• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Disney World
0

25 posts in this topic

My husband, myself & our daughter are planning a trip to Disney World in June & we were wondering what we might run across as far as gluten free food. Anyone have any info on the food there or been there & know from experience? Thanks for any help you can give us.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Do a quick search on this message board - I remember seeing quite a few VERY positive posts about eating gluten-free at Disney World.

0

Share this post


Link to post
Share on other sites

I tried that first but didn't find much. I'll try again. Thanks! I'd love to hear something positive about going to Disney World as far as food is concerned.

0

Share this post


Link to post
Share on other sites

I was wondering about this a while back myself. I found that Disney World does a great job at providing for gluten-free dining.

Here's the search page on the Disney World official webpage. http://searchb.disney.go.com/disneySearch?...n&q=gluten&ad=0

They also will accomodate the kids if you want to do one of those Character Dining things where they get to have breakfast with Cinderella. Back when I was looking at this, I came across a post somewhere out there on the web about someone's child being treated really special when they were presented with their special gluten free food.

You can probably email Disney World and get a list of gluten-free items at the different places because it looks like just about every restaurant there has some sort of gluten-free option. It would be nice to know what is safe for on-the-go eating, as well as restaurants.

You'll have to give us a full report when you get back!!!

Nancy

0

Share this post


Link to post
Share on other sites

eating at disney world is AMAZING! every restaurant will accommodate (just tell them gluten-free when making a reservation) and i've had great luck also when we just walked into a restaurant without a reservation.

at the parks, the popcorn is gluten-free and sooo good! in magic kingdom, there's a stand in frontier land that sells only mcdonalds fries (literally no other food is sold there). i'm usually saving room for a great dinner at a restaurant so i just snack on popcorn during the day. me and my mom always stay at grand floridian and room service is AMAZING about accommodating me. they even made me a gluten-free mickey shaped waffle! they really understand not just gluten-free, but also cross contamination (our hotel chef told me he uses all separate cooking pots/utensils).

i really can't speak highly enough. what's so much fun is that at home i pretty much just eat out at the same few restaurants and always end up with the same stuff (plain steak, potato, etc). at disney you can eat at all types of restaurants, even italian! (they have gluten-free pasta) and really experiment with foods and sauces.

all in all, i can honestly say one of the big reasons my mom and i keep going back (i'm 25 now) is that it's so easy and fun to eat gluten-free down there.

some of my fave restaurants are the one at the wilderness law (i forget the name), CA grill at contemporary hotel, and the flying fish cafe at the boardwalk.

enjoy !!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Call the Disney dining number and ask for info. You won't find a better place for eating with dietary restrictions.

richard

0

Share this post


Link to post
Share on other sites

Disney World is the best place to go on vacation!!! Even the value resorts are completely stocked with gluten free foods (pizza, pancakes, macaroni and cheese). There is gluten free food available at all table service restaurants and even the counter service restaurants have gluten-free pizza and information on all allergens. Most sit down restaurants had bread and dessert avaiable. I contacted every restaurant before hand and spoke with every chef. They asked what kind of food I liked and made sure to have everything I wanted available. I am planning my next trip and I absolutely cannot wait. At disney I never felt like a weirdo discussing my dietary needs. Enjoy your vacation!

0

Share this post


Link to post
Share on other sites

Sheeesh...I'm really wanting to go to Disney World after reading these posts! When I get better that may be the first vacation I take! :D

0

Share this post


Link to post
Share on other sites

Well, I'm getting really excited now. Every place should cater to food allergies like it sounds they do.

0

Share this post


Link to post
Share on other sites

We just got back from our first trip to Disney. We went last week for 5 days. Myself and my two daughters aged 3 and 5 are Celiac. We also eat casein free, peanut and tree nut free. One word about our experience....AMAZING!!!!! I swear, I would live in Disney if I could! I felt like a normal part of society there. My children felt like princesses. The gluten free options are too numerous to list. They have a contact person at Disney who deals specifically with allergies. She sent me a list of all of the gluten free items in the parks at the quick stands - not only that, it lists all of the items ingredients! I'll give you just one example....We had dinner at the Liberty Tree Travern (character meal) in the Magic Kingdom and we had:

Salad with dressing

gluten free bread with casein free margarine

entree: sliced roast beef, ham, turkey, mashed potatoes and gluten-free gravy, vegetables

chocolate brownie with gluten-free/cf ice cream!

