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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Do You Check For Gluten?
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8 posts in this topic

I've been gluten-free for 8 months, and consider myself to now be extremely well informed about this disease. So why is it that my antibodies have not even dropped at all in all these months? I have gained almost 20 lbs., so it can't be Refractory Sprue, and have recently had another endoscopy and a colonoscopy to rule out secondary problems (I don't have the results yet.) So, the question becomes, where and how am I getting gluten?! I must be, according to my blood work, and I swear I don't know where! How does one check for gluten? I'll tell you my method: I buy only a few pre-packaged foods, and the rest is fresh. I look at the labels for anything that sounds suspicious, although admittedly I'm not all that familiar with every single forbidden ingredient. 90% of the time, whether it looks suspicious or not, I call manufacturers to ask about gluten, even on such things as salt, pepper, and sugar. Am I doing this right? Is there a way to check for gluten that I am missing? What should the guidelines be in checking out our foods? Clearly there's somethign I'm not doing.

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Hi Gillian,

What are the few pre-packaged items you buy? Sometimes the item is gluten-free by ingredients, but there is cross-contamination on the lines. You may be very sensitive to it. If you make a list of those products maybe we can all share our own personal experience with those products or companies. It couldn't hurt and we may just get to the bottom of it.

Another question is do you eat out or live with non-celiac people? You may be getting contaminated that way. It is really hard to tell sometimes, especially since you haven't gotten relief from symptoms yet.

I am praying your biopsy shows that your villi are healing.

God bless,

Mariann

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These are the foods I eat right now that are not completely fresh foods:

Smucker's Peanut Butter

Trader Joe's Raspberry Jam

Ballpark 100% Beef Hot Dogs

Mother's Rice Cakes

Trader Joe's Applesauce

Pocono Brand Buckwheat and Kasha

A1 steak sauce, Heinz ketchup, salt, pepper, sugar,

Mountain Dew or Sprite

and various meds which I have double checked. I don't know what here is causing the problem but something must be. I'll find out on May 3 if at least my villi have healed.

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What about things like gum, mints, toothpaste, mouthwash, lipstick, floss...?

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Are monodiglyeride(?) bad? They are on the forbidden list but I did a search for them are and the company states there are no derivitives. Anyone know?

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Envelopes, stamps, communion wafers? (Just to be thorough!)

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monodiglyercides are an ingredient to be aware of. My understanding is that if it is made in the us is most likely gluten free. Espeically in it's liquid form. In the powdered form, such as in coffee creamer or something like that there is a possibility, but again unlikely if US product. For me, it was something I doubled checked through the company, but if they say it is fine, I bet that it is. If you need I can probably track down my info on it. I think I had found a site that talked about the questionable items such as...this one, and then explained why it was an ingredient to be consious of.

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My toothpaste is mentadent, and they told me it is gluten-free. It could be the floss and/or lipstick, because I haven't checked either of those. Could that tiny amount really keep my antibodies so high, though? That's hard to believe!

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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