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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Guest cainepole

Skin Color Purple

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Guest cainepole

I am new to the boards here so, let me introduce myself. I'm 26 & 120 and was diagnosed with celiac disease almost a year ago but have probably had it my whole life considering previous misdiagnoses. Along with my symptoms of celiac disease one thing my doctor and I haven't figured out is my purple skin tone. With my size and color I look like a corpse, which is fine for Halloween but, this is year round. Even if I tan my skin stays tinted dead purple. Anyone have any advice? :huh:

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one of my twins is really thin (actually they both are but one is 15-20 lbs heavier than the other) anyway, the thinnest one quite often gets blue lips and blue hands, but it is usually when she is cold---even if the rest of us aren't cold.

christine

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I would suggest a full blood work panel to see what difficencies that you may have. Perhaps a vitamine inbalance. Those of us with celiac, it is always good to do that several times a year to make sure that we are getting what we need to have our body function as well as it can.

Lisa B.

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...purple skin tone...

There is an autoimmune condition called dermatomyositis, although this presents itself more in purple patches. Since many autoimmune conditions can be triggered by gluten, could there be a connection?

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Guest cainepole

I still haven't gone to the doc for a full blood work up. A friend of mine with Lupis said that I might not be getting enough Beta Carotene and suggested Burt's Bee's carrot oil lotion, this does not seem to be helping so I guess it is time for that blood work up. If I can get the cash together soon I'll let all of you know what the results are. Another suggestion that was made to me was low capilarairy response, does anyone know more about that?

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It's possibly Reynaud's disease, which I have. Basically I it means that there's not much blood flowing in my extremities and they're almost always cold and purple.

There's nothing they can do for it with the possible exception (I think) of blood thinners.

I've learned to just live with it and invest in warm gloves and wool socks (don't know what your climate is like) and it's actually gotten better as I've gotten older.

My face is always super super pale as well, and I'm sure that's related.

Sorry couldn't be of any more help than that!!

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I think I have this-

Toes and fingers go purple (even in summer!)

Interestingly my face is always very pale too,it doesn't even tan.

This winter I got some chilblains on my toes (gosh they hurt!) and I am sure it's all related.

BTW I am not a coeliac (my husband is-but I am gluten-free with him)

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I am new to the boards here so, let me introduce myself. I'm 26 & 120 and was diagnosed with celiac disease almost a year ago but have probably had it my whole life considering previous misdiagnoses. Along with my symptoms of celiac disease one thing my doctor and I haven't figured out is my purple skin tone. With my size and color I look like a corpse, which is fine for Halloween but, this is year round. Even if I tan my skin stays tinted dead purple. Anyone have any advice? :huh:

This may be something called livedo reticularis, I had it all my life and it got real pronounced when I was at my sickest. For some reason acupuncture would clear the color before I went gluten-free, it kind of amazed the Dr doing it. Now my skin tone is normal (it did take a long time to go away)- unless I get glutened. I theorize that it is a blood vessel response to the toxin because it goes away if I am totally gluten-free. But who knows. So anyway you may want to try acupuncture and make sure you are completely gluten-free.

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A friend of mine with Lupis said that I might not be getting enough Beta Carotene and suggested Burt's Bee's carrot oil lotion, this does not seem to be helping so I guess it is time for that blood work up.

If you mean the Carrot Day (or Night) Creme, it has gluten in it. :o Below is the the list of Burt's Bee's products NOT to use.

:)

Paula

---------------------------------------------------------------------------------

Thank you for contacting Burt's Bees. The Quality Resources Department Manager has put together a list of products that SHOULD NOT be used by Celiac Patients. These products contain wheat, oat, rye, or barley derived ingredients.

Please AVOID these products:

Baby Bee:

Apricot Baby Oil (Wheat)

Buttermilk Soap (Oat)

Shampoo Bar (Oat)

Healthy Skin:

Avocado Hair Butter Treatment (Oat)

Carrot Day Crème (Wheat)

Carrot Night Crème (Wheat)

Citrus Facial Scrub (Oat)

Coconut Foot Crème (Oat)

Orange Essence Cleansing Crème (Oat)

Vitamin E Bath & Body Oil (Wheat)

Healthy Treatment:

Repair Serum (Wheat)

Natural Remedy:

Dr. Burt's Res-Q Ointment or Comfrey Salve (Wheat)

Poison Ivy Soap (Oat)

Rosemary Mint Shampoo Bar (Oat)

Peppermint Foot Lotion (Wheat)

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    • Lex_, Again I am afraid Ennis_Tx is right here. Ennis_tx eats right and is eating all the right things and still has to take/supplement with Magnesium. The magnesium is a clue?  We need magnesium to make energy. I like to say as chlorophyll is to photosynthesis for the plant so is Magnesium for/to the Animal(s). Meaning we will run down without it. It is said "we waste away without enough Magnesium" Dr. Carolyn Dean wrote the book "The Magnesium Miracle" because people genuinely feel terrific when they take it. they are able to make energy again and function properly but the question remains  why? are we low in it the first place if we need it so much. Iron plays the same role in the blood/respiration but people still get IDA. It turns out low stomach acid limits our ability to absorb Magnesium and Iron. see this link about the role of gastric acid in Iron absorption. https://www.ncbi.nlm.nih.gov/pubmed/7286584/ How do we know this.  . . well it is has been studied and proven. look no further than the FDA box warning on PPI's entitled "FDA Drug Safety Communication: Low magnesium levels can be associated with long-term use of Proton Pump Inhibitor drugs (PPIs)" https://www.fda.gov/drugs/drugsafety/ucm245011.htm now this takes about 6 months of use to become low in magnesium but being low in stomach acid limits our ability to absorb Magnesium and why many people have to take it at 2x to 3x the RDA to get the desired effect. In fact the FDA says only stopping PPI's will reverses this condition.  Obviously  taking higher amount of Magnesium can help alleviate some of these symptom's but only raising the stomach acid will completely alleviate the condition. quoting "Although both patients' hypomagnesemia partially resolved with intravenous replacement, in both cases discontinuation of PPI treatment was necessary to stop ongoing symptoms and to stop magnesium loss." Hypomagnesimia is critically low Magnesiums akin to IDA. here is a thread about IDA and why this is so . . .  low stomach acid leads to low Iron levels. I think it will help explain why Celiac's often have to take Magnesium to help with their chronic fatigue symptom's. I hope this is helpful but when I helped my stomach acid levels my Magnesium begin to be better absorbed from the food I was eating. Nuts are good Magnesium sources especially Cashews and Almonds. So is chocolate hence Ennix_tx cocoa nibs etc. . . ***** this is not medical advice but I know taking Magnesium Citrate helped my energy levels. posterboy by the grace of God, 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”        
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