I felt sick when I left because I had eaten so much! I rarely get that 'full' feeling anymore. I was giggling for hours after that meal!

Please e-mail me if you'd like and I can let you know every place we ate. I have so much to say about all of the restaurants we ate at. And we never eat out at home, so I was nervous. Everything was a dream! It was a 'magical' time, as they say at Disney! We ate lunch and dinner at a restaurant every day for 5 days and none of us got sick!

My e-mail is kfanelli@mac.com

0

Share this post


Link to post
Share on other sites

I went in 2004 and they were wonderful. I didn't have to do too much in advance. Just a few days before my visit, I picked where I wanted to eat and called the reservation line that covers all parks. I did have to make reservations, but had two good meals in the Magic Kingdom and one great one in Epcot. At the Magic Kingdom I ate at a place in Hometown Square that is a pasta place (sorry don't remember the name). It is themed with Lady and the Tramp stuff. At that location the chef came out to talk to me and took my order, I had rice spaghetti with gluten free meatballs. They also had really good Cybros rolls for me all wamed up and toasty. That same night we were at the Liberty Inn which was a character dining (fun even though we were two adults). Again the chef came out and spoke with me ahead of time and brought me each course of the meal. They even had a wam gluten free brownie for me while my husband was eating regular apple pie...so that didn't bother me since I had the brownie. Then at Epcot, we went to the German Biergarten restaurant...which wasn't as easy to find things to eat, but my husband wanted to go there. At that location, the chef came out and went over everything on the buffet with me as to what I could have and what I could not have. SO overall, it was wonderful and it was great knowing I would be taken care of. I have heard that the turkey legs they sell on carts in the park are gluten free and they used to say the McDonald's fries they sell are too, but I am sure you have heard McDonald's is no longer saying they are gluten free. So good luck and have fun! I know this is long, but I hope it helps.

0

Share this post


Link to post
Share on other sites

I posted a thread about this in the dining out forum (sorry, I was new then). This was some of what I said there. You can find it under "Fabulous Walt Disney World Experience". I reviewed a lot of our experience there. It was wonderful. Hope this helps! (It was on pg. 7 of the dining out forum as of last night)

In response to the question about animal kingdom and magic kingdom:

http://allearsnet.com has a whole section of info. on the gluten free Disney experience

I cannot remember exactly where it was, somewhere under dining.

It had phone numbers for chef's and other tips. Here is some info. that I still had on it:

Animal Kingdom

Restaurantosaurus:

Mc Donalds French Fries - designated fryers

Salad - gluten-free/ dairy-free

Burgers - 100% all beef, no fillers

Petri-Fri:

Fries- designated fryers

Asia:

Hot dog and fries (no bun, of course )

Stir fry- gluten free

Turkey Leg Cart:

gluten free

(Between Flame Tree Bridge and Asia)

Flame Tree:

Ribs- gluten-free/dairy free

Chicken - gluten-free/dairy free

Salad- gluten-free/dairly free

(We ate here! It was a counter service restaurant. Ask for the mananger, explain that it needs to be uncontaminated. We had no problem, he was used to it. It was very good and reasonable.)

Carts

Strawberry juice bars

orange juice bars

frozen lemonade

Africa

Fruit stand

Tuskers

Rotisserie Chicken

Grilled Salmon

This is all of my info. on Animal Kingdom. We were only there once. Of course, check it out as you go to make sure everything is still the same. Remember to make priority seating reservation for any sit-down meals before leaving home. YOU WILL NOT BE ABLE TO ONCE THERE UNLESS YOU LUCK UP ON IT. The name of the excutive chef for that park at the time of our visit was Chef Robert R. Adams (407) 938-2441.

The Disney Dining Priority Seating # is (407) 939-3463

Tell them first thing that you have special needs, they will mark it in the computer and make sure you are taken care of.

Magic Kingdom

Executive Chef (407) 824-5967

Tony's Town Square:

gluten-free pancakes, bacon, eggs, fruit

gluten-free pasta AND MEATBALLS, bread

My son loved this meal! We ate dinner there, the meatballs were YUMMY.

Liberty Tree Tavern ? It is listed, but no menu.

The Castle (I cannot remember the restaurant name):

This is where he ate the rolls! I cannot remember what else.

