugh...

Do you mind me asking what were your Enterolab results? I'm trying to get a sense of what his numbers are like compared to people's symptoms and other blood tests as well as biopsies.

I came back with 269 (normal <10) for the Anti-gliadin

and 121 (normal <10) for the tTG, which seem pretty high compared to some other numbers other people have shared. But, I don't seem to be having a lot of symptoms. I have low energy, depression, and easy bruising, but not the classic gastro symptoms. My York Labs blood test came back high for Anti-gliadin.

When is your endoscopy? Keep me posted...looks like we might be on a similar route/timeline with this. I'll let you know how my gastro appt goes.

Stay healthy,

Laura in CT

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Laura,

Here are my Enterolab results:

IgA gliadin: 16 (normal < 10)

IgA TTg: 16 (normal < 10)

Fecal Fat: 425 (normal < 300)

I have the HLA-DQ2 gene

My numbers are quite low, but I had only been eating gluten for 6 weeks. My diet before was mostly high protein/low carb so I was not eating a lot of grains. I discovered I had a problem with wheat when I blew my South Beach Diet at Christmas time.

I am atypical with my main complaints being: upper back pain, achy bones, memory loss, unable to concentrate, irritability, headaches, and anxiety/panic disorder.

The only gastro symptoms I have are bloating, gas, and occasional nausea.

He tested me for anemia and I am pretty sure that I have the beginnings of osteoporosis causing the upper back pain and slight scoliosis.

My biopsy is scheduled for May 13 with a follow up on May 18.

I was very nervous about my appointment. I came prepared with general celiac information from celiac.com, and I rehearsed endlessly in my head what I was going to say. He turned out to be very knowledgeable about celiac and seemed to appreciated the fact that I was so informed. How cool is that! I definitely lucked out.

Keep us up-to-date on your progress.

Lisa

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Holy COW Lisa

I see Dr. McCLenden, Dr. Boisen's partner. He told me today he had never ever heard of EnteroLab and would NOT recommend I use them! I am SO GOING TO CALL HIM TOMORROW and let him know this little tid bit about Dr. Boison. This is going to be so fun! Maybe I should request my next appt with Doc Boison?????

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Hi all,

my doc also accepts EnteroLab. He even asked me, if I need something written from him to do the tests there. :lol:

Stef

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