Sleepy Hollow:

caramel corn

Aloha Isle:

Pineapple Dairy swirl

Cosmic Cafe:

rotisseri chicken

all beef hot dogs and hamburgers

Main Street Ice Cream Shop:

ask manager for gluten free from the back

hamburgers, hot dogs (w/ no bread), ketchup, Turkey legs, frozen lemonade, snow cones, Orville Redenbacher popcorn, frozen banana, Mickey shaped pops with vanilla ice cream and choc., Nestle's Itsakadoozie ice treat, baked potato - all gluten free

Fast Food counters keep a book that shows pictures of each food item and lists the ingredients.

Chef Mickey's is in the Contemporary Resort (the one the monorail goes through), and is easy to get to from the magic kingdom. They were wonderful.

I hope this is helpful to you.

I would recommend going to AllEarsNet for the whole scoop if you can.

0

Share this post


Link to post
Share on other sites

My family will be going to Disneyland in March. I phoned the reservation line regarding a charcter breakfast reservation. I spoke with her regarding my gluten-free diet. She was very aware of celiac and put me thru to the head chef. Chef Chris phoned me back and listed everything we could have. I suggest you call. Your mind will be quickly put to ease once you realize they really do understand celiac dining! Have a great time!

Hez

0

Share this post


Link to post
Share on other sites

I called & made the reservations for eating. They were very helpful & said any restaurant would be able to help us when we get there if we just ask for the chef that he will come over & let us know what can & can't be ordered. We are super excited & I think my husband will leave there full & happy.

0

Share this post


Link to post
Share on other sites
I called & made the reservations for eating. They were very helpful & said any restaurant would be able to help us when we get there if we just ask for the chef that he will come over & let us know what can & can't be ordered. We are super excited & I think my husband will leave there full & happy.

Disney was so accomodating to my gluten-free diet last month when we were there. They were truly AMAZING! I could eat in the parks, at a quick service or at a sit down fancy dinner, Disney makes it all about you! We loved it so much we bought in to the Disney Vacation Club and will now be going every year even twice a year sometimes. Have a great time!

0

Share this post


Link to post
Share on other sites

This is so great to know! My sister lives in Orlando and we will be going in October for her wedding (taking my soon to be 2 year old for her first time to the Magic Kingdom). I am so glad that they are so accomodating and look forward to visiting my sister more now!

0

Share this post


Link to post
Share on other sites

well i can definatly tell where im going to go on my next vacation sheesh sounds like a gluten free paradise

0

Share this post


Link to post
Share on other sites

okay, so I was reading because I was curious, I really want to take the girls now!! (okay I really wanted to take them before since I haven't been either, but now I REALLY REALLY want to go) it's going to be magic for them. I know it now.

how cool. I am so excited :D (although we can't go until next year)

0

Share this post


Link to post
Share on other sites

It seems like our whole trip will be gluten free since I did a posting on Atlanta places to eat also since we are stopping there for a few days on our way down. Thanks everyone!

0

Share this post


Link to post
Share on other sites

Does anyone have any recommendations of what hotels to stay at in Disney? After reading this, I want to stay at a Disney owned hotel when we go in Oct. (since they will have gluten-free food for me) :D

We will have a 2 year old with us so need someplace that will have a play area and cool pool for her, but also want something that is fairly nice for my husband and I (not that any Disney hotel wouldn't be) and want to keep it under $200/night. Any suggestions would be appreciated :)

0

Share this post


Link to post
Share on other sites

We are staying at Port Orleans Riverside & it looks to fit that exact description. If you go to the Disney site or allears.net they have a ton of info. I also read up at epinions.com about the different Disney hotels.

0

Share this post


Link to post
Share on other sites

mcdonalds just lost there contract with diseny permamently because disney does not want to have anything to do with child hood obesity. So no more frys in the park :(

0

Share this post


Link to post
Share on other sites

Well they weren't going to be eaten anyway by any of us I'd say.

0

Share this post


Link to post
Share on other sites

Disney was totally wonderful for my family too! We went there last Christmas and every place was so accommodating. My mom and I brought some snacks with us, but as far as lunches and stuff, we just asked and they took care of us. There was one place in MGM that specially made portobello mushroom "burgers" for us because their hamburger meat had something with wheat in it. (We'd told them that we could have hamburgers with no bun if their meat was gluten-free). It was so delicious and they were great about it!

Have fun in Disney!

0

Share this post


Link to post
Share on other sites

Great! I love to hear about good experiences like that.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,467
